Abstract
To address a desire for timely, medically accurate cancer education in rural Alaska, ten culturally relevant online learning modules were developed with, and for, Alaska’s Community Health Aides/Practitioners (CHA/Ps). The project was guided by the framework of Community-Based Participatory Action Research, honored Indigenous Ways of Knowing, and was informed by Empowerment Theory. A total of 428 end-of-module evaluation surveys were completed by 89 unique Alaska CHA/Ps between January and December 2016. CHA/Ps shared that as a result of completing the modules, they were empowered to share cancer information with their patients, families, friends, and communities, as well as engage in cancer risk reduction behaviors such as eating healthier, getting cancer screenings, exercising more, and quitting tobacco. CHA/Ps also reported the modules were informative and respectful of their diverse cultures. These results from end-of-module evaluation surveys suggest that the collaboratively developed, culturally relevant, online cancer education modules have empowered CHA/Ps to reduce cancer risk and disseminate cancer information.
“brought me to tears couple of times, and I think it will help in destroying the silence that surrounds cancer”
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References
Carmack AM, Schade TL, Sallison I, Provost EM, and Kelly JJ. 2015. Cancer in Alaska Native people: 1969–2013, the 45 year report. Anchorage, Alaska: Alaska Native Tumor Registry, Alaska Native Epidemiology Center, Alaska Native Tribal Health Consortium
Kelly J, Schade T, Starkey M, Ashokkumar R, Lanier AP (2012) Cancer in Alaska Native people 1969–2008 40-year report. Alaska Native Tumor Registry, Alaska Native Epidemiology Center, Division of Community Health Services, Alaska Native Tribal Health Consortium, Anchorage
Alaska Native Epidemiology Center. 2015. Statewide data: adult tobacco use—current smoking. Accessed online December 1, 2016 from: http://anthctoday.org/epicenter/assets/data/statewide/AdultCurrentSmoking_statewide_12_30_2015.pdf
Centers for Disease Control and Prevention (CDC). 2015. Behavioral Risk Factor Surveillance System survey data. Atlanta, Georgia: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention. Accessed online July 27, 2016 from: http://www.cdc.gov/brfss/brfssprevalence/index.html
Alaska Native Epidemiology Center. 2016. Statewide: Alaska Native health status report. Accessed online August 15, 2016 from: http://anthctoday.org/epicenter/data/regions/statewide/index.html
Alaska Department of Health and Social Services, Division of Public Health. Health risks in Alaska among adults: Alaska Behavioral Risk Factor Survey 2009 Annual Report. Juneau: Alaska Department of Health and Social Services, Division of Public Health. Accessed online July 27, 2016 from: http://dhss.alaska.gov/dph/Chronic/Documents/brfss/pubs/BRFSS09_FullReport.pdf
Alaska Department of Health and Social Services, Division of Public Health. Health risks in Alaska among adults: Alaska Behavioral Risk Factor Survey 2008 Annual Report. Juneau: Alaska Department of Health and Social Services, Division of Public Health. Accessed online July 27, 2016 from: http://dhss.alaska.gov/dph/Chronic/Documents/brfss/2008/BRFSS08.pdf
Alaska Community Health Aide Program. About the Alaska CHAP Program. Accessed online July 27, 2016 from: http://www.akchap.org/html/about-chap.html
Cueva M, Kuhnley R, Cueva K (2012) Enhancing cancer education through the arts: building connections with Alaska Native people, cultures, and communities. International Journal of Lifelong Learning 31(3):341–357
Cueva M, Lanier AP, Kuhnley R, Dignan M (2008) Cancer education: a catalyst for dialogue and action. The IHS Primary Care Provider 33(1):1–5
Federal Communications Commission. 2016. 2016 Broadband progress report. Accessed online July 26, 2016 from: https://www.fcc.gov/reports-research/reports/broadband-progress-reports/2016-broadband-progress-report
Federal Communications Commission. 2015. Broadband availability in America. Accessed online July 27, 2016 from: https://apps.fcc.gov/edocs_public/attachmatch/DOC-331734A1.pdf
Wallerstein N, Minkler M, Carter-Edwards L, Avila M, Sanchez V (2015) Improving health through community engagement, community organization, and community building. In: Glanz K, Rimer BK, Viswanath K (eds) Health behavior: theory, research, and practice. Jossey-Bass, San Francisco, pp 277–300
Cueva M, Lanier A, Dignan M, Kuhnley R (2005) Cancer education for community health aides/practitioners in Alaska. Assessing comfort with cancer. J Cancer Educ 20(2):85–88
Cueva K, Revels L, Kuhnley R, Cueva M, Lanier A, Dignan M. 2015. J Canc Educ. Co-creating a culturally responsive distance education cancer course with, and for, Alaska’s community health workers: motivations from a survey of key stakeholders
Cajete G (1994) Look to the mountain: an ecology of indigenous education. Kivaki Press, Durango, CO
Wallerstein N, Bernstein E (1988) Empowerment education: Freire’s ideas adapted to health education. Health Educ Q 15(34):379–394
Prussing E (2014) Historical trauma: politics of a conceptual framework. Transcultural Psychiatry 51(3):436–458
Chavez V, Minkler M, Wallerstein N, Spencer M (2010) Community organizing for health and social justice. In: Cohen L, Chavez V, Chehimi S (eds) Prevention is primary: strategies for community well-being. Jossey-Bass, San Francisco, pp 87–112
Perkins DD, Zimmerman MA (1995) Empowerment theory, research, and application. Am J Community Psychol 23:569–579
Zimmerman MA (1995) Psychological empowerment: issues and illustrations. Am J Community Psychol 23:581–599
Frank E (2004) Physician health and patient care. Student JAMA 291(5):637
Israel BA, Schulz AJ, Parker EA, Becker AB, Allen A, Guzman JR (2003) Critical issues in developing and following community-based participatory research principles. In: Minkler M, Wallerstein N (eds) Community-based participatory research for health. Jossey-Bass, San Francisco, CA, pp 56–73
Montaño DE, Kasprzyk D (2015) Theory of reasoned action, theory of planned behavior, and the integrated behavioral model. In: Glanz K, Rimer BK, Viswanath K (eds) Health behavior: theory, research, and practice. Jossey-Bass, San Francisco, pp 277–300
Montaño DE, Taplin SH (1991) A test of an expanded theory of reasoned action to predict mammography participation. Soc Sci Med 32(6):733–741
Acknowledgements
This work is part of “Distance Education to Engage Alaskan Community Health Aides in Cancer Control,” supported by the National Cancer Institute of the National Institutes of Health (NIH), award R25CA186882. Data analysis, theoretical understandings, and manuscript preparation and submission were supported by NIH grant 3R25CA057711. The content of this manuscript is solely the responsibility of the authors and does not necessarily represent the views of the NIH. This research protocol was reviewed and approved by the Alaska Area Institutional Review Board, the Alaska Native Tribal Health Consortium Health Research Review Committee, and the Southcentral Foundation (SCF) Executive Committee and the SCF Board of Directors.
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Cueva, K., Revels, L., Cueva, M. et al. Culturally-Relevant Online Cancer Education Modules Empower Alaska’s Community Health Aides/Practitioners to Disseminate Cancer Information and Reduce Cancer Risk. J Canc Educ 33, 1102–1109 (2018). https://doi.org/10.1007/s13187-017-1217-4
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DOI: https://doi.org/10.1007/s13187-017-1217-4