Abstract
Internet-based support groups for cancer patients have been studied extensively; very few have focused on gynecologic cancer. We pilot-tested a web-based support group for gynecologic cancer patients and assessed women’s perceptions of the intervention. Twenty-seven gynecologic cancer patients were randomized to an immediate intervention or a waitlist control group. Women participated in a 12-week, web-based support group focusing on sexuality-related topics. Semi-structured interviews were conducted to investigate the feasibility and efficacy of the intervention. Women reported benefits to participating in the intervention, including receiving support from group members and moderators, increased emotional well-being, improved feelings of body image and sexuality, and comfort in discussing sexuality online. Web-based support groups are both feasible and accepted by gynecologic cancer patients with psychosexual distress. The online format provided women with easy access to the support group and anonymity in discussing psychosexual concerns. Women with gynecologic cancer may benefit from participating in online support groups which provide an environment of relative anonymity to discuss psychosexual concerns.
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Acknowledgements
We would like to thank the National Cancer Institute of Canada and Princess Margaret Hospital for funding this study. We would like to thank our web writer, Colleen Young; our sexuality and cancer consultant, Leslie Schover; and web designer, John Herr. In addition, we would like to thank all of the participants who generously contributed their time and energy to making this project possible.
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Wiljer, D., Urowitz, S., Barbera, L. et al. A Qualitative Study of an Internet-Based Support Group for Women with Sexual Distress Due to Gynecologic Cancer. J Canc Educ 26, 451–458 (2011). https://doi.org/10.1007/s13187-011-0215-1
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DOI: https://doi.org/10.1007/s13187-011-0215-1