Abstract
Background
Most people in a state of illness or reduced self-sufficiency wish to remain in their home environment. Their physiological needs, and their psychological, social, and environmental needs, must be fully met when providing care in their home environment. The aim of this study is to provide an overview of the self-perceived needs of older people living with illness or reduced self-sufficiency and receiving professional home care.
Methods
A scoping review of articles published between 2009 and 2018 was conducted by searching six databases and Google Scholar. Inductive thematic analysis was used to analyze data from the articles retrieved.
Results
15 articles were included in the analysis. Inductive thematic analysis identified six themes: coping with illness; autonomy; relationship with professionals; quality, safe and secure care; role in society; environment.
Conclusion/discussion
Older home care patients living with chronic illness and reduced self-sufficiency are able to express their needs and wishes. Care must, therefore, be planned in line with recipients’ needs and wishes, which requires a holistic approach.
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References
World Health Organization (2017) Global strategy and action plan on ageing and health. World Health Organization, Geneva
Organisation for Economic Co-operation and Development (2017) Health at a glance 2017: OECD indicators. OECD Publishing, Paris. https://doi.org/10.1787/health_glance-2017-en
Holmerová I Waageová D, Hradcová D et al (2014) Dlouhodobá péče: Geriatrické aspekty a kvalita péče. Grada, Prague
Holmerová I, Jurašková B, Zikmundová K et al (2007) Vybrané kapitoly z gerontologie. EV Public relations, Prague
Beachamp TL, Childress JF (2009) Principles of biomedical ethics, 6th edn. Oxford University Press, New York
Asadi-Lari M, Packham C, Gray D (2003) Need for redefining needs. Health Qual Life Outcomes. https://doi.org/10.1186/1477-7525-1-34
Kollak I, Kim HS (2006) Nursing theories: conceptual and philosophical foundations. Springer, New York
Mizrahi T, Davis LE (2008) Encyclopedia of social work, 20th edn. National Association of Social Workers, Washington, D.C
Wright J, Williams R, Wilkinson JR (1998) (1998) Development and importance of health needs assessment. BMJ 316:1310–1313. https://doi.org/10.1136/bmj.316.7140.1310
Maslow AH (1943) A theory of human motivation. Psychol Rev 50:370–396. https://doi.org/10.1037/h0054346
Reynolds T, Thornicroft G, Abas M et al (2000) Camberwell Assessment of Need for the Elderly (CANE): development, validity and reliability. Br J Psychiatry 176:444–452. https://doi.org/10.1192/bjp.176.5.444
Orrel M, Hancock G (2004) The Camberwell assessment of needs for the elderly (CANE). Gaskell, London
Ajay S, Østbye T, Malhotra R (2017) Caregiving-related needs of family caregivers of older Singaporeans. Australas J Ageing 36:E8–E13. https://doi.org/10.1111/ajag.12370
Bierhals CCBK, Santos NOD, Fengler FL et al (2017) Needs of family caregivers in home care for older adults. Revista Latino-Americana De Enfermagem 25:e2870. https://doi.org/10.1590/1518-8345.1511.2870
Fjelltun A-MS, Henriksen N, Norberg A et al (2009) Carers’ and nurses’ appraisals of needs of nursing home placement for frail older in Norway. J Clin Nurs 18:3079–3088. https://doi.org/10.1111/j.1365-2702.2008.02663.x
Larsen A, Broberger E, Petersson P (2017) Complex caring needs without simple solutions: the experience of interprofessional collaboration among staff caring for older persons with multimorbidity at home care settings. Scand J Caring Sci 31:342–350. https://doi.org/10.1111/scs.12352
Liebel DV, Powers BA (2015) Home health care nurse perceptions of geriatric depression and disability care management. Gerontologist 55:448–461. https://doi.org/10.1093/geront/gnt125
Saunders MM (2014) Home health care nurses’ perceptions of heart failure home health care. Home Health Care Manag Pract 26:217–222. https://doi.org/10.1177/1084822314528938
Shyu Y-IL, Chen M-C, Wu C-C et al (2010) Family caregivers’ needs predict functional recovery of older care recipients after hip fracture. J Adv Nurs 66:2450. https://doi.org/10.1111/j.1365-2648.2010.05418.x
Custers AFJ, Westerhof GJ, Kuin Y et al (2010) Need fulfillment in caring relationships: its relation with well-being of residents in somatic nursing homes. Aging Mental Health 14:731–739. https://doi.org/10.1080/13607861003713133
Custers AFJ, Kuin Y, Riksen-Walraven M et al (2011) Need support and wellbeing during morning care activities: an observational study on resident-staff interaction in nursing homes. Ageing Soc 31:1425–1442. https://doi.org/10.1017/S0144686X10001522
Custers AFJ, Westerhof GJ, Kuin Y et al (2013) Need fulfillment in the nursing home: resident and observer perspectives in relation to resident well-being. Eur J Ageing 10:201–209. https://doi.org/10.1007/s10433-013-0263-y
Dudman J, Meyer J (2012) Understanding residential home issues to meet health-care needs. Br J Community Nurs 17:434–438. https://doi.org/10.12968/bjcn.2012.17.9.434
Ferrand C, Martinent G, Durmaz N (2014) Psychological need satisfaction and well-being in adults aged 80 years and older living in residential homes: using a self-determination theory perspective. J Aging Stud 30:104–111. https://doi.org/10.1016/j.jaging.2014.04.004
Ferreira AR, Dias CC, Fernandes L (2016) Needs in nursing homes and their relation with cognitive and functional decline, behavioral and psychological symptoms. Front Aging Neurosci 8:72. https://doi.org/10.3389/fnagi.2016.00072
Chuang Y-H, Abbey JA, Yeh Y-C et al (2015) As they see it: a qualitative study of how older residents in nursing homes perceive their care needs. Collegian (Royal College of Nursing, Australia) 22:43. https://doi.org/10.1016/j.colegn.2013.11.001
Colquhoun HL, Levac D, O’Brien KK et al (2014) Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol 67:1291–1294. https://doi.org/10.1016/j.jclinepi.2014.03.013
Arksey H, O’Malley L (2005) Scoping studies: towards a methodological framework. Int J Soc Res Methodol 8:19–32. https://doi.org/10.1080/1364557032000119616
Levac D, Colquhoun H, O’Brien KK (2010) Scoping studies: advancing the methodology. Implement Sci. https://doi.org/10.1186/1748-5908-5-69
Moher D, Liberati A, Tetzlaff J et al (2009) Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med 6:e1000097. https://doi.org/10.1371/journal.pmed.1000097
Pace R, Pluye P, Bartlett G et al (2012) Testing the reliability and efficiency of the pilot mixed methods appraisal tool (MMAT) for systematic mixed studies reviews. Int J Nurs Stud 49:47–53. https://doi.org/10.1016/j.ijnurstu.2011.07.002
Corbin JM, Strauss AL (2008) Basics of qualitative research: techniques and procedures for developing grounded theory, 3rd edn. Sage Publication, Los Angeles
Bagchus C, Dedding C, Bunders JF (2015) ‘I’m happy that I can still walk’—participation of the elderly in home care as a specific group with specific needs and wishes. Health Expect 18:2183–2191. https://doi.org/10.1111/hex.12188
Nicholson C, Meyer J, Flatley M et al (2012) Living on the margin: understanding the experience of living and dying with frailty in old age. Soc Sci Med 75:1426–1432. https://doi.org/10.1016/j.socscimed.2012.06.011
Nicholson C, Meyer J, Flatley M et al (2013) The experience of living at home with frailty in old age: a psychosocial qualitative study. Int J Nurs Stud 50:1172–1179. https://doi.org/10.1016/j.ijnurstu.2012.01.006
Randström KB, Asplund K, Svedlund M et al (2013) Activity and participation in home rehabilitation: older people’s and family members’ perspectives. J Rehabil Med 45:211–216. https://doi.org/10.2340/16501977-1085
Županić M, Kovačević I, Krikčić V et al (2013) Everyday needs and activities of geriatric patients—users of home care. Periodicum Biologorum 115:575–580
Moe A, Hellzen O, Enmarker I (2013) The meaning of receiving help from home nursing care. Nurs Ethics 20:737–747. https://doi.org/10.1177/0969733013478959
Eloranta S, Arve S, Isoaho H et al (2010) Perceptions of the psychological well-being and care of older home care clients: clients and their carers. J Clin Nurs 19:847–855. https://doi.org/10.1111/j.1365-2702.2009.02994.x
Janssen BM, Abma TA, Regenmortel TV (2012) Maintaining mastery despite age related losses. The resilience narratives of two older women in need of long-term community care. J Aging Stud 26:343–354. https://doi.org/10.1016/j.jaging.2012.03.003
Llobet MP, Ávila NR, Farràs JF et al (2011) Quality of life, happiness and satisfaction with life of individuals 75 years old or older cared for by a home health care program. Revista Latino-Americana De Enfermagem 19:467–475. https://doi.org/10.1590/s0104-11692011000300004
Jarling A, Rydström I, Ernsth-Bravell M et al (2018) Becoming a guest in your own home: home care in Sweden from the perspective of older people with multimorbidities. Int J Older People Nurs. https://doi.org/10.1111/opn.12194
Breitholtz A, Snellman I, Fagerberg I (2013) Living with uncertainty: Older persons’ lived experience of making independent decisions over time. Nurs Res Pract 2013:1–8. https://doi.org/10.1155/2013/403717
Breitholtz A, Snellman I, Fagerberg I (2012) Older peoples’ dependence on caregivers’ help in their own homes and their lived experience of their opportunity to make independent decisions. Int J Older People Nurs 8:139–148. https://doi.org/10.1111/j.1748-3743.2012.00338.x
Liveng A (2011) The vulnerable elderly’s need for recognizing relationships—a challenge to Danish home-based care. J Soc Work Pract 25:271–283. https://doi.org/10.1080/02650533.2011.597173
From I, Johansson I, Athlin E (2009) The meaning of good and bad care in the community care: older people’s lived experiences. Int J Older People Nurs 4:156–165. https://doi.org/10.1111/j.1748-3743.2008.00156.x
McGarry J (2010) Relationships between nurses and older people within the home: exploring the boundaries of care. Int J Older People Nurs 5:265–273. https://doi.org/10.1111/j.1748-3743.2009.00192.x
Bradshaw J (1972) Taxonomy of social need. In: McLachlan G (ed) Problems and progress in medical care: essays on current research, 7th series. Oxford University Press, London, pp 71–82
Stevens A, Gabbay J (1991) Needs assessment needs assessment. Health Trends 23:20–30
Haaster IV, Lesage AD, Cyr M et al (1994) Problems and needs of care of patients suffering from severe mental illness. Soc Psychiatry Psychiatr Epidemiol 29:141–148. https://doi.org/10.1007/bf00796495
Figueiredo DDR, Paes LG, Warmling AM et al (2018) Multidimensional measures validated for home health needs of older persons: a systematic review. Int J Nurs Stud 77:130–137. https://doi.org/10.1016/j.ijnurstu.2017.08.013
Denson LA, Winefield HR, Beilby J (2013) Discharge-planning for long-term care needs: the values and priorities of older people, their younger relatives and health professionals. Scand J Caring Sci 27:3–12. https://doi.org/10.1111/j.1471-6712.2012.00987.x
Esbensen BA, Hvitved I, Andersen HE et al (2015) Growing older in the context of needing geriatric assessment: a qualitative study. Scand J Caring Sci 30:489–498. https://doi.org/10.1111/scs.12267
Feldman S, Dickins ML, Browning CJ et al (2014) The health and service needs of older veterans: a qualitative analysis. Health Expect 18:2202–2212. https://doi.org/10.1111/hex.12190
Gabrielsson-Järhult F, Nilsen P (2015) On the threshold: older people’s concerns about needs after discharge from hospital. Scand J Caring Sci 30:135–144. https://doi.org/10.1111/scs.12231
Lee L-L, Lin S-H, Philp I (2015) Health needs of older aboriginal people in Taiwan: a community-based assessment using a multidimensional instrument. J Clin Nurs 24:2514–2521. https://doi.org/10.1111/jocn.12842
Turjamaa R, Hartikainen S, Kangasniemi M et al (2014) Living longer at home: a qualitative study of older clients’ and practical nurses’ perceptions of home care. J Clin Nurs 23:3206–3217. https://doi.org/10.1111/jocn.12569
Best Practice Evidence-based Guideline (2003) Assessment Process for Older People. New Zealand Guidelines Group. ISBN 0-473-09996-9
Challis D, Abendstern M, Clarkson P et al (2010) Comprehensive assessment of older people with complex care needs: the multi-disciplinarity of the Single Assessment Process in England. Ageing Soc 30:1115–1134. https://doi.org/10.1017/s0144686x10000395
Bamm EL, Rosenbaum P, Wilkins S (2012) Is health related quality of life of people living with chronic conditions related to patient satisfaction with care? Disabil Rehabil 35:766–774. https://doi.org/10.3109/09638288.2012.707746
Ju YJ, Kim TH, Han K-T et al (2017) Association between unmet healthcare needs and health-related quality of life: a longitudinal study. Eur J Public Health 27:631–637. https://doi.org/10.1093/eurpub/ckw264
Schölzel-Dorenbos CJ, Meeuwsen EJ, Rikkert MGO (2010) Integrating unmet needs into dementia health-related quality of life research and care: introduction of the hierarchy model of needs in dementia. Aging Mental Health 14:113–119. https://doi.org/10.1080/13607860903046495
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This study was supported by the Charles University Grant Agency, Project No. 760219.
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Dostálová, V., Bártová, A., Bláhová, H. et al. The needs of older people receiving home care: a scoping review. Aging Clin Exp Res 33, 495–504 (2021). https://doi.org/10.1007/s40520-020-01505-3
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DOI: https://doi.org/10.1007/s40520-020-01505-3