Abstract
In the past, many social barriers led to the perception that adolescents with physical handicaps do not have a vivid sexuality. This is the first systematic review aiming to answer how sexual knowledge is provided for adolescents with physical disabilities. Findings might be helpful to construe recommendations for sexual education of adolescents with physical handicaps. Literature search occurred by means of databases PUBMED, Web of Science and PSYCINFO. Papers are included that address sexual education and sexual knowledge of adolescents with physical handicaps, including papers dealing with sexuality of young people with chronic conditions that lead to (extensive) physical limitations. Nine papers could be identified. Subjects researched were between 11 and 25 years old. With the help of a self-administered quality assessment scheme we conducted a scoring with a high score of a maximum of 11 points. We divided three levels: highly informative papers, moderate informative papers and papers with only low information. Just one paper from the Netherlands is highly informative, four papers provide moderate information, and four contain only little information. The majority of physical handicapped adolescents get sexual education in school. Transfer of information is confined to the prevention of pregnancy, sexually transmitted diseases and harassment. Interdisciplinary sexual education appears as a key for self-determined and well informed sexual life for adolescents with and without handicaps. For people with handicaps there should be information available with respect to their physical limitation, additional to general facts.
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References
Potgieter, C.A., Khan, G.: Sexual self-esteem and body image of South African spinal cord injured adolescents. Sex. Disabil. 23, 1–20 (2005)
Berman, H., Harris, D., Enright, R., Gilpin, M., Cathers, T., Bukovy, G.: Sexuality and the adolescent with a physical disability: understandings and misunderstandings. Issues Compr. Pediatr. Nurs. 22, 183–196 (1999)
Cheng, M.M., Udry, J.R.: Sexual behaviors of physically disabled adolescents in the United States. J. Adolesc. Health 31, 48–58 (2002)
Börjeson, M.-C., Lagergren, J.: Life conditions of adolescents with myelomeninggocele. Dev. Med. Child. Neurol. 32, 698–706 (1990)
Dorner, S.: Adolescents with spina bifida—how they see their situation. Arch. Dis. Child. 51, 439–444 (1975)
Stevens, S.E., Steele, C.A., Jutai, J.W., Kalnins, I.V., Bortolussi, J.A., Biggar, W.D.: Adolescents with physical disabilities: some psychosocial aspects of health. J. Adolesc. Health 19, 157–164 (1996)
Alriksson-Schmidt, A.I., Armour, B.S., Thibadeau, J.K.: Are adolescent girls with a physical disability at increased risk for sexual violence? J. Sch. Health, 80, 361–337 (2010) [in process citation]
Wiegerink, D.J., Roebroeck, M.E., Donkervoort, M., Cohen-Kettenis, P.T., Stam, H.J.: Social, intimate and sexual relationships of adolescents with cerebral palsy compared with able-bodied age-mates. J. Rehabil. Med. 40, 112–118 (2008)
Choquet, M., Du Pasquier Fediaevsky, L., Manfredi, R.: Sexual behavior among adolscents reporting chronic conditions: a French National Survey. J. Adolesc. Health 20, 62–67 (1996)
Hayden, P., Davenport, S., Campell, M.: Adolescents with myelodysplasie: impact of physical disability upon emotional maturation. Pediatrics, 64, 53–59 (1979)
Murphy, N.: Sexuality in children and adolescents with disabilities. Dev. Med. Child Neurol. 47, 640–644 (2005)
Cromer, B., Enrile, B., McCoy, K., Gerhardstein, M.J., Fitzpatrick, M., Judis, J.: Knowledge, attitudes and behaviour related to sexuality in adolescents with chronic disability. Dev. Med. Child Neurol. 32, 602–610 (1990)
Blum, R., Resnick, M., Nelson, R., Germaine, A.: Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics (1991)
Verhoef, M., Barf, H., Vroege, J.A., Post, M., van Asbeck, F., Gooskens, R., Prevo, A.: Sex education, relationships, and sexuality in young adults with spina bifida. Arch. Phys. Med. Rehabil. 86, 979–986 (2005)
Jemta, L., Fugl-Meyer, K.S., Öberg, K.: On intimacy, sexual activities and exposure to sexual abuse among children and adolescents with mobility impairment. Acta Paediatr. 97, 641–646 (2008)
Maart, S., Jelsma, J.: The sexual behaviour of physically disabled adolescents. Disabil. Rehabil. 32, 438–443 (2010)
Tew, B., Laurence, K.M., Payne, H., Butters, A.: The sexual development of adolescent spina bifida children. Surg. Infancy Child. 37, 179–181 (1982)
Wiegerink, D.J., Roebroeck, M.E., Donkervoort, M., Stam, H.J., Cohen-Kettenis, P.T.: Social and sexual relationships of adolescents and young adults with cerebral palsy: a review. Clin. Rehabil. 20, 1023–1031 (2006)
Miauton, L., Narring, F., Michaud, P.A.: Chronic illness, life style and emotional health in adolescence: results of a cross-sectional survey on the health of 15–20-year-olds in Switzerland. Eur. J. Pediatr. 162, 682–689 (2003)
Wazakili, M., Mpofu, R., Devlieger, P.: Should issues of sexuality and HIV and AIDS be a rehabilitation concern? The voices of young South Africans with physical disabilities. Disabil. Rehabil. 31, 32–41 (2009)
Acknowledgments
This work is published in affiliation with the study “Youth Sexuality and Disability” (Grant: 971000-054) and the ensuing study “Sexual and reproductive health of young adults with disabilities in Saxony” (Grant: BGAAF-0586). Both studies are funded by means of the Federal Centre for Health Education in Germany.
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Seidel, A., Wienholz, S., Michel, M. et al. Sexual Knowledge Among Adolescents with Physical Handicaps: A Systematic Review. Sex Disabil 32, 429–441 (2014). https://doi.org/10.1007/s11195-013-9326-4
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DOI: https://doi.org/10.1007/s11195-013-9326-4