Abstract
Patients followed up with a cancer diagnosis must be well-informed about cancer to be able to cope with it. Besides, informing the relatives of the cancer patients who are also experiencing the same process about the diagnosis and follow-up period of cancer is highly important. In the current study, it was aimed to evaluate the information sources about cancer which are referred to by relatives of cancer patients. Three hundred ninety-one cancer patient relatives were included in medical oncology clinic between May 1 and June 30, 2015. A questionnaire was applied to the participants, comprising 12 questions to elicit demographic information and 11 questions about the information sources to which they referred. The study included 183 female and 208 male participants with a mean age of 47.9 ± 13.6 years. While the oncologists were the primary information sources referred to by 87%, the Internet was the second most preferred information source by 72%. The websites most frequently referred were the official websites (70%), the websites of oncology associations (53%), and social networks and forums (32%). The primary factors affecting the Internet preference were age, education level, income level, and place of residence. The Internet was the second most referred information source about cancer by family caregivers following oncologists. Therefore, it is of crucial importance that physicians inform patients and their relatives comprehensively as well as guiding them to correct and reliable information sources.
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References
Beaver K, Luker K (1997) Readability of patient information booklets for women with breast cancer. Patient Educ Couns 31(2):95–102
Bylund CL, Gueguen JA, D’Agostino TA, Li Y, Sonet E (2010) Doctor–patient communication about cancer-related internet information. J Psychosoc Oncol 28(2):127–142
Carlsson ME (2000) Cancer patients seeking information from sources outside the health care system. Support Care Cancer 8(6):453–457
Cassileth BR, Zupkis RV, Sutton-Smith K, March V (1980) Information and participation preferences among cancer patients. Ann Intern Med 92(6):832–836
Chen X, Siu LL (2001) Impact of the media and the internet on oncology: survey of cancer patients and oncologists in Canada. J Clin Oncol 19(23):4291–4297
Christine D-S (1984) Social support and cancer: findings based on patient interviews and their implications. J Soc Issues 40(4):77–98
Fogel J, Albert SM, Schnabel F, Ditkoff BA, Neugut AI (2002) Internet use and social support in women with breast cancer. Health Psychol 21(4):398–404
Guidry JJ, Ann Aday L, Zhang D, Winn RJ (1998) Information sources and barriers to cancer treatment by racial/ethnic minority status of patients. J Cancer Educ 13(1):43–48
Hack TF, Degner LF, Dyck DG (1994) Relationship between preferences for decisional control and illness information among women with breast cancer: a quantitative and qualitative analysis. Soc Sci Med 39(2):279–289
James N, Daniels H, Rahman R, McConkey C, Derry J, Young A (2007) A study of information seeking by cancer patients and their carers. Clin Oncol 19(5):356–362
Luker KA, Beaver K, Lemster SJ, Owens RG (1996) Information needs and sources of information for women with breast cancer: a follow-up study. J Adv Nurs 23(3):487–495
Maloney EK, D’Agostino TA, Heerdt A, Dickler M, Li Y, Ostroff JS, Bylund CL (2015) Sources and types of online information that breast cancer patients read and discuss with their doctors. Palliat Support Care 13(2):107–114
Peterson MW, Fretz PC (2003) Patient use of the internet for information in a lung cancer clinic. Chest 123(2):452–457
Rutten LJF, Arora NK, Bakos AD, Aziz N, Rowland J (2005) Information needs and sources of information among cancer patients: a systematic review of research (1980–2003). Patient Educ Couns 57(3):250–261
Shea-Budgell MA, Kostaras X, Myhill KP, Hagen NA (2014) Information needs and sources of information for patients during cancer follow-up. Curr Oncol 21(4):165
Spillman BC, Pezzin LE (2000) Potential and active family caregivers: changing networks and the ‘sandwich generation’. Milbank Q 78(3):347–374
Türkiye İstatistik Kurumu. 2013. Hanehalkı Bilişim Teknolojileri Kullanım Araştırması. TÜİK Haber Bülteni Sayı 13569. http://www.tuik.gov.tr/PreHaberBultenleri.do?id=13569. Accessed 2016
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We thank Dr. Hüseyin Oğuz Yılmaz for his help on critical revision and editing of the manuscript.
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Yıldırım, S., Kazaz, S.N., Semiz, H.S. et al. An Evaluation of the Information Sources of Cancer Patients’ Relatives. A Prospective Survey. J Canc Educ 34, 913–919 (2019). https://doi.org/10.1007/s13187-018-1395-8
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DOI: https://doi.org/10.1007/s13187-018-1395-8