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Patient-reported outcome measures in Arabic-speaking populations: a systematic review

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Abstract

Purpose

This research aimed, first, to identify, summarize, and synthesize the studies reporting the development, translation, and/or psychometric evaluation of PROMs in Arabic-speaking populations and, second, to evaluate the psychometric properties and the translation process of a sample 26 PROMs.

Methods

In 2019, PubMed, Web of Science, and SCOPUS were searched for studies reporting the development, translation, or cross-cultural adaptation of patient-reported outcome measures in Arabic-speaking populations, and those including the assessment of one or more psychometric properties as PROMs (including validity, reliability, responsiveness, interpretability) in our target populations were included. The review protocol registration number is CRD42018088991.

Results

The search strategy outlined above yielded a total of 3179 titles in the three databases. Of these, 174 English language studies met the inclusion criteria. One hundred thirty-six PROMs were identified. The methodological quality and translation process of PROMs reported by at least two studies (26 PROM instruments, 63 studies) were examined. Internal consistency, reliability, and construct validity were the most frequently reported psychometric properties. Structural validity, cross-cultural validity, responsiveness, and measurement error were largely unreported. The process of developing at least two independent forward translations and back translation of the instrument into the source language were reported by 32 and 43 studies, respectively.

Conclusion

There is a need for further investigation of measurement properties of Arabic PROMs measures before routine use can be recommended in clinical practice.

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Acknowledgements

The authors extend their appreciation to the Deanship of Scientific Research at King Saud University, Riyadh, Saudi Arabia for funding this work through the Undergraduate Research Program Project number (URSP-3-17-9). AA and ZA are members of the Distinguished and Talented Students Program at KSU. The abstract of this paper was presented at the ISPOR Europe Conference 2019 as a poster presentation with interim findings (abstract number PNS395). The poster’s abstract was published as “Conference Abstracts” supplement in Value in Health Journal, 2019; S832: https://doi.org/10.1016/j.jval.2019.09.2295

Funding

The work was funded through the Undergraduate Research Program at KSU (URSP-3–17-9).

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  1. Clinical Pharmacy Department, College of Pharmacy, King Saud University, Riyadh, Saudi Arabia

    Sinaa Alaqeel, Almaha Alfakhri, Zakiyah Alkherb & Nouf Almeshal

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Conceptualization: SA; Methodology: SA, AA, ZA,NA; Formal analysis and investigation: SA,AA, ZA,NA; Writing—original draft preparation: SA; Writing—review and editing: SA,AA, ZA,NA.

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Correspondence to Sinaa Alaqeel.

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Alaqeel, S., Alfakhri, A., Alkherb, Z. et al. Patient-reported outcome measures in Arabic-speaking populations: a systematic review. Qual Life Res 31, 1309–1320 (2022). https://doi.org/10.1007/s11136-021-03010-0

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