Skip to main content

Advertisement

Log in

Why Wait? The Effect of Wait-Times on Subsequent Help-Seeking Among Families Looking for Children’s Mental Health Services

  • Published:
Journal of Abnormal Child Psychology Aims and scope Submit manuscript

Abstract

Placement on a wait-list may increase families’ help-seeking efforts, leading them to contact more than one children’s mental health (MH) agency/professional. Two issues were examined in the current study: 1) Does time on a wait-list for families impact the time to contact a new agency for children’s MH services? 2) What are the effects of predisposing (e.g., child age), need (e.g., child psychopathology), and enabling/system-level factors (e.g., parent treatment history) on the length of time parents wait before they contact a new agency for help with their child’s MH problems? A total of 273 families seeking help for their child (64 % boys, M = 10.7 years old, SD = 3.3) were asked about their contact with MH agencies/professionals during the previous year. Survival analyses, modeling time from initial wait-list placement to when a new agency was contacted, were conducted separately for families who did (n = 114), and those who did not (n = 159), receive help prior to contacting a new agency. Almost half of wait-listed families contacted a new agency by the end of the study period. Longer wait-time was associated with a greater likelihood of seeking help at a second agency with 25 % of families contacting a new agency within the first month of being wait-listed. Parents with previous treatment experience and families living in areas with more agencies contacted a new agency sooner. Subsequent help-seeking behaviour suggests parents’ intolerance for lengthy treatment delays may result in disorganized pathways to care. These findings suggest a highly fragmented service delivery system.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

References

  • Aday, L. A., & Andersen, R. (1974). A framework for the study of access to medical care. Health Services Research, 9, 208–220.

    PubMed Central  PubMed  Google Scholar 

  • Angold, A., Messer, S. C., Stangl, D., Farmer, E. M., Costello, E. J., & Burns, B. J. (1998). Perceived parental burden and service use for child and adolescent psychiatric disorders. American Journal of Public Health, 88, 75–80.

    Article  PubMed Central  PubMed  Google Scholar 

  • Angold, A., Costello, E. J., Burns, B. J., Erkanli, A., & Farmer, E. M. (2000). Effectiveness of nonresidential specialty mental health services for children and adolescents in the “real world”. Journal of the American Academy of Child and Adolescent Psychiatry, 39, 154–160.

    Article  PubMed  Google Scholar 

  • Barwick, M., Boydell, K. M., Cunningham, C. E., & Ferguson, H. B. (2004). Overview of Ontario’s screening and outcome measurement initiative in children’s mental health. The Canadian Child and Adolescent Psychiatry Review, 4, 105–109.

    Google Scholar 

  • Blais, R., Breton, J., & Fournier, M. (2003). Are mental health services for children distributed according to needs? Canadian Journal of Psychiatry, 48, 176–186.

    Google Scholar 

  • Boydell, K. M., Pong, R., Volpe, T., Tilleczek, K., Wilson, E., & Lemieux, S. (2006). Family perspectives on pathways to mental health care for children and youth in rural communities. The Journal of Rural Health, 22, 182–188.

    Article  PubMed  Google Scholar 

  • Boyle, M. H., Cunningham, C. E., Georgiades, K., Cullen, J., Racine, Y., & Pettingill, P. (2009). The Brief Child and Family Phone Interview (BCFPI): 2. Usefulness in screening for child and adolescent psychopathology. Journal of Child Psychology and Psychiatry, 50, 424–431.

    Article  PubMed  Google Scholar 

  • Clemente, C., McGrath, R., Stevenson, C., & Barnes, J. (2006). Evaluation of a waiting list initiative in a child and adolescent mental health service. Child and Adolescent Mental Health, 11, 98–103.

    Article  Google Scholar 

  • Cleves, M. A., Gould, W. W., Gutierrez, R. G., & Marchenko, Y. V. (2010). An introduction to survival analysis using stata (3rd ed.). Texas: Stata Press.

    Google Scholar 

  • Costello, E. J., Pescosolido, B. A., Angold, A., & Burns, B. J. (1998). A family network-based model of access to child mental health services. Research in Community and Mental Health, 9, 165–190.

    Google Scholar 

  • Cunningham, P. J., & Freiman, M. P. (1996). Determinants of ambulatory mental health services use for school-age children and adolescents. Health Services Research, 31, 409–427.

    PubMed Central  PubMed  Google Scholar 

  • Cunningham, C. E., Pettingill, P., & Boyle, M. (2006). The Brief Child and Family Phone Interview (BCFPI-3). A computerized intake and outcome assessment tool: interviewers manual. Candian Centre for the Study of Children at Risk, Hamilton Health Sciences.

  • Cunningham, C. E., Boyle, M. H., Hong, S., Pettingill, P., & Bohaychuk, D. (2009). The Brief Child and Family Phone Interview (BCFPI): 1. Rationale, development, and description of a computerized children’s mental health intake and outcome assessment tool. Journal of Child Psychology and Psychiatry, 50, 416–423.

    Article  PubMed  Google Scholar 

  • Cunningham, C. E., Chen, Y., Deal, K., Rimas, H., McGrath, P., Reid, G., & Corkum, P. (2013). The interim service preferences of parents waiting for children’s mental health treatment: a discrete choice conjoint experiment. Journal of Abnormal Child Psychology, 41, 865–877.

    Article  PubMed  Google Scholar 

  • Durrande-Moreau, A. (1999). Waiting for service: 10 years of empirical research. International Journal of Service Industry Management, 10, 171–194.

    Article  Google Scholar 

  • Erath, S. A., Keiley, M. K., Pettit, G. S., Lansford, J. E., Dodge, K. A., & Bates, J. E. (2009). Behavioral predictors of mental health service utilization in childhood through adolescence. Journal of Developmental and Behavioral Pediatrics, 30, 481–488.

    Article  PubMed Central  PubMed  Google Scholar 

  • Farmer, E. M. Z., Burns, B. J., Angold, A., & Costello, E. J. (1997). Impact of children’s mental health problems on families: relationships with service use. Journal of Emotional and Behavioral Disorders, 5, 230–238.

    Article  Google Scholar 

  • Farmer, E. M. Z., Costello, E. J., & Angold, A. (1999). Use, persistence, and intensity: patterns of care for children’s mental health across 1 year. Community Mental Health Journal, 35, 31–46.

    Article  PubMed  Google Scholar 

  • Foreman, D. M., & Hanna, M. (2000). How long can a waiting list be?: The impact of waiting time on intention to attend child and adolescent psychiatric clinics. Psychiatric Bulletin, 24, 211–213.

    Article  Google Scholar 

  • Goldston, D. B., Reboussin, B. A., Kancler, C., Daniel, S. S., Frazier, P. H., Harria, A. E., & Reboussin, D. M. (2002). Rates and predictors of aftercare services among formerly hospitalized adolescents: a prospective naturalistic study. Journal of the American Academy of Child and Adolescent Psychiatry, 42, 49–56.

    Article  Google Scholar 

  • Harpaz-Rotem, I., Leslie, D., & Rosenheck, R. A. (2004). Treatment retention among children entering a new episode of mental health care. Psychiatric Services, 55, 1022–1028.

    Article  PubMed  Google Scholar 

  • Harrison, M. E., McKay, M. M., & Bannon, W. M. (2004). Inner-city child mental health service use: the real question is why youth and families do not use services. Community Mental Health Journal, 40, 119–131.

    Article  PubMed  Google Scholar 

  • Hosmer, D. W., Lemeshow, S., & May, S. (2008). Applied survival analysis: Regression modeling of time to event data. New York: Wiley.

    Book  Google Scholar 

  • Kaplan, E. L., & Meier, P. (1958). Nonparametric estimation from incomplete observations. Journal of the American Statistical Association, 53, 457–481.

    Article  Google Scholar 

  • Kazdin, A. E., Holland, L., & Crowley, M. (1996). Family experience of barriers to treatment and premature termination from child therapy. Journal of Consulting and Clinical Psychology, 65, 453–463.

    Article  Google Scholar 

  • Kerkorian, D., McKay, M., & Bannon, W. M. (2006). Seeking help a second time: parents’/caregivers’ characterizations of previous experiences with mental health services for their children and perceptions of barriers to future use. The American Journal of Orthopsychiatry, 76, 161–166.

    Article  PubMed  Google Scholar 

  • Kowalewski, K., Mclennan, J. D., & McGrath, P. J. (2011). A Preliminary investigation of wait times for child and adolescent mental health services in Canada. Journal of the American Academy of Child and Adolescent Psychiatry, 20, 112–119.

    Google Scholar 

  • Lefebvre, A., Sommerauer, J., Cohen, N., Waldron, S., & Perry, I. (1983). Where did all the “No-Shows” go? Canadian Journal of Psychiatry, 28, 387–390.

    Google Scholar 

  • Logan, D. E., & King, C. A. (2001). Parental facilitation of adolescent mental health service utilization: a conceptual and empirical review. Clinical Psychology: Science and Practice, 8, 319–333.

    Google Scholar 

  • Meredith, L. S., Stein, B. D., Paddock, S. M., Jaycox, L. H., Quinn, V. P., Chandra, A., & Burnam, A. (2009). Perceived barriers to treatment for adolescent depression. Medical Care, 47, 677–685.

    Article  PubMed  Google Scholar 

  • Miller, I. W., Epstein, N. B., Bishop, D. S., & Keitner, G. I. (1985). The McMaster family assessment device: reliability and validity. Journal of Marital and Family Therapy, 11, 345–356.

    Article  Google Scholar 

  • Mowbray, C. T., Lewandowski, L., Bybee, D., & Oyserman, D. (2004). Children of mothers diagnosed with serious mental illness: patterns and predictors of service use. Mental Health Services Research, 6, 167–183.

    Article  PubMed  Google Scholar 

  • Nelson, C. H., & Park, J. (2006). The nature and correlates of unmet health care needs in Ontario, Canada. Social Science & Medicine (1982), 62(9), 2291–2300.

    Article  Google Scholar 

  • Nock, M. K., & Kazdin, A. E. (2001). Parent expectancies for child therapy: assessment and relation to participation in treatment. Journal of Child and Family Studies, 10, 155–180.

    Article  Google Scholar 

  • Offord, D. R., Boyle, M. H., Fleming, J. E., Blum, H. M., & Grant, N. I. (1989). Ontario child health study. Summary of selected results. Canadian Journal of Psychiatry, 34, 483–491.

    Google Scholar 

  • Osuna, E. E. (1985). The psychological cost of waiting. Journal of Mathematical Psychology, 29, 82–105.

    Article  Google Scholar 

  • Owens, P. L., Hoagwood, K., Horwitz, S. M., Leaf, P. J., Poduska, J. M., Kellam, S. G., & Ialongo, N. S. (2002). Barriers to children’s mental health services. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 731–738.

    Article  PubMed  Google Scholar 

  • Pescosolido, B. A., Gardner, C. B., & Lubell, K. M. (1998). How people get into mental health services: stories of choice, coercion and “muddling through” for “first-timers.”. Social Science & Medicine, 46, 275–286.

    Article  Google Scholar 

  • Rawlinson, S., & Williams, R. (2000). The primary/secondary care interface in child and adolescent mental health services: the relevance of burden. Current Opinion in Psychiatry, 13, 389–395.

    Article  Google Scholar 

  • Reid, G. J., & Brown, J. B. (2008). Money, case complexity, and wait Lists: perspectives on problems and solutions at children’s mental health centers in Ontario. Journal of Behavioural Health Services & Research, 35, 334–346.

    Article  Google Scholar 

  • Reid, G. J., Tobon, J. I., & Shanley, D. C. (2008). What is a mental health clinic? How to ask parents about help-seeking contacts within the mental health system. Administration and Policy in Mental Health, 35, 241–249.

    Article  PubMed  Google Scholar 

  • Reid, G. J., Cunningham, C. E., Tobon, J. I., Evans, B., Stewart, M., Brown, J. B., & Shanley, D. C. (2011). Help-seeking for children with mental health problems: parents’ efforts and experiences. Administration and Policy in Mental Health, 38, 384–397.

    Article  PubMed  Google Scholar 

  • Rogler, L. H., & Cortes, D. E. (1993). Help-seeking pathways: a unifying concept in mental health care. The American Journal of Psychiatry, 150, 554–561.

    Article  PubMed  Google Scholar 

  • Sayal, K. (2004). The role of parental burden in child mental health service use: longitudinal study. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 1328–1333.

    Article  PubMed  Google Scholar 

  • Sayal, K., Tischler, V., Coope, C., Robotham, S., Ashworth, M., Day, C., & Simonoff, E. (2010). Parental help-seeking in primary care for child and adolescent mental health concerns: qualitative study. The British Journal of Psychiatry, 197, 476–481.

    Article  PubMed  Google Scholar 

  • Shaffer, D., Fisher, P., Lucas, C. P., Dulcan, M. K., & Schwab-Stone, M. E. (2000). NIMH diagnostic interview schedule for children version IV (DISC-IV): description, differences from previous versions, and reliability of some common diagnoses. Journal of the American Academy of Child and Adolescent Psychiatry, 39, 28–38.

    Article  PubMed  Google Scholar 

  • Shanley, D. C., Reid, G. J., & Evans, B. (2008). How parents seek help for children with mental health problems. Administration and Policy in Mental Health, 35, 135–146.

    Article  PubMed  Google Scholar 

  • Sherman, M. L., Barnum, D. D., Buhman-Wiggs, A., & Nyberg, E. (2009). Clinical intake of child and adolescent consumers in a rural community mental health center: does wait-time predict attendance? Community Mental Health Journal, 45, 78–84.

    Article  PubMed  Google Scholar 

  • Singer, J. D., & Willett, J. B. (2003). Applied longitudinal data analysis: Modeling change and event occurrence. Change. Oxford: Oxford University Press.

    Book  Google Scholar 

  • Smith, D. H., & Hadorn, D. C. (2002). Lining up for children’s mental health services: a tool for prioritizing waiting lists. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 367–376.

    Article  PubMed  Google Scholar 

  • Stallard, P., & Sayers, J. (1998). An opt-in appointment system and brief therapy: perspectives on a waiting list initiative. Clinical Child Psychology and Psychiatry, 3, 199–212.

    Article  Google Scholar 

  • Starr, S., Campbell, L. R., & Herrick, C. A. (2002). Factors affecting use of the mental health system by rural children. Issues in Mental Health Nursing, 23, 291–304.

    Article  PubMed  Google Scholar 

  • Stern, G., & Brown, R. (1994). The effect of a waiting list on attendance at initial appointments in a child and family clinic. Child: Care, Health and Development, 20, 219–230.

    Google Scholar 

  • Stiffman, A. R., Pescosolido, B., & Cabassa, L. J. (2004). Building a model to understand youth service access: the gateway provider model. Mental Health Services Research, 6, 189–198.

    Article  PubMed Central  PubMed  Google Scholar 

  • Subotski, F., & Berelowitz, M. (1990). Consumer views at a child guidance clinic. Newsletter of Association for Child Psychology and Psychiatry, 12, 8–12.

    Google Scholar 

  • Waddell, C., Offord, D. R., Shepherd, C. A., Hua, J. M., & McEwan, K. (2002). Child psychiatric epidemiology and Canadian public policy-making: the state of the science and the art of the possible. Canadian Journal of Psychiatry, 47, 825–832.

    Google Scholar 

  • Waddell, C., Mcewan, K., Shepherd, C. A., Offord, D. R., & Hua, J. M. (2005). A Public health strategy to improve the mental health of Canadian children. Canadian Journal of Psychiatry, 50, 226–233.

    Google Scholar 

  • Westin, A. M. L., Barksdale, C. L., & Stephan, S. H. (2013). The effect of waiting time on youth engagement to evidence based treatments. Community Mental Health Journal, 50, 221–228.

    Article  PubMed  Google Scholar 

  • Williams, R., & Kerfoot, M. (2005). Child and adolescent mental health services: Strategy, planning, delivery, and evaluation. Oxford: Oxford University Press.

    Google Scholar 

  • Wu, P., Hoven, C. W., Bird, H. R., Moore, R. E., Cohen, P., Alegria, M., & Roper, M. T. (1999). Depressive and disruptive disorders and mental health service utilization in children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 38, 1081–1090.

    Article  PubMed  Google Scholar 

  • Zwaanswijk, M., Van Der Ende, J., Verhaak, P. F. M., Bensing, J. M., & Verhulst, F. C. (2003). Factors associated with adolescent mental health service need and utilization. Journal of the American Academy of Child and Adolescent Psychiatry, 42, 692–700.

    Article  PubMed  Google Scholar 

  • Zwaanswijk, M., Van Der Ende, J., Verhaak, P. F. M., Bensing, J. M., & Verhulst, F. C. (2007). The different stages and actors involved in the process leading to the use of adolescent mental health services. Clinical Child Psychology and Psychiatry, 12, 567–582.

    Article  PubMed  Google Scholar 

Download references

Acknowledgments

This research was supported in part by grants from the Canadian Health Services Research Foundation (RCI-0959-06), the Consortium for Applied Research and Evaluation in Mental Health, and the Ontario Ministry of Children and Youth Services. At the time this study was conducted, Graham J. Reid was supported as the Bill and Anne Brock Professor in Child Health. He was also supported by the Children’s Health Foundation.

Conflict of Interest

The authors declare there are no conflicts of interest.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Kyleigh E. Schraeder.

Electronic supplementary material

Below is the link to the electronic supplementary material.

ESM 1

(DOCX 35 kb)

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Schraeder, K.E., Reid, G.J. Why Wait? The Effect of Wait-Times on Subsequent Help-Seeking Among Families Looking for Children’s Mental Health Services. J Abnorm Child Psychol 43, 553–565 (2015). https://doi.org/10.1007/s10802-014-9928-z

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10802-014-9928-z

Keywords

Navigation