Skip to main content
Log in

Retrospective Descriptive Study of Cerebral Palsy in Nepal

  • Original Paper
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

There is very little data pertaining to cerebral palsy (CP) from Nepal. In this retrospective study it was observed that dyskinetic CP was seen in 29 % and the sex ratio of males to females was two in the study population of children with CP. Both of these are much higher than data from developed countries. Hence, further randomized cross-sectional community based study is recommended to enquire into this pattern. Data regarding early identification was encouraging as majority of the cases (56 %) were diagnosed before 4 years of age. There is a stark necessity of early screening and rehabilitation program with provision for follow-up for the affected children, which must also be accessible to the disadvantaged and marginalized groups in Nepal.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2
Fig. 3
Fig. 4

Similar content being viewed by others

References

  • Bell, K. J., Ounpuu, S., DeLuca, P. A., & Romness, M. J. (2002). Natural progression of gait in children with cerebral palsy. Journal of Pediatric Orthopaedics, 22(5), 677–682.

    PubMed  Google Scholar 

  • Cans, C. (2000). Surveillance of cerebral palsy in Europe: A collaboration of cerebral palsy surveys and registers. Developmental Medicine and Child Neurology, 42, 816–824. doi:10.1111/j.1469-8749.2000.tb00695.x.

    Article  Google Scholar 

  • Central Bureau of Statistics (CBS), Nepal. (2012). National population and housing census 2011. National Report, 1, 211–225.

  • Central Bureau of Statistics (CBS), Nepal. (2014). Population monograph of nepal volume III. Economic Demography. Retrieved from http://cbs.gov.np/?p=2726.

  • Christensen, D., Van Naarden Braun, K., Doernberg, N. S., Maenner, M. J., Arneson, C. L., Durkin, M. S., et al. (2014). Prevalence of cerebral palsy, co-occurring autism spectrum disorders, and motor functioning—Autism and Developmental Disabilities Monitoring Network, USA, 2008. Developmental Medicine and Child Neurology, 56(1), 59–65.

    Article  PubMed  Google Scholar 

  • Ellis, M., Bhattarai, S., & Pandey, J. (2007). Cerebral palsy in Nepal: A descriptive study of 136 disabled children presenting to a cerebral palsy centre in Kathmandu. Journal of Institute of Medicine, 20(1). Retrieved from http://www.jiom.com.np/index.php/jiomjournal/article/view/4/5.

  • Era, New. (2001). A situation analysis of disability in Nepal. Kathmamdu, Nepal: New Era, UNICEF and National Planning Commission.

    Google Scholar 

  • Hou, M., Zhao, J. H., & Yu, R. (2006). Recent advances in dyskinetic cerebral palsy. World J Pediatr, 1, 23–28.

    Google Scholar 

  • Johnson, D. C., Damiano, D. L., & Abel, M. F. (1997). The evolution of gait in childhood and adolescent cerebral palsy. Journal of Pediatric Orthopaedics, 17, 392–396.

    PubMed  Google Scholar 

  • Johnston, M. V., & Hagberg, H. (2007). Sex and the pathogenesis of cerebral palsy. Developmental Medicine and Child Neurology, 49, 74–78. doi:10.1017/S0012162207000199.

    Article  PubMed  Google Scholar 

  • Jones, M. W., Morgan, E., Shelton, J. E., & Thorogood, C. (2007). Cerebral palsy: Introduction and diagnosis (part I). Journal of Pediatric Health Care, 21(3), 146–152.

    Article  PubMed  Google Scholar 

  • McIntyre, S., Morgan, C., Walker, K., & Novak, I. (2011). Cerebral palsy–Don’t delay. Developmental Disabilities Research Reviews, 17(2), 114–129. doi:10.1002/ddrr.1106.PMID23362031.

    Article  PubMed  Google Scholar 

  • Ministry of Health and Population. (2011a). Nepal Demographic Health Survey. Kathmandu: Government of Nepal.

    Google Scholar 

  • Ministry of Health and Population. (2011b). Nepal population report. Kathmandu: Government of Nepal.

    Google Scholar 

  • Oskoui, M., Coutinho, F., Dykeman, J., Jetté, N., & Pringsheim, T. (2013). An update on the prevalence of cerebral palsy: A systematic review and meta-analysis. Developmental Medicine and Child Neurology, 55(6), 509–519. doi:10.1111/dmcn.12080.PMID23346889.

    Article  PubMed  Google Scholar 

  • Pharoah, P. O. D., Cooke, T., Johnson, M. A., King, R., & Mutch, L. (1998). Epidemiology of cerebral palsy in England and Scotland, 1984–9. Archives of Disease in Childhood-Fetal and Neonatal Edition, 79(1), F21–F25.

    Article  PubMed  PubMed Central  Google Scholar 

  • Rethlefsen, S. A., Ryan, D. D., & Kay, R. M. (2010). Classification systems in cerebral palsy. The Orthopedic Clinics of North America, 41(4), 457–467. doi:10.1016/j.ocl.2010.06.005.

    Article  PubMed  Google Scholar 

  • Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., et al. (2007). A report: the definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology Journal, 109(suppl 109), 8–14.

    Google Scholar 

  • Rosenbloom, L. (1995). Diagnosis and management of cerebral palsy. Archives of Disease in Childhood, 72(4), 350–354.

    Article  PubMed  PubMed Central  Google Scholar 

  • Sanger, T. (2007). The definition and classification of cerebral palsy: A neurological perspective on definition and classification. Developmental Medicine and Child Neurology Journal, 49(Suppl. 109), 30–31.

    Article  Google Scholar 

  • Saul, R., & Phillips, D. (1998). Ghosts and germs: Cerebral palsy in Nepal—A cultural exploration of cosmology and disability. Center for Nepal and Asian Studies Journal, 25(2), 215–232.

    Google Scholar 

  • Sauvey, S., Osrin, D., Manandhar, D. S., Costello, A. M., & Wirz, S. (2005). Prevalence of childhood and adolescent disabilities in rural Nepal. Indian Pediatrics, 42(17), 697–702.

    PubMed  Google Scholar 

  • Surveillance of Cerebral Palsy in Europe 3 (SCPE). (2007). EURO-PERISTAT II-Luxembourg.

  • United Nations and Government of Nepal. (2010). Nepal millennium development goals report 2010.

  • Yarnell, J. (2013). Epidemiology and disease prevention: A global approach (2nd ed., p. 190). Oxford: Oxford University Press.

    Google Scholar 

  • Zarrinkalam, R., Russo, R. N., Gibson, C. S., van Essen, P., Peek, A. K., & Haan, E. (2010). CP or not CP? A review of diagnoses in a cerebral palsy register. Pediatric Neurology, 42(3), 177–180.

    Article  PubMed  Google Scholar 

Download references

Acknowledgments

I would like to express my gratitude to Prof. Batuk Prasad Rajbhandari, the chairman of Self-help Group for cerebral palsy (SGCP), Nepal for his lifelong contribution to uplifting children with cerebral palsy in Nepal. The CEO of Self-help Group for cerebral palsy, Nepal deserves equal credit for his encouragement for preparation of this work. I would like to thank all the staffs of SGCP for their dedicated work in the service of children and parents of children affected with CP and other neurological diseases. Also, Dr. Chandra LekhaTuladhar deserves special thanks here, whose nudge to the young Rotaracts Anushree and Dipta was a big help in tabulation of data for this study.

Author Contributions

The author collected and tabulated all the data from the records of the institute. Help of two Rotary Club volunteers were enlisted for part of data entry into the spreadsheet, which was again rechecked by the author. The author then analyzed the data and wrote the paper after extensive literature review. The paper was then shown to a few experts from this field and their feedback was incorporated into the final manuscript.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Ritesh Thapa.

Ethics declarations

Conflict of interest

The author declares he has no conflict of interest.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Thapa, R. Retrospective Descriptive Study of Cerebral Palsy in Nepal. J Autism Dev Disord 46, 2285–2291 (2016). https://doi.org/10.1007/s10803-016-2757-x

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10803-016-2757-x

Keywords

Navigation