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Bereavement in Hematologic Malignancies and Serious Blood Disorders

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Palliative Care in Hematologic Malignancies and Serious Blood Disorders

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Abstract

Bereavement care is considered a core component of high-quality end-of-life care and is best conceptualized as a preventive model of care. In hematological malignancies and serious blood disorders, the duration of a patient’s illness and the demanding course of treatment can greatly affect a caregiver’s bereavement. Integrating interdisciplinary palliative care early in the disease trajectory to support both the patient and the family can positively impact bereavement outcomes. Similarly, access to hospital-wide and/or hospice bereavement programs after a patient’s death allows for ongoing support and the early identification of those individuals who might be at risk of a poor bereavement outcome. In this chapter, drawing upon the palliative care and bereavement literature, we offer guidelines and outline psychological strategies to support caregivers and other family members before and after the death of a loved one.

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Acknowledgments

We would like to thank the many bereaved caregivers who have shared their experiences of loss with us over the years. We’d particularly like to thank Jack S. and Anne B. who kindly offered to share their stories for this chapter.

Financial Disclosures: Ms. Barron, Dr. Lee, Dr. Snaman, and Dr. Tarquini have no financial disclosures. Dr. Morris receives royalties for her self-help books, Overcoming grief, and An Introduction to Coping with Grief.

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Authors and Affiliations

  1. Division of Adult Psychosocial Oncology, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA

    Sue E. Morris

  2. Division of Social Work, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA

    Holly E. Barron

  3. Section of Palliative Care, Division of General Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA

    Kathleen A. Lee

  4. Pediatric Advanced Care Team, Department of Pediatric Oncology, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA

    Jennifer M. Snaman

  5. Division of Pediatric Psychosocial Oncology, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA

    Sarah J. Tarquini

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  3. Kathleen A. Lee
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  4. Jennifer M. Snaman
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Correspondence to Sue E. Morris .

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Editors and Affiliations

  1. Harvard Medical School, Boston, MA, USA

    Christina K. Ullrich

  2. Oregon Health and Science University, Portland, OR, USA

    Eric J. Roeland

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Morris, S.E., Barron, H.E., Lee, K.A., Snaman, J.M., Tarquini, S.J. (2023). Bereavement in Hematologic Malignancies and Serious Blood Disorders. In: Ullrich, C.K., Roeland, E.J. (eds) Palliative Care in Hematologic Malignancies and Serious Blood Disorders. Springer, Cham. https://doi.org/10.1007/978-3-031-38058-7_25

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