Abstract
I am in recovery from anorexia nervosa, and I have been struggling with this battle for almost 9 years. Nearly 10 million females, and one million males, in the USA are currently struggling with anorexia or bulimia as diagnosed by a physician, not even counting those exhibiting disordered eating behaviors undiagnosed (“Anorexia Nervosa” 2005). Estimates have shown that 80% of women in the USA are dissatisfied with their bodies (“Anorexia Nervosa” 2005). Suffice it to say that eating disorders are rampant in our country, and often remain a silent issue, as their effects make individuals feel ashamed and alone. While research has made leaps and bounds in eating disorder cause, treatment, and risk factors, unfortunately, the personal voice behind an eating disorder often gets lost in the midst of medicine aiming to find helpful approaches. This personal, layered account is an attempt to show that every patient’s individuality and personal experiences should be privileged throughout their diagnosis and care. Secondly, this research argues that an individual goes through a process of disease and recovery that are both complex and unpredictable. Having anorexia, and attempting to recover from it, is not as simple as a medical process resting only upon one’s motivation. I decided to write this research in an attempt to offer a voice for eating disorders, making the argument that although scientific research has been useful in particular treatment programs, perhaps it should only be used as a small supplement to eating disorder treatment programs, as personal experience shows that recovery from any life-threatening addiction cannot be simplified in a way that ignores the agency of the patient and their experiences.
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References
Becker AE, Hamburg P (1996) Culture, media, and eating disorders. Harv Rev Psychiatry 4:163–167 eissn: 1465-7309
Becker AE, Burwell RA, Gilman SE, Herzog DB, Hamburg P (2002) Eating behaviours and attitudes following prolonged exposure to television among ethnic Fijian adolescent girls. Br J Psychiatry 180:509–514. doi:10.1192/bjp.180.6.509
Bochner AP, Ellis C (1995) Telling and living: Narrative co-construction and the practices of interpersonal relationships. In: Leeds-Hurwitz W (ed) Social approaches to communication. Guilford Press, New York, pp 201–213
Boud D, Cohen R, Walker D (2000) Introduction: understanding learning from experience. In: Boud D, Cohen R, Walker D (eds) Using experience for learning. Open University Press, Buckingham, pp 1–17
Burnard P (1991) Experiential learning in action. Avebury & Ashgate, London
Charon R (2006) Narrative medicine: honoring the stories of illness. Oxford University Press, Oxford
Defenbaugh NL (2008) Under erasure: the absent ill body in doctor-patient dialogue. Qual Inquiry 14(8):1402–1424. doi:10.1177/1077800408322579
Dewey J (1938) Experience and education: kappa delta pi lecture series. Collier-Macmillan Books, London
Ellingson LL (1998) “Then you know how I feel”: empathy, identification, and reflexivity in fieldwork. Qual Inquiry 4:492–514. doi:10.1177/107780049800400405
Ellis C, Bochner AP (1992) Telling and performing personal stories: The constraints of choice in abortion. In: Ellis C, Flaherty M (eds) Investigating subjectivity: research on lived experience. Sage, Newbury Park
Ellis C, Bochner AP (2000) Autoethnography, personal narrative, reflexivity: Researcher as subject. In: Denzin N, Lincoln Y (eds) Handbook of qualitative research, 2nd edn. Sage, Thousand Oaks, pp 733–768
Fowler J (2008) Experiential learning and its facilitation. Nurse Educ Today 28:427–433. doi:10.1016/j.nedt.2007.07.007
Frank AW (1995) The wounded storyteller: Body, illness, and ethics. University of Chicago Press, Chicago
Franko, K. (2010). Eating disorders. Retrieved from http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/psychiatry-psychology/eating-disorders/
Freire P (1972) Pedagogy of the oppressed. Harmondsworth Penguin, London
Geary MC (1988) A review of treatment models for eating disorders: toward a holistic nursing model. Holist Nurs Pract 3(1):39–45
Gibbs RW, Franks H (2002) Embodied metaphor in women’s narratives about their experiences with cancer. Health Commun 14:139–165
Goodall HL (2004) Narrative ethnography as applied communication research. J Appl Commun Res 32(3):185–194. doi:10.1080/0090988042000240130
Jacobson-Levy M, Foy-Tornay M (2010) Finding your voice through creativity: the art and journaling workbook for disordered eating. Gurze Books, Carlsbad
Kolb D (1984) Experiential learning: experience as the source of learning and development. Prentice-Hall, Englewood Cliffs
Mezirow J (1981) A critical theory of adult learning and education. Adult Educ 32(1):3–24
Mezirow J (1998) On critical reflection. Adult Educ Q 48(3):185–199. doi:10.1177/074171369804800305
Mitz LB, Betz NE (1988) Prevalence and correlates of eating disordered behaviors among undergraduate women. J Couns Psychol 35:463–471
Moon J (2004) A handbook of reflective and experiential learning: THEORY and practice. Routledge Falmer, London
Parry A (1991) A universe of stories. Family Process 30:37–54. doi:10.1111/j.1545-5300.1991.00037.x
Polivy J, Herman PC (2002) Causes of eating disorders. Annu Rev Psychol 53:187–213
Richardson L (2002) Writing sociology. Cult Stud Crit Methodol 2(3):414–422. doi:10.1177/15308602002003011
Ronai CR (1995) Multiple reflections of child sex abuse: an argument for a layered account. J Ethnog Res 23:395–425
Serpell L, Treasure J, Teasdale J, Sullivan V (1999) Anorexia nervosa: friend or foe? Int J Eat Disord 25:177–186. doi:10.1002/(SICI)1098-108X(199903)25:2<177::AID-EAT7>3.0.CO;2-D
Sharf BF, Vanderford ML (2003) Illness narratives and the social construction of health. In: Thompson T, Dorsey A, Miller K, Parrott R (eds) Handbook of health communication. Lawrence Erlbaum, Mahwah, pp 9–34
Tiggeman M, Pickering AS (1996) Role of television in adolescent women’s body dissatisfaction and drive for thinness. Int J Eat Disord 20:199–203
Tillmann LM (2009) Body and bulimia revisited: reflections on “a secret life”. J Appl Commun Res 37(1):98–112
Tillmann-Healy LM (1996) A secret life in a culture of thinness: reflections of body, food, and bulimia. In: Ellis C, Bochner A (eds) Composing ethnography: alternative forms of qualitative writing. AltaMira Press, Walnut Creek, pp 76–108
Vanderlinden J, Vandereycken W, van Dyck R, Vertommen H (1993) Dissociative experiences and trauma in eating disorders. Int J Eat Disord 13(2):187–193
Walker AC (2002) Safety and comfort work of nurses glimpsed through patient narratives. Int J Nurs Pract 8:42–48. doi:10.1046/j.1440-172x.2002.00342.x
Warner Weil S, McGill I (1990) Making sense of experiential learning: diversity in theory and practice. Open University Press, Buckingham
Williams G (1997) The genesis of chronic illness: narrative reconstruction. In: Hinchman L, Hinchman S (eds) Memory, identity, community: the idea of narrative in the human sciences. State University of New York, Albany, pp 185–212
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Applequist, J. “The part too often left out involves the perspectives of patients”: helping health-care providers understand the material reality of the every day for individuals with eating disorders. J Med Pers 12, 118–124 (2014). https://doi.org/10.1007/s12682-014-0186-1
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DOI: https://doi.org/10.1007/s12682-014-0186-1