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Investigating the Impact of Socioeconomic Status on the Effectiveness of a Pamphlet on Achieving and Maintaining Bone Health in Breast Cancer Survivors: a Patient Education Resource Development Primer

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Abstract

Considerable need exists to raise awareness of breast cancer (BC) treatment-induced bone loss and provide management and preventative strategies. We describe the development and evaluation process of an educational pamphlet for BC survivors on achieving and maintaining bone health. A Participatory Design approach was used. The pamphlet was first critically evaluated by interdisciplinary healthcare professionals and less vulnerable members of the target audience prior to evaluation by 45 BC survivors, who completed two questionnaires inquiring about demographics and pamphlet evaluation and satisfaction. Pamphlet effectiveness was correlated with income and education to determine differences between socioeconomic groups. Perceived knowledge increased significantly after reading the brochure for all groups. Socioeconomic status had no impact on pamphlet effectiveness. This methodological approach is presented as a blueprint to promote knowledge translation in cancer patient education contexts aiming to provide cancer patients with the best possible resources for effective self-management of their conditions.

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References

  1. Bjarnason N, Hitz M, Jorgensen N, Vestergaard P (2008) Adverse bone effects during pharmacological breast cancer therapy. Acta Oncol 47:747–754

    Article  PubMed  CAS  Google Scholar 

  2. Canadian Cancer Society/National Cancer Institute of Canada (2010) Canadian cancer statistics 2010. Breast cancer statistics. http://www.cancer.ca/Canada-wide/About%20cancer/Cancer%20statistics/Stats%20at%20a%20glance/Breast%20cancer.aspx?sc_lang=en. Accessed 23 June 2010.

  3. Canadian Institutes of Health Research. Knowledge translation at CIHR. www.cihr-irsc.gc.ca/-e/-35412.html. Accessed 3 July 2010.

  4. Graham I, Tetroe J (2009) Getting evidence into policy and practice: perspective of a health research funder. J Can Acad Child Adolesc Psychiatry 18:46–50

    PubMed  Google Scholar 

  5. Nikander R, Sievanen H, Ojala K, Oivanen T, Kellokumpu-Lehtinen P-L, Saarto T (2007) Effect of a vigorous aerobic regimen on physical performance in breast cancer patients—a randomized controlled pilot trial. Acta Oncol 46:181–186

    Article  PubMed  Google Scholar 

  6. Powe B, Daniels E, Finnie R, Thompson A (2005) Perceptions about breast cancer among African American women: do selected educational materials challenge them? Patient Educ Couns 56:197–204

    Article  PubMed  Google Scholar 

  7. Reid D, Doughty J, Eastell R, Heys S, Howell A, McCloskey E, Powles T, Selby P, Coleman R (2008) Guidance for the management of breast cancer treatment-induced bone loss: a consensus position statement from a UK Expert Group. Cancer Treat Rev 34:S1–S18

    Article  Google Scholar 

  8. Shuler D, Namioka A (1993) Participatory design: principles and practices. Lawrence Erlbaum Associates, Inc., Mahwah

    Google Scholar 

  9. Siminoff L, Graham G, Gordon N (2006) Cancer communication patterns and the influence of patient characteristics: disparities in information-giving and affective behaviors. Patient Educ Couns 62:355–360

    Article  PubMed  Google Scholar 

  10. Skeels M, Pratt W (2008) Participatory design with health consumers. AMIA Annu Symp Proc 6:1136

    Google Scholar 

  11. Straus S, Tetroe J, Graham I (2009) Defining knowledge translation. Can Med Assoc J 181:165–168

    Article  Google Scholar 

  12. Vink P, Imada A, Zink K (2008) Defining stakeholder involvement in participatory design processes. Appl Ergon 39:519–526

    Article  PubMed  CAS  Google Scholar 

Download references

Acknowledgements

We would like to thank the dedicated group of healthcare professionals and patient volunteers who contributed to the creation and evaluation of the healthy bones pamphlet. Thanks to the Princess Margaret Hospital Cancer Survivorship Program for its continued support, and the Determinants of Community Health course at the University of Toronto for making this research project possible.

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Correspondence to Tara Adirim.

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Adirim, T., Chafranskaia, A. & Nyhof-Young, J. Investigating the Impact of Socioeconomic Status on the Effectiveness of a Pamphlet on Achieving and Maintaining Bone Health in Breast Cancer Survivors: a Patient Education Resource Development Primer. J Canc Educ 27, 54–58 (2012). https://doi.org/10.1007/s13187-011-0255-6

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  • DOI: https://doi.org/10.1007/s13187-011-0255-6

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