Key Points
• Biomedical research has dominated research in clinical genetics.
• Health services research (HSR) and how it can contribute to improving service quality in clinical genetics.
• How healthcare is evaluated in HSR and why there is little robust evidence of patient benefits from using clinical genetics services.
• What are the attributes of a good outcome measure?
• What outcome measures can be used to evaluate clinical genetics services?
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McAllister, M. (2010). Outcome Measures in Clinical Genetics Services. In: Kristoffersson, U., Schmidtke, J., Cassiman, J. (eds) Quality Issues in Clinical Genetic Services. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-3919-4_19
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DOI: https://doi.org/10.1007/978-90-481-3919-4_19
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