Abstract
Introduction
While distress is prevalent among individuals living with cancer, distress management has not been optimized across cancer care delivery despite standards for screening. This manuscript describes the development of an enhanced Distress Thermometer (eDT) and shares the process for deploying the (eDT) across a cancer institute by highlighting improvements at the provider, system, and clinic levels.
Methods
Focus groups and surveys were used at the provider-level to outline the problem space and to identify solutions to improve distress screening and management. Through stakeholder engagement, an eDT was developed and rolled out across the cancer institute. Technical EHR infrastructure changes were implemented at the system-level to improve the use of the distress screening findings and generate automated referrals for specialty services. Clinic workflows were adapted to improve screening and distress management using the eDT.
Results
Stakeholder focus group participants (n=17) and survey respondents (n=13) found the eDT to be feasible and acceptable for distress identification and management. System-level technical EHR changes resulted in high accuracy with patient identification for distress management, and 100% of patients with moderate to severe distress were connected directly to an appropriate specialty provider. Clinic-level workflow changes to expand eDT use improved compliance rates with distress screening from 85% to 96% over a 1-year period.
Conclusions
An eDT that provides more context to patient-reported problems improved identification of referral pathways for patients experiencing moderate to high distress during cancer treatment. Combining process improvement interventions across multiple levels in the cancer care delivery system enhanced the success of this project. These processes and tools could support improved distress screening and management across cancer care delivery settings.
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Notes
WVU IRB Protocol review #2208628134
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Contributions
All authors participated in concept development and data collection. NS, PP, and AD analyzed data. NS wrote the main manuscript and prepared all figures and tables. All authors reviewed and approved the final manuscript
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Ethics approval
In accordance with research ethical standards, this study was reviewed by the West Virginia Institutional Review Board and approved as an exempt protocol: Protocol # 2208628134.
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All focus group participants consented to participate in this quality improvement project.
Competing interests
NS reports speaker honoraria from MedBridge Inc., Survivorship Solutions LLC, and GreatSeminars and Books. CS, PP, JS, and AD have no disclosures.
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Stout, N.L., Street, C., Policicchio, P. et al. Implementing process improvements to enhance distress screening and management. Support Care Cancer 31, 351 (2023). https://doi.org/10.1007/s00520-023-07821-4
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DOI: https://doi.org/10.1007/s00520-023-07821-4