Skip to main content

Advertisement

Log in

Mobile Health Application and e-Health Literacy: Opportunities and Concerns for Cancer Patients and Caregivers

  • Published:
Journal of Cancer Education Aims and scope Submit manuscript

Abstract

Health literacy is critical for cancer patients as they must understand complex procedures or treatment options. Caregivers’ health literacy also plays a crucial role in caring for cancer patients. Low health literacy is associated with low adherence to medications, poor health status, and increased health care costs. There is a growing interest in the use of mobile health applications (apps) to improve health literacy. Mobile health apps can empower underserved cancer patients and their caregivers by providing features or functionalities to enhance interactive patient-provider communication and to understand medical information more readily. Despite the potentiality of improving health literacy through mobile health apps, there exist several related concerns: no equal access to mobile technology, no familiarity or knowledge of using mobile health apps, and privacy and security concerns. These elements should be taken into account for health policy making and mobile apps design and development. Importantly, mobile apps should be developed with the goal of achieving a high range of user access by considering all health literacy level and various cultural and linguistic needs.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  1. Centers for Disease Control and Prevention (2017) Cancer Data and Statistics. https://www.cdc.gov/cancer/dcpc/data/index.htm. Accessed 22 Aug 2017

  2. Centers for Disease Control and Prevention (2016) How to Prevent Cancer or Find It Early. https://www.cdc.gov/cancer/dcpc/prevention/index.htm. Accessed 29 July 2017

  3. World Health Organization (2017) Cancer. http://www.who.int/mediacentre/factsheets/fs297/en/. Accessed 14 July 2017

  4. Cleeland CS, Mendoza TR, Wang XS, Chou C, Harle MT, Morrissey M, Engstrom MC (2000) Assessing symptom distress in cancer patients. Cancer 89(7):1634–1646

    Article  CAS  Google Scholar 

  5. Bert F, Giacometti M, Gualano MR, Siliquini R (2014) Smartphones and health promotion: a review of the evidence. J Med Syst 38(1):9995

    Article  Google Scholar 

  6. Fox S, Duggan M (2012) Mobile health 2012: mobile health has found its market. http://pewinternet.org/2012/11/08/mobile-health-2012/. Accessed 30 March 2017

  7. Dolan B (2011) Report: 13K iPhone consumer health apps in 2012. http://mobihealthnews.com/13368/report-13k-iphone-consumer-health-apps-in-2012/. Accessed 25 May 25 2017

  8. Mosa, A. S., Too, I., Sheets, L. 2012. A systematic review of health care apps for the smartphones. BMC Med Inform 12(1):67

  9. Demidowich AP, Lu K, Tamler R, Bloomgarden Z (2012) An evaluation of diabetes self-management applications for Android smartphones. J Telemed Telecare 18(4):235–238

    Article  Google Scholar 

  10. Bricker JB, Mull KE, Kientz JA, Vilardaga R, Mercer LD, Akioka KJ, Heffner JL (2014) Randomized, controlled pilot trial of a smartphone app for smoking cessation using acceptance and commitment therapy. Drug Alcohol Depend 143:87–94

    Article  Google Scholar 

  11. Mirkovic J, Kaufman DR, Ruland CM (2014) Supporting cancer patients in illness management: usability evaluation of a mobile app. JMIR mHealth uHealth. https://doi.org/10.2196/mhealth.3359

  12. Cancer.Net. n.d. Mobile Applications: Now Available on iOS, Android, and the Amazon App Store: Version 3.1. http://cancer.net/navigating-cancer-care/managing-your-care/mobile-applications. Accessed 27 March 2017

  13. Ruland CM, Jeneson A, Andersen T, Andersen R, Slaughter L (2007) Designing tailored Internet support to assist cancer patients in illness management. In: AMIA Annual Symposium Proceedings (vol 2007, p 635). American Medical Informatics Association

  14. Office of Disease Prevention and Health Promotion (2010) National Action Plan to Improve Health Literacy. https://healthypeople.gov/2020/tools-resources/evidence-based-resource/national-action-plan-improve-health-literacy. Accessed 1 May 2017

  15. Schneider M (2005) 2003 National Assessment of Adult Literacy (NAAL) Results. https://nces.ed.gov/whatsnew/commissioner/remarks2005/12_15_2005.asp. Accessed 1 May 2017

  16. Scott TL, Gazmararian JA, Williams MV, Baker DW (2002) Health literacy and preventive health care use among Medicare enrollees in a managed care organization. Med Care 40(5):395–404

    Article  Google Scholar 

  17. Berkman ND, Sheridan SL, Donahue KE, Halpern DJ, Crotty K (2011) Low health literacy and health outcomes: an updated systematic review. Ann Intern Med. https://doi.org/10.7326/0003-4819-155-2-201107190-00005

  18. Halverson J, Martinez-Donate A, Trentham-Dietz A, Walsh MC, Strickland JS, Palta M et al (2013) Health literacy and urbanicity among cancer patients. J Rural Health 29(4):392–402

    PubMed  PubMed Central  Google Scholar 

  19. Weiss BD, Blanchard JS, McGee DL, Hart G, Warren B, Burgoon M, Smith KJ (1994) Illiteracy among Medicaid recipients and its relationship to health care costs. J Health Care Poor Underserved 5(2):99–111

    Article  CAS  Google Scholar 

  20. Kalichman SC, Ramachandran B, Catz S (1999) Adherence to combination antiretroviral therapies in HIV patients of low health literacy. J Gen Intern Med 14:267–273

    Article  CAS  Google Scholar 

  21. Norman CD, Skinner HA (2006) eHealth literacy: essential skills for consumer health in a networked world. J Med Internet Res. https://doi.org/10.2196/jmir.8.2.e9

  22. Chan CV, Kaufman DR (2011) A framework for characterizing eHealth literacy demands and barriers. J Med Internet Res 13(4)

  23. Kim SP, Knight SJ, Tomori C, Colella KM, Schoor RA, Shih L et al (2001) Health literacy and shared decision making for prostate cancer patients with low socioeconomic status. Cancer Investig 19(7):684–691

    Article  CAS  Google Scholar 

  24. Sparks L, Nussbaum JF (2008) Health literacy and cancer communication with older adults. Patient Educ Couns 71(3):345–350

    Article  Google Scholar 

  25. Bevan JL, Pecchioni LL (2008) Understanding the impact of family caregiver cancer literacy on patient health outcomes. Patient Educ Couns 71(3):356–364

    Article  Google Scholar 

  26. Oh YS (2015) Predictors of self and surrogate online health information seeking in family caregivers to cancer survivors. Soc Work Health Care 54(10):939–953

    Article  Google Scholar 

  27. Kim H, Xie B (2015) Health literacy and internet-and mobile app-based health services: a systematic review of the literature. Proc Assoc Inf Sci Technol 52(1):1–4

    Google Scholar 

  28. Klasnja P, Hartzler A, Powell C, Pratt W (2011) Supporting cancer patients’ unanchored health information management with mobile technology. AMIA Ann Symp Proc 2011:732–741

    Google Scholar 

  29. Bailey SC, O’conor R, Bojarski EA, Mullen R, Patzer RE, Vicencio D et al (2015) Literacy disparities in patient access and health-related use of Internet and mobile technologies. Health Expect 18(6):3079–3087

    Article  Google Scholar 

  30. Gibbons MC (2011) Use of health information technology among racial and ethnic underserved communities. Perspect Health Inf Manag 8(1):1

    Google Scholar 

  31. Lenhart A, Ling R, Campbell S, Purcell K (2010) Teens and mobile phones. Text messaging explodes as teens embrace it as the centerpiece of their communication strategies with friends. http://pewinternet.org/2010/04/20/teens-and-mobile-phones/. Accessed 19 May 2017

  32. Kotz D, Gunter CA, Kumar S, Weiner JP (2016) Privacy and security in mobile health: a research agenda. Computer 49(6):22–30

    Article  Google Scholar 

  33. Smith E, Eloff JH (1999) Security in health-care information systems-current trends. Int J Med Inform 54(1):39–54

    Article  CAS  Google Scholar 

  34. Smith A (2014) Half of online Americans don’t know what a privacy policy is. http://pewresearch.org/fact-tank/2014/12/04/half-of-americans-dont-know-what-a-privacy-policy-is/. Accessed 14 May 2017

  35. Kearney N, McCann L, Norrie J, Taylor L, Gray P, McGee-Lennon M, Sage M, Miller M, Maguire R (2009) Evaluation of a mobile phone-based, advanced symptom management system (ASyMS) in the management of chemotherapy-related toxicity. Support Care Cancer. https://doi.org/10.1007/s00520-008-0515-0

  36. Bender JL, Yue RYK, To, M. J, Deacken L, Jadad AR (2013) A lot of action, but not in the right direction: systematic review and content analysis of smartphone applications for the prevention, detection, and management of cancer. J Med Internet Res. https://doi.org/10.2196/jmir.2661

  37. Bielli E, Carminati F, La Capra S, Lina M, Brunelli C, Tamburini MA (2004) Wireless Health Outcomes Monitoring System (WHOMS): development and field testing with cancer patients using mobile phones. BMC Med Inform Decis Mak. https://doi.org/10.1186/1472-6947-4-7

  38. Wu HC, Chang CJ, Lin CC, Tsai MC, Chang CC, Tseng MH (2014) Developing screening services for colorectal cancer on Android smartphones. Telemed e-Health 20(8):687–695

    Article  Google Scholar 

  39. Heo J, Chun M, Lee KY, Oh YT, Noh OK, Park RW (2013) Effects of a smartphone application on breast self-examination: a feasibility study. Healthc Inform Res 19(4):250–260

    Article  Google Scholar 

  40. Chaudry BM, Connelly KH, Siek KA, Welch JL (2012) Mobile interface design for low-literacy populations. In: Proceedings of the 2nd ACM SIGHIT international health informatics symposium (pp 91–100). ACM

  41. Broderick, J., Devine, T., Langhans, E., Lemerise, A. J., Lier, S., & Harris, L. 2014. Designing health literate mobile apps. Institute of Medicine of the National Academies.

  42. Ginossar, T., Shah, S. F. A., West, A. J., Bentley, J. M., Caburnay, C. A., Kreuter, M. W., & Kinney, A. Y. 2017. Content, usability, and utilization of plain launguage in breast cancer mobile phone apps: A systematic analysis. JMIR mHealth and uHealth 5(3)

  43. Baker. D. W. 2006. The meaning and the measure of health literacy. Journal of general internal Medicine 21(8):878–883

  44. Tirado, M. 2011. Role of mobile health in the care of culturally and linguistically diverse US populations. Perspect Health Inf Manag 8:7e

  45. Kim. H., Powell, M. P., & Bhuyan, S. S. 2017. Seeking medical information using mobile apps and the internet: Are family caregivers different from the general public? Journal of medical systems 41(3):38

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Soumitra S. Bhuyan.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Kim, H., Goldsmith, J.V., Sengupta, S. et al. Mobile Health Application and e-Health Literacy: Opportunities and Concerns for Cancer Patients and Caregivers. J Canc Educ 34, 3–8 (2019). https://doi.org/10.1007/s13187-017-1293-5

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s13187-017-1293-5

Keywords

Navigation