Skip to main content

Assessment of health-related quality of life in persons after traumatic brain injury — development of the Qolibri, a specific measure

  • Conference paper
Re-Engineering of the Damaged Brain and Spinal Cord

Part of the book series: Acta Neurochirurgica Supplementum ((NEUROCHIRURGICA,volume 93))

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 169.00
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 219.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 219.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Acquadro C, Jambon B, Ellis D, Marquis P (1996) Language and translation issues. In: Spilker B (ed) Quality of life and pharmacoeconomics in clinical trials, 2nd ed. Raven, New York, pp 575–585

    Google Scholar 

  2. Bergner M, Bobbitt RA, Carter WB, Gilson BS (1981) The sickness impact profile: development and final revision of a health status measure. Med Care 19: 787–805

    Article  PubMed  CAS  Google Scholar 

  3. Bishara SN, Partridge FM, Godfrey HP, Knight RG (1992) Post-traumatic amnesia and Glasgow Coma Scale related to outcome in survivors in a consecutive series of patients with severe closed-head injury. Brain Inj 6: 373–380

    PubMed  CAS  Google Scholar 

  4. Bullinger M, Azouvi P, Brooks N, Basso A, Christensen AL, Gobiet W, Greenwood R, Hutter B, Jennett B, Maas A, Truelle JL, von Wild KR, TBI consensus group (2002) Quality of life in patients with traumatic brain injury basic issues, assessment and recommendations. Restor Neurol Neurosci 20: 111–124

    PubMed  CAS  Google Scholar 

  5. Bullinger M, Power MJ, Aaronson NK, Cella DF, Anderson RT (1996) Creating and evaluating cross-cultural instruments. In: Spilker B (ed) Quality of life and pharmacoeconomics in clinical trials, 2nd ed. Raven, New York, pp 659–668

    Google Scholar 

  6. Bullinger M, v Steinbuechel N (2001) Quality of life — measurement and outcome. In: Pfäfflin M, Fraser T, Thorbecke R, Specht U, Wolff R (eds) Comprehensive care for people with epilepsy. John Libbey & Company Ltd, London, pp 277–292

    Google Scholar 

  7. v Steinbuechel N, Petersen C, Bullinger M (in prep) Cross-cultural development of health related QoL measures after TBI. (in prep)

    Google Scholar 

  8. Clifton GL, Kreutzer JS, Choi SC, Devany CW, Eisenberg HM, Foulkes MA, Jane JA, Marmarou A, Marshall LF (1993) Relationship between Glasgow Outcome Scale and neuropsychological measures after brain injury. Neurosurgery 33: 34–39

    Article  PubMed  CAS  Google Scholar 

  9. Corrigan JD, Smith-Knapp K, Granger CV (1998) Outcomes in the first 5 years after traumatic brain injury. Arch Phys Med Rehab 79: 298–305

    Article  CAS  Google Scholar 

  10. Deloche G, Dellatolas G, Christensen A (2000) The European Brain Injury Questionnaire. Patients’ and families’ subjective evaluation of brain-injured patients’ current and prior to injury difficulties. International Handbook of Neuropsychological Rehabilitation. Kluwer Academic/Plenum Publishers, New York

    Google Scholar 

  11. Dijkers MP (2004) Quality of life after traumatic brain injury: a review of research approaches and findings. Arch Phys Med Rehab 85: 21–35

    Article  Google Scholar 

  12. Dikmen SS, Machamer JE, Powell JM, Temkin NR (2003) Outcome 3 to 5 years after moderate to severe traumatic brain injury. Arch Phys Med Rehab 84: 1449–1457

    Article  Google Scholar 

  13. Dikmen SS, Machamer JE, Temkin N, McLean A (1990) Neuropsychological recovery inpatients with moderate to severe head injury: 2-year follow-up. J Clin Exp Neuropsychol 12: 507–519

    PubMed  CAS  Google Scholar 

  14. Findler M, Cantor J, Haddad L, Gordon W, Ashman T (2001) The reliability and validity of the SF-36 health survey questionnaire for use with individuals with traumatic brain injury. Brain Inj 15: 715–723

    PubMed  CAS  Google Scholar 

  15. Folstein MF, Folstein SE, McHugh PR (1975) Mini mental state. A practical method for grading the cognitive state of atpatients for the clinician. J Psychiatr Res 12: 189–198

    Article  PubMed  CAS  Google Scholar 

  16. Galsk T, Tompkins C, Johnston MV (1998) Competence in discourse as a measure of social integration and quality of life in persons with traumatic brain injury. Br Inj 12: 769–782

    Article  Google Scholar 

  17. Gennarelli TA, Spielman G, Langfitt TW, Gildenberg PL, Harrington T, Jane JA, Marshall LF, Miller JD, Pitts LH (1982) Influence of the type of intracranial lesion on outcome from severe head injury. J Neurosurg 56: 26–32

    Article  PubMed  CAS  Google Scholar 

  18. Gerin P, Dazord A, Boissel JP, Hanauer MT, Moleur P, Chauvin F (1989) Quality of life assessment in therapeutic trials. Conceptual aspects and presentation of a questionnaire. Thérapie 44: 355–364

    PubMed  CAS  Google Scholar 

  19. Hammond FM, Grattan KD, Sasser H, Corrigan JD, Rosenthal M, Bushnik T, Shull W (2004) Five year after traumatic brain injury: a study of individual outcomes and predictors of changes in function. Neuro Rehab 19: 25–35

    Google Scholar 

  20. Hui C, Triandis HC (1985) Measurement in cross-cultural psychology: a review and comparison of strategies. J Cross Cult Psychol 16: 131–152

    Article  Google Scholar 

  21. Jennett B, Teasdale G, Braakman R, Minderhoud J, Heiden J, Kurze T (1979) Prognosis of patients with severe head injury. Neurosurg 4: 283–289

    Article  CAS  Google Scholar 

  22. Klonoff PS, Costa LD, Snow WG (1986) Predictors and indicators of QOL in patients with closed-head injury. J Clin Exp Neuropsy 8: 469–485

    CAS  Google Scholar 

  23. Lannoo E, Van Rietvelde F, Colardyn F, Lemmerling M, Vandekerckhove T, Jannes C, De Soete G (2000) Early predictors of mortality and morbidity after severe closed head injury. J Neurotrauma 17: 403–414

    PubMed  CAS  Google Scholar 

  24. Levine B, Dawson D, Boutet I, Schwartz ML, Stuss DT (2000) Assessment of strategic self-regulation in traumatic brain injury: its relationship to injury severity and psychosocial outcome. Neuropsychology 14: 491–500

    Article  PubMed  CAS  Google Scholar 

  25. MacKenzie EJ, McCarthy ML, Ditunno JF, Forrester-Staz C, Gruen GS, Marion DW, Schwab WC (2002) Using the SF-36 for characterizing outcome after multiple trauma involving head injury. J Trauma 52: 527–534

    PubMed  Google Scholar 

  26. Milders M, Fuchs S, Crawford JR (2003) Neurological impairments and changes in emotional and social behaviour following severe traumatic brain injury. J Clin Exp Neuropsychol 25: 157–172

    Article  PubMed  Google Scholar 

  27. Neugebauer E, Bouillon B, Bullinger M, Wood-Dauphinee S (2002) Quality of life after multiple trauma-summary and recommendations of the consensus conference. Restor Neurol Neurosci 20: 161–167

    PubMed  CAS  Google Scholar 

  28. O’Neill J, Hibbard MR, Brown M et al (1998) The effect of employment on quality of life and community integration after traumatic brain injury. J Head Trauma Rehab 13: 68–79

    CAS  Google Scholar 

  29. Pirente N, Gregor A, Bouillon B, Neugebauer (2001) Lebensqualität schwerstverletzter Patienten ein Jahr nach dem Trauma, eine matched-pair-Studie im Vergleich zu einer gesunden Kontrollgruppe. Unfallchirurgie 104: 57–63

    Article  CAS  Google Scholar 

  30. Powell JH, Beckers K, Greenwood RJ (1998) Measuring progress and outcome in community rehabilitation after brain injury with a new assessment instrument the BICRO-39 scales. Arch Phys Med Rehab 79: 1213–1225

    Article  CAS  Google Scholar 

  31. Riemsma RP, Forbes CA, Glanville JM, Eastwood AJ, Kleijnen J (2001) General health status measures for people with cognitive impairment: learning disability and acquired brain injury. Health Technol Assess 5: 1–100

    CAS  Google Scholar 

  32. Spilker B, Revicki DA (1996) Taxonomy of QOL. In: Spilker B (ed) QOL and pharmacoeconomics in clinical trials. 2nd ed. Raven, New-York, pp 25–31

    Google Scholar 

  33. Teasdale G, Jennett B (1974) Assessment of coma and impaired consciousness. A practical scale. Lancet 2: 81–84

    Article  PubMed  CAS  Google Scholar 

  34. Teasdale TW, Christensen A, Willmes K, Deloche G, Braga L, Stachowiak F, Vendrell JM, Castro-Caldas A, Laaksonen R, Leclercq M (1997) Subjective experience in brain-injured patients and their close relatives: a European Brain Injury Questionnaire study. Brain Inj 11: 543–563

    Article  PubMed  CAS  Google Scholar 

  35. Temkin N, McLean A Jr, Dikmen S, Gale J, Bergner M, Almes MJ (1988) Development and evaluation of modifications to the Sickness Impact Profile for head injury. J Clin Epidemiol 41: 47–57

    Article  PubMed  CAS  Google Scholar 

  36. The European Group for QOL and Health Measurement (1992) European guide to the Nottingham Health Profile. ESCUBASE, Montpellier

    Google Scholar 

  37. The WHOQOL Group (1993) Study Protocol of the World Health Organization project to develop a QOL assessment instrument (WHOQOL). Qual Life Res 2: 153–159

    Article  Google Scholar 

  38. Truelle JL, Montreuil M, North P, Tazopoulou E (2002) Quality of life in traumatic brain injuried: generic or specific scale? 60 cases. Int Br Inj, 4th World Congress, Italy

    Google Scholar 

  39. von Steinbuechel N, Poeppel E (1993) Domains of rehabilitation: a theoretical perspective. Behav Brain Res 56: 1–10

    Article  Google Scholar 

  40. von Steinbuechel N (1998) Gesundheitsbezogene Lebensqualität und subjektiver Gesundheitszustand — neue Kriterien in der Medizin? In: Grundböck A, Nowak P, Pelikan JM (eds) Neue Herausforderungen für Krankenhäuser, Bd 7, Wiener Facultas Universitätsverlag, pp 50–68

    Google Scholar 

  41. von Steinbuechel N (1995) Erfassung von mentalen Funktionen und gesundheitsbezogener Lebensqualitaet. Habilitationsschrift. Universitaet Innsbruck

    Google Scholar 

  42. von Wild KR (2003) New development of functional neurorehabilitation in neurosurgery. Acta Neurochir (Wien) [Suppl] 87: 43–47

    Google Scholar 

  43. Ware JE, Keller SD, Gandek B, Brazier J, Sullivan M (1995) Evaluating translations of the health status questionnaires. Methods from the IQOLA project. Int J Technol Assess Health Care 11: 525–551

    PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Consortia

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2005 Springer-Verlag

About this paper

Cite this paper

von Steinbuechel, N., Petersen, C., Bullinger, M., the QOLIBRI Group. (2005). Assessment of health-related quality of life in persons after traumatic brain injury — development of the Qolibri, a specific measure. In: von Wild, K.R.H. (eds) Re-Engineering of the Damaged Brain and Spinal Cord. Acta Neurochirurgica Supplementum, vol 93. Springer, Vienna. https://doi.org/10.1007/3-211-27577-0_6

Download citation

  • DOI: https://doi.org/10.1007/3-211-27577-0_6

  • Publisher Name: Springer, Vienna

  • Print ISBN: 978-3-211-24150-9

  • Online ISBN: 978-3-211-27577-1

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics