Abstract
Considerable need exists to raise awareness of breast cancer (BC) treatment-induced bone loss and provide management and preventative strategies. We describe the development and evaluation process of an educational pamphlet for BC survivors on achieving and maintaining bone health. A Participatory Design approach was used. The pamphlet was first critically evaluated by interdisciplinary healthcare professionals and less vulnerable members of the target audience prior to evaluation by 45 BC survivors, who completed two questionnaires inquiring about demographics and pamphlet evaluation and satisfaction. Pamphlet effectiveness was correlated with income and education to determine differences between socioeconomic groups. Perceived knowledge increased significantly after reading the brochure for all groups. Socioeconomic status had no impact on pamphlet effectiveness. This methodological approach is presented as a blueprint to promote knowledge translation in cancer patient education contexts aiming to provide cancer patients with the best possible resources for effective self-management of their conditions.
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Acknowledgements
We would like to thank the dedicated group of healthcare professionals and patient volunteers who contributed to the creation and evaluation of the healthy bones pamphlet. Thanks to the Princess Margaret Hospital Cancer Survivorship Program for its continued support, and the Determinants of Community Health course at the University of Toronto for making this research project possible.
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Adirim, T., Chafranskaia, A. & Nyhof-Young, J. Investigating the Impact of Socioeconomic Status on the Effectiveness of a Pamphlet on Achieving and Maintaining Bone Health in Breast Cancer Survivors: a Patient Education Resource Development Primer. J Canc Educ 27, 54–58 (2012). https://doi.org/10.1007/s13187-011-0255-6
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DOI: https://doi.org/10.1007/s13187-011-0255-6