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Employment and Informal Care: Sustaining Paid Work and Caregiving in Community and Home-based Care

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Abstract

Informal care provides the often hidden foundations of policies promoting care in the community and Ageing in Place. This paper examines the current impasse concerning those who are employed and seek to provide care, canvassing current and future possibilities for finding a way through the existing conflict between sustaining employment and providing informal care in the home. Focusing on the issues that emerge regarding support of older (aged) care recipients, the paper first considers the demographic, economic and democratic and governmental policy causes of the current problems. It then examines the emerging care gap expressed through the joint crisis of informal and formal care. The final section considers the solutions proposed to help re-embed care in the societies of the 21st century. These include developments related to the workplace and employment, as well as solutions concerned with providing extra services, expanding the care workforce, paying family caregivers and using technology.

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References

  • Airey, L., McKie, L., & Backett-Milburn, K. (2007). Women’s experiences of combining eldercare and paid work in the Scottish food retail sector. Health Sociology Review, 16(3/4), 292–303.

    Article  Google Scholar 

  • Allan, H. (2007). The rhetoric of caring and the recruitment of overseas nurses: the social production of a care gap. Journal of Clinical Nursing, 16(12), 2204–2212.

    Article  Google Scholar 

  • Arksey, H. (2003). People into employment: supporting people with disabilities and carers into work. Health & Social Care in the Community, 11(3), 283–292.

    Article  Google Scholar 

  • Bittman, M., Hill, T., & Thomson, C. (2007). The impact of caring on informal carers’ employment, income and earnings: a longitudinal approach. Australian Journal of Social Issues. 42. 255(18).

    Google Scholar 

  • Brody, E. (1981). Women in the middle and family help to older people. The Gerontologist, 26, 373–81.

    Google Scholar 

  • Casey, B., Oxley, H., Whitehouse, E. R., Antolín, P., Duval, R., & Leibfritz, W. (2003). Policies for an ageing society: Recent measures and areas for further reform. Economics Department Working Papers, No. 369, OECD, Paris.

  • Castells, M. (2000). The rise of network society (2nd ed.). Oxford: Blackwell.

    Google Scholar 

  • Chappell, N. L. (1994). Home care research, what does it tell us? The Gerontologist, 34(1), 116–20.

    Article  Google Scholar 

  • Chappell, N., & Blandford, A. (1991). Informal and formal care: exploring the complementarity. Ageing and Society, 11, 229–317.

    Article  Google Scholar 

  • Conway-Giustra, F., Crowley, A., & Gorin, S. H. (2002). Crisis in caregiving: a call to action. Health and Social Work, 27(4), 307.

    Article  Google Scholar 

  • Crespo, L., & Mira, P. (2010). Caregiving to elderly parents and employment statusof european mature women. CEMFI Working Paper No. 1007, Madrid. ftp://ftp.cemfi.es/wp/10/1007.pdf.

  • Daly, M., & Lewis, J. (2000). The concept of social care and the analysis of contemporary welfare states. The British Journal of Sociology, 51(2), 281–298.

    Article  Google Scholar 

  • Fast, J., Lero, D., Duncan, K., Dunlop, C., Eales, J., N. Keating, et al. (2011). Employment consequences of family/friend caregiving in Canada. RAPP Research on Aging Policies Practice, Department of Human Ecology, University of Alberta, Edmonton, AB, Canada, Edmonton. http://www.uofaweb.ualberta.ca/rapp/pdfs/Employed_caregivers_in_Canada_2011Mar31.pdf.

  • Fine, M. (2004). Care: renewing the social vision. Australian Journal of Social Issues, 39(3), 217–232.

    Google Scholar 

  • Fine, M. D. (2007). A caring society? Care and the dilemmas of human service in the 21st century. Houndmills: Palgrave.

    Google Scholar 

  • Fujisawa, R., & Colombo, F. (2009a), The long-term care workforce. Overview and strategies to adapt supply to a growing demand. OECD, Directorate for Employment, Labour and Social Affairs Committee, Health Committee, Paris. http://www.oecd.org/officialdocuments/displaydocumentpdf/?cote=delsa/elsa/wp2/hea(2009)1&doclanguage=en accessed April 2011.

  • Fujisawa, R., & Colombo, F. (2009b). The long-term care workforce: Overview and strategies to adapt supply to a growing demand. Paris: OECD.

    Book  Google Scholar 

  • Glendinning, C., Halliwell, S., Jacobs, S., Rummery, K., & Tyrer, J. (2000). New kinds of care, new kinds of relationships: how purchasing services affects relationships in giving and receiving personal assistance. Health & Social Care in the Community, 8(3), 201–211.

    Article  Google Scholar 

  • Golant, S. M., & Hyde, J. (Eds.). (2008). Assisted living residence: a vision for the future. Baltimore: Johns Hopkins University Press.

    Google Scholar 

  • Harris-Kojetin, L., Lipson, D., Fielding, J., Kiefer, K., & Stone, R. I. (2004). Recent findings on frontline long-term care workers: A research synthesis 1999–2003, http://aspe.hhs.gov/daltcp/reports/insight.htm downloaded 4 June 2010.

  • Heumann, L. F., & Boldy, D. P. (Eds.). (1993). Aging in place with dignity: International solutions relating to the low income and frail elderly. Westport: Preager.

    Google Scholar 

  • Hill, T., Thomson, C., Bittman, M., & Griffiths, M. (2008). What kinds of jobs help carers combine care and employment? Family Matters, (80), 27–32

    Google Scholar 

  • Hochschild, A. (2003). The commercialization of intimate life. Notes from home and work. University of California Press: Berkley.

    Google Scholar 

  • Hugo, G. (2007). Contextualising the “Crisis in Aged Care”: a demographic perspective. Australian Journal of Social Issues, 42(2), 169–182.

    Google Scholar 

  • Iversen, T., & Wren, A. (1998). Equality, employment, and budgetary restraint: the trilemma of the service economy. World Politics, 50(4), 507–546.

    Article  Google Scholar 

  • Johnson, P. (1997). Fiscal implications of population ageing. Philosophical Transactions: Biological Sciences, 352(1363), 1895–1903.

    Article  Google Scholar 

  • Keefe, J. M., & Fancey, P. J. (1998). Financial Compensation versus Community Supports: An Analysis of the Effects on Caregivers and Care Receivers. Halifax: Department of Gerontology, Mount Saint Vincent University.

    Google Scholar 

  • Knijn, T., & Kremer, M. (1997). Gender and the caring dimension of welfare states: toward inclusive citizenship. Social Politics, 4, 328–361.

    Google Scholar 

  • Korczyk, S. (2004). Long-term care workers in five countries: Issues and options. American Association of Retired Persons (AARP), http://www.aarp.org/research/longtermcare/trends/aresearch-import-876-2004-07-.html downloaded 10/12/06.

  • Koroukian, S. M., Murray, P., & Madigan, E. (2006). Comorbidity, disability, and geriatric syndromes in elderly cancer patients receiving home health care. Journal of Clinical Oncology, 24(15), 2304–2310.

    Article  Google Scholar 

  • Lagergren, M., & Batljan, I. (2000). Will there be a helping hand? Macroeconomic scenarios of future needs and costs of health and social care for the elderly in Sweden, 2000–30. Annex 8 to the Long-Term Survey 1999/2000, Stockholm.

  • Laslett, P. (1995). Necessary knowledge: Age and aging in the societies of the past. In D. I. Kertzer & P. Laslett (Eds.), Aging in the past. Demography, society, and old age (pp. 3–77). Berkley: University of California Press.

    Google Scholar 

  • Leigh, A. (2010). Informal care and labor market participation. Labour Economics, 17, 140–149.

    Article  Google Scholar 

  • Lilly, M. B., Laporte, A., & Coyte, P. C. (2007). Labor market work and home care’s unpaid caregivers: a systematic review of labor force participation rates. Predictors of Labor Market Withdrawal, and Hours of Work’ Milbank Quarterly, 85(4), 641–690.

    Google Scholar 

  • Mitchell, S. L., & Tetroe, J. M. (2000). Survival after percutaneous endoscopic gastrostomy placement in older persons. The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 55(12), M735–M739.

    Article  Google Scholar 

  • Morris, J. (2001). Impairment and disability: constructing an ethics of care that promotes human rights. Hypatia, 16(4), 1–16.

    Article  Google Scholar 

  • OECD. (1998). Ageing and care for frail elderly persons: An overview of international perspectives. Paris: Organisation for Economic Co-operation and Development.

    Google Scholar 

  • OECD. (2000). Reforms for an ageing society. OECD.

  • Pavalko, E. K., & Henderson, K. A. (2006). Combining care work and paid work. Research on Aging, 28(3), 359–374.

    Article  Google Scholar 

  • RTGF. (2011). The work, family and equity index. Raising the global floor. from http://raisingtheglobalfloor.org.

  • Senghaas-Knobloch, E. (2008). Carework and the ethos of care under new market conditions. Berliner Journal Fur Soziologie, 18(2), 221–243.

    Article  Google Scholar 

  • Sevenhuijsen, S. (1993). Paradoxes of gender: ethical and epistemological perspectives on care in feminist political theory. Acta Politica, 28(2), 131–149.

    Google Scholar 

  • Spillman, B. C., & Pezzin, L. E. (2000). Potential and active family caregivers: changing networks and the ‘Sandwich Generation’. The Milbank Quarterly, 78(3), 347–374.

    Article  Google Scholar 

  • Stern, D. J. (2008). Behavioral telemonitoring: the next frontier of senior care management. Caring, 27(7), 26–29.

    Google Scholar 

  • Stone, R. I., & Wiener, J. M. (2001). Who will care for us? Addressing the long-term care workforce crisis. The Urban Institute and the American Association of Homes and Services for the Aging, Washington. http://www.urban.org/UploadedPDF/Who_will_Care_for_Us.pdf downloaded 10/9/2006.

  • Super, N. (2002). Who will be there to care? The growing gap between caregiver supply and demand. Washington: National Health Policy Forum.

    Google Scholar 

  • Swanberg, J. E., Kanatzar, T., Mendiondo, M., & McCoskey, M. (2006). Caring for our elders: a contemporary conundrum for working people. Families in Society-the Journal of Contemporary Social Services, 87(3), 417–426.

    Google Scholar 

  • Thomson, C., Turvey, K., & Fine, M. (1996). Successful caring arrangements for employed caregivers. Sydney: Social Policy Research Centre, University of New South Wales.

    Google Scholar 

  • Ungerson, C., & Yeandle, S. (Eds.). (2006). Cash for care in developed welfare states. Houndmills: Palgrave MacMillan.

    Google Scholar 

  • Williams, F. (2001). In and beyond new labour: towards a new political ethics of care. Critical Social Policy, 21(4), 467–493.

    Article  Google Scholar 

Download references

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Correspondence to Michael D. Fine.

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This is a revised version of a paper first presented in the workshop ‘Keeping Older Workers in the Labour Force and Caring for a Family Member’ at the FICCDAT Caregiving conference, 5–8 June 2011, Toronto, Canada. I am grateful for the advice and encouragement of workshop participants and organizers, particularly Dr Jane Barratt of the International Federation of Aging. I also gratefully acknowledge permission to publish and the financial support provided by the Ministry for Human Resources and Skills Development Canada, (HRSDC). Responsibility for comments and for any errors remains with the author.

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Fine, M.D. Employment and Informal Care: Sustaining Paid Work and Caregiving in Community and Home-based Care. Ageing Int 37, 57–68 (2012). https://doi.org/10.1007/s12126-011-9137-9

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