Citizen’s Health through public-private Initiatives: Public health, Market and Ethical perspectives

In this topical collection (8 articles)

1. Original Article

   The challenges of the expanded availability of genomic information: an agenda-setting paper

   Pascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljøsne… Pages 103-116

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2. Original Article

   Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape

   L. Kalokairinou, H. C. Howard, S. Slokenberga, E. Fisher… Pages 117-132

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3. Original Article

   Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality

   Oliver Feeney, Pascal Borry, Heike Felzmann… Pages 133-142

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4. Original Article

   Readability of informed consent forms for whole-exome and whole-genome sequencing

   Emilia Niemiec, Danya F. Vears, Pascal Borry… Pages 143-151

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5. Original Article

   Health, wealth and behavioural change: an exploration of role responsibilities in the wake of epigenetics

   Danya F. Vears, Flavio D’Abramo Pages 153-167

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6. Original Article

   How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF)

   Heidi Carmen Howard, Deborah Mascalzoni, Laurence Mabile… Pages 169-176

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7. Original Article

   Legal issues in governing genetic biobanks: the Italian framework as a case study for the implications for citizen’s health through public-private initiatives

   Cinzia Piciocchi, Rossana Ducato, Lucia Martinelli… Pages 177-190

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8. Original Article

   Desiderata for digital consent in genomic research

   Carlos Luis Parra-Calderón, Jane Kaye… Pages 191-194

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