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Educational Interventions on Sexuality for Parents of Children and Adolescents with Intellectual Disabilities: An Integrative Review

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Abstract

The aim of this article was to identify educational interventions on sexuality for parents of children and adolescents with intellectual disabilities. This is an integrative literature review. In May, 2023, searches were carried out in 12 databases using the keywords: intellectual disability, sexuality, sexual communication, intervention, program, and parents and Boolean operators AND and OR. The thematic analysis of the nine articles found resulted in the theme: Sex education programs and their interventions, and three sub-themes: (a) conceptualization and design of the programs; (b) from taboo to confidence: increasing self-perception of competence to approach sex education; and (c) speaking the same language: how sex education can contribute to improving communication between parents and children with intellectual disabilities. The results showed that the interventions were effective in promoting positive changes in self-efficacy, contributed to increasing knowledge about sexuality, improved the quality and frequency of communication about sexuality in the family context, and addressed parents' beliefs and attitudes, considering their cultural and personal context with a view to promoting positive changes in these areas. The development of sex education strategies prepares parents and families for handling and safely guiding children and adolescents with intellectual disabilities. The interventions showed a positive impact on parents and their children. Future investigations combining quantitative and qualitative approaches to the evaluation of these sex education programs are necessary, in order to provide a broader and deeper view of the results achieved.

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References

  1. Senem, C.J., Caramaschi, S.: Concepção de sexo e sexualidade no ocidente: origem, história e atualidade. Barbarói 49, 166–189 (2017). https://doi.org/10.17058/barbaroi.v0i49.6420

    Article  Google Scholar 

  2. Peter, C.R., Tasker, T.B., Horn, S.S.: Parents’ attitudes toward comprehensive and inclusive sexuality education. Health Educ. 115(1), 71–92 (2015)

    Article  Google Scholar 

  3. André, T.G., Valdez-Montero, C., Márquez-Veja, M.A., Ahumada-Cortez, J.G., Gámez-Medina, M.E.: Communication on sexuality between parents and adolescents with autism spectrum disorder: a systematic review. Sex. Disabil. 38(2), 217–229 (2020)

    Article  Google Scholar 

  4. Clatos, K., Asare, M.: Sexuality education intervention for parents of children with disabilities: a pilot training program. Am. J. Health Stud. 31(3), 151–162 (2016)

    PubMed  PubMed Central  Google Scholar 

  5. Malerba, V. B.: Sexualidade no Transtorno de Espectro Autista: perspectivas do adolescente, de sua mãe e do seu Pai. Dissertação do Mestrado. Programa de Pós-Graduação em Psicologia, Faculdade de Filosofia, Ciências e Letras de Ribeirão Preto, Universidade de São Paulo. Ribeirão Preto (2020)

  6. De Tilio, R.: Transtornos do Espectro Autista e sexualidade: um relato de caso na perspectiva do cuidador. Psicología, Conocimiento y Sociedad 7(1), 36–58 (2017)

    Article  Google Scholar 

  7. Organização Mundial De Saúde: Children with disabilities more likely to experience violence, 2012 [cited 2022 November 15th]. Available from: https://www.who.int/mediacentre/news/notes/2012/child_disabilities_violence_20120712/es/

  8. Beddows, N., Brooks, R.: Inappropriate sexual behaviour in adolescents with autism spectrum disorder: what education is recommended and why. Early Interv. Psychiatry 10(4), 282–289 (2015)

    Article  PubMed  Google Scholar 

  9. Harader, D., Fullwood, H., Hawthorne, M.: Sexuality among adolescents with moderate disabilities: promoting positive sexual development. Prev. Res. 16(4), 17–20 (2009)

    Google Scholar 

  10. Earle, S.: Disability, facilitated sex and the role of the nurse. J. Adv. Nurs. 36(3), 433–440 (2001)

    Article  PubMed  Google Scholar 

  11. Whittemore, R., Knafl, K.: The integrative review: updated methodology. J. Adv. Nurs. 52(5), 546–553 (2005)

    Article  PubMed  Google Scholar 

  12. Riesenberg, L.A., Justice, E.M.: Conducting a successful systematic review of the literature, part 1. Nursing 44(4), 13–17 (2014)

    Article  PubMed  Google Scholar 

  13. Viera, A.J., Garrett, J.M.: Understanding interobserver agreement: the kappa statistic. Fam. Med. 37(5), 360–363 (2005)

    PubMed  Google Scholar 

  14. Joanna Briggs Institute (JBI): Critical appraisal tools [Internet]; 2020. Available from: https://jbi.global/critical-appraisal-tools

  15. Page, M.J., McKenzie, J.E., Bossuyt, P.M., Boutron, I., Hoffmann, T.C., Mulrow, C.D., et al.: The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ (2021). https://doi.org/10.1136/bmj.n71

    Article  PubMed  PubMed Central  Google Scholar 

  16. Corona, L.L., Fox, S.A., Christodulu, K.V., Worlock, J.A.: Providing education on sexuality and relationships to adolescents with autism spectrum disorder and their parents. Sex. Disabil. 34(2), 199–214 (2016)

    Article  Google Scholar 

  17. Pugliese, C.E., Ratto, A.B., Granader, Y., Dudley, K.M., Bowen, A., Baker, C., et al.: Feasibility and preliminary efficacy of a parent-mediated sexual education curriculum for youth with autism spectrum disorders. Autism 24(1), 64–79 (2020)

    Article  PubMed  Google Scholar 

  18. Rooks-Ellis, D.L., Jones, B., Sulinski, E., Howorth, S., Achey, N.: The effectiveness of a brief sexuality education intervention for parents of children with intellectual and developmental disabilities. Am. J. Sex. Educ. 12, 1–21 (2020)

    Google Scholar 

  19. Kok, G., Akyuz, A.: Evaluation of effectiveness of parent health education about the sexual developments of adolescents with intellectual disabilities. Sex. Disabil. 33(2), 157–174 (2015)

    Article  Google Scholar 

  20. Yıldız, G., Cavkaytar, A.: Effectiveness of a sexual education program for mothers of young adults with intellectual disabilities on mothers’ attitudes toward sexual education and the perception of social support. Sex. Disabil. 35(1), 3–19 (2017)

    Article  Google Scholar 

  21. Bárcena Gaona, S.X., Guevara Benítez, Y., Rodríguez Gutiérrez, M.V.: Programa de intervención para promover la comunicación sobre sexualidad en padres de hijos con discapacidad intelectual. Psicología y Salud. 30(2), 173–187 (2020)

    Article  Google Scholar 

  22. Goli, S., Noroozi, M., Salehi, M.: Comparing the effect of two educational interventions on mothers’ awareness, attitude, and self-efficacy regarding sexual health care of educable intellectually disabled adolescent girls: a cluster randomized control trial. Reprod. Health 18(54), 1–9 (2021). https://doi.org/10.1186/s12978-021-01112-z

    Article  Google Scholar 

  23. Garcia Torres, M., Magaña, S., Balcazar, F.: Brief report: evaluation of an adapted youth version of parents taking action for parents of pre/adolescents with autism spectrum disorder in Colombia. Autism (2023). https://doi.org/10.1177/13623613231155773

    Article  PubMed  Google Scholar 

  24. Manzone, L.A., Cuesta, J.L., Muñoz, I., Santamaría, R.M.: Sexualidad y afectividad en personas con trastorno del espectro autista: Perspectivas de familiares y profesionales. Revista de Ciencias Sociales 3, 376–389 (2022)

    Google Scholar 

  25. André, T.G., Caudillo-Ortega, L., Valdez-Montero, C., Díaz-Manchay, R., Nascimento, L.C.: Percepción de los padres acerca de la comunicación sobre sexualidad de sus hijos con trastorno del espectro autista. Index de Enfermería 31(4), 255–259 (2022). https://doi.org/10.58807/indexenferm20225212

    Article  Google Scholar 

  26. Arcoverde, A.C.B.: Metodologias Qualitativas de Pesquisa em Serviço Social. Recife: Ed. Universitária da UFPE (2013)

  27. Backes, M.S., Becker, A.P.S., Crepaldi, M.A., Vieira, M.L.: Paternity and factors associated with paternal involvement. Nova Perspectiva Sistêmica 27(61), 66–81 (2018)

    Article  Google Scholar 

  28. Dias, M.V.S., Marques, F.R.B., Oliveira, R.M.B., Bezerra, A.M., Andrade, S.M.O., Marcheti, M.A.: Relações pai-filho e o cuidado da criança com deficiência: olhar da equipe de saúde. Res. Soc. Dev. 10(16), e389101623647 (2021)

    Article  Google Scholar 

  29. Esper, M.V., Montigny, F., Polita, N.B., Alvarenga, W.A., Leite, A.C.A.B., Silva-Rodrigues, F.M., et al.: (Re)Establishment of fatherhood among fathers of children with mental disorders: a qualitative metasynthesis. J. Child Health Care 26(1), 110–122 (2021)

    Article  PubMed  Google Scholar 

  30. Flório, F.M., Zanin, L., Santos Junior, L.M., Meneghim, M.C., Ambrosano, G.M.B.: Tamanho do efeito em estudos observacionais na área de Saúde Bucal Coletiva: importância, cálculo e interpretação. Ciência Saúde Coletiva 28(2), 599–608 (2023)

    PubMed  Google Scholar 

  31. Hodges, B.C., Videto, D.M.: Assessment and Planning in Health Programs. Jones and Bartlett Learning, Sudbury, MA (2011)

    Google Scholar 

  32. Littig, P.M.C.B., Cardia, D.R., Reis, L.B., Ferrão, E.S.: Sexualidade na deficiência intelectual: uma análise das percepções de mães de adolescentes especiais. Rev. Bras. Educ. Espec. 18(3), 469–486 (2012)

    Article  Google Scholar 

  33. Carvalho, A.N.L., Silva, J.P.: Sexualidade das pessoas com deficiência: uma revisão sistemática. Arquivos Brasileiros de Psicologia 70(3), 289–304 (2018)

    Google Scholar 

  34. Castillo-Arcos, L.C., et al.: Autoeficacia de padres para hablar con sus hijos acerca de sexo. Ciencia UANL 18(73), 44–50 (2015)

    Google Scholar 

  35. Nichols, S., Blakeley-Smith, A.: “I’m not sure we’re ready for this …”: Working with families toward facilitating healthy sexuality for individuals with autism spectrum disorders. Soc. Work. Ment. Health 8(1), 72–91 (2010). https://doi.org/10.1080/15332980902932383

    Article  Google Scholar 

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All authors contributed to the study conception and design. Material preparation, data collection and analysis were performed by TGA, GCMK, SCQ, MDL. The first draft of the manuscript was written by NGB, MRMA, EEF, CVM, MDGL, LCN and all authors commented on previous versions of the manuscript. All authors read and approved the final manuscript.

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Correspondence to Tatiane Geralda André.

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André, T.G., Machado-Kayzuka, G.C., Quinava, S.C. et al. Educational Interventions on Sexuality for Parents of Children and Adolescents with Intellectual Disabilities: An Integrative Review. Sex Disabil (2024). https://doi.org/10.1007/s11195-023-09825-8

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