Notes
“Those cases in which reasonable and responsible persons can and do disagree about whether the ‘life’ after treatment will be ‘worthing living’ or ‘normal,’ and thus about what is ‘right,’ are precisely those in which parents must remain free of coercive state intervention in deciding whether to reject or consent to the medical program offered to their child” [7, p. 94].
“In all actions concerning children, whether undertaken by public or private social welfare institutions, courts of law, administrative authorities or legislative bodies, the best interests of the child shall be a primary consideration” [8, art. 3.1].
References
Singer, Peter. 1993. Practical ethics. Cambridge: Cambridge University Press.
Kushe, Helga, and Peter Singer. 1985. Should the baby live? The problem of handicapped infants. Oxford: Oxford University Press.
McMahan, Jeff. 2002. The ethics of killing: problems at the margins of life. Oxford: Oxford University Press.
Wilkinson, Dominic. 2009. The window of opportunity: decision theory and the timing of prognostic tests for newborn infants. Bioethics 23: 503–514.
Placencia, Frank X., and Laurent McCullough. 2011. The history of ethical decision making in neonatal intensive care. Journal of Intensive Care Medicine 26: 368–384.
Antommaria, Armand Matheny. 2006. “Who should survive? one of the choices on our conscience”: Mental retardation and the history of contemporary bioethics. Kennedy Institute of Ethics Journal 16: 205–224.
Goldstein, Joseph, Anna Freud, and Albert J. Solnit. 1979. Before the best interests of the child. New York: The Free Press.
United Nations. 1990. Convention on the Rights of the Child. Resolution 44/25 of November 20, 1989. http://www.ohchr.org/en/professionalinterest/pages/crc.aspx. Accessed June 3 2015.
Welie, Jos V.M. 2005. When medical treatment is no longer in order: toward a new interpretation of the ordinary-extraordinary distinction. National Catholic Bioethics Quarterly 5: 517–536.
Veatch, Robert M. 1995. Abandoning informed consent. Hastings Center Report 25: 5–12.
Brody, Howard. 1988. In the best interests of. Hastings Center Report 18: 37–39.
Engelhardt, H. Tristram. 2010. Beyond the best interests of children: four views of the family and of foundational disagreements regarding pediatric decision making. Journal of Medicine and Philosophy 35: 499–517.
Kopelman, Loretta M. 1997. The best-interest standard as threshold, ideal, and standard of reasonableness. Journal of Medicine and Philosophy 22: 281–289.
Malek, Janet. 2009. What really is in a child’s best interest? Toward a more precise picture of the interests of children. Journal of Clinical Ethics 20: 175–182.
American Academy of Pediatrics Committee on Bioethics. 1995. Informed consent, parental permission, and assent in pediatric practice. Pediatrics 95: 314–317.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
González-Melado, F.J. Dominic Wilkinson: Death or disability? The “Carmentis Machine” and decision-making for critically ill children . Theor Med Bioeth 36, 363–368 (2015). https://doi.org/10.1007/s11017-015-9335-7
Published:
Issue Date:
DOI: https://doi.org/10.1007/s11017-015-9335-7