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Parental Overinvolvement: A Qualitative Study

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Abstract

This qualitative study examines the cognitive, emotional, and relational characteristics among biological, foster, or adoptive parents viewed as over-involved by 15 well-regarded professionals and 30 peer-nominated mental health clinicians (perceived as the “best available” professionals in the service of adults with developmental disabilities). Results suggest that over-involved parents (a) have tunnel vision in their outlook; (b) overemphasize the functional age of their adult child at the expense of the chronological age; (c) believe they need to be involved in every decision; (d) make decisions based on their own personal needs; (e) distrust providers; (f) have not processed their grief; (g) exhibit anger and frustration and are rarely satisfied; (h) exhibit poor communication skills; and (i) are inconsistent and demanding. The interview data also revealed cognitive, emotional, and relational characteristics among those viewed as healthy parents. As a result, healthy parents (a) express appreciation (b) encourage risk-taking; (c) place value on the adult son’s or daughter’s chronological age; (d) hold a realistic view of adult child’s goals; (e) accept mistakes; (f) are emotionally independent; (g) are guided by facts rather than emotions; (h) live balanced and satisfied lives; (i) possess strong communication skills; (j) demonstrate flexibility; and (k) believe in the importance of a good working alliance. Strategies for clinicians to educate parents and recommendations for future research are discussed.

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References

  • Baine, D., McDonald, L., Wilgosh, L., & Mellon, S. (1993). Stress experienced by families of older adolescents or young adults with severe disability. Australia and New Zealand Journal of Developmental Disabilities, 18(3), 177–188.

    Google Scholar 

  • Baumrind, D. (1971). Current patterns of parental authority. Developmental Psychology Monographs, 4(2, Pt. 2), 1–103.

    Article  Google Scholar 

  • Baylor, C., Yorkston, K., & Eadie, T. (2005). The consequences of spasmodic dysphonia on communication-related quality of life: A qualitative study of the insider’s experiences. Journal of Communication Disorders, 38, 395–419. doi:10.1016/j.jcomdis.2005.03.003.

    Article  PubMed  Google Scholar 

  • Bernard, H. R., & Ryan, G. W. (1998). Text analysis: Qualitative and quantitative methods. In H. R. Bernard (Ed.), Handbook of methods in cultural anthropology (pp. 595–646). Walnut Creek: AltaMira.

    Google Scholar 

  • Brown, G. W., Birley, J. L. T., & Wing, J. K. (1972). The influence of family life on the course of schizophrenic disorders: A replication. The British Journal of Psychology, 121, 241–258.

    Article  Google Scholar 

  • Buri, J. R. (1989). Self-esteem and appraisals of parental behavior. Journal of Adolescent Research, 4, 33–49. doi:10.1177/074355488941003.

    Article  Google Scholar 

  • Corter, C., Pepler, D., Stanhope, L., & Abramovitch, R. (1992). Home observations of mothers and sibling dyads comprised of Down’s syndrome and nonhandicapped children. Canadian Journal of Behavioural Science, 24, 1–13.

    Article  Google Scholar 

  • Fidler, D. J., Hodapp, R. M., & Dykens, E. M. (2000). Stress in families of young children with Down syndrome, Williams syndrome, and Smith–Magenis syndrome. Early Education and Development, 11, 395–406. doi:10.1207/s15566935eed1104_2.

    Article  Google Scholar 

  • Greenbaum, J. (2007). Life planning for adults with developmental disabilities: A guide for patents and family members. Oakland: New Harbinger.

    Google Scholar 

  • Greenberg, J. S., Seltzer, M. M., Hong, J., & Orsmond, G. I. (2006). Bidirectional effects of expressed emotion and behavior problems and symptoms in adolescents and adults with autism. American Journal on Mental Retardation, 111(4), 229–249. doi:10.1352/0895-8017(2006)111[229:BEOEEA]2.0.CO;2.

    Article  PubMed  Google Scholar 

  • Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal of Mental Retardation, 107, 116–127. doi:10.1352/0895-8017(2002)107<0116:PPIFOC>2.0.CO;2.

    Article  PubMed  Google Scholar 

  • Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., & Grauss, M. W. (2001). Children with disabilities: A longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66 (3, Serial No. 266). Oxford: Blackwell.

    Google Scholar 

  • Herman, S. E., Marcenko, M. O., & Hazel, K. L. (1996). Parents’ perspectives on quality in family support programs. Journal of Mental Health Administration, 23(2), 156–169.

    Article  PubMed  Google Scholar 

  • Hoshmand, L. L. S. T. (1989). Alternative research paradigms: A review and teaching proposal. The Counseling Psychologist, 17, 3–79. doi:10.1177/0011000089171001.

    Article  Google Scholar 

  • Kasari, C., & Sigman, M. (1997). Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders, 27(1), 39–57.

    Article  PubMed  Google Scholar 

  • Kazdin, A. E. (2005). Parent management training: Treatment for oppositional, aggressive, and antisocial behavior in children and adolescents. New York: Oxford University Press.

    Google Scholar 

  • Lyst, A., Gabriel, S., O’Shaughnessy, T., Meyers, J., & Meyers, B. (2005). Social validity: Perceptions of check and connect with early literacy support. Journal of School Psychology, 43, 197–218. doi:10.1016/j.jsp.2005.04.004.

    Article  Google Scholar 

  • Marcenko, M. O., & Meyers, J. C. (1991). Mothers of children with developmental disabilities: Who shares the burden? Family Relations: Interdisciplinary Journal of Applied Family Studies, 40, 186–190.

    Google Scholar 

  • Marshall, C., & Rossman, G. B. (1999). Designing qualitative research (3rd ed.). Thousand Oaks: Sage.

    Google Scholar 

  • Maxwell, J. A. (1996). Qualitative research design: An interactive approach. Thousand Oaks: Sage.

    Google Scholar 

  • McLeod, B. D., Weisz, J. R., & Wood, J. J. (2007). Examining the association between parenting and childhood depression: A meta-analysis. Clinical Psychology Review, 27, 986–1003.

    Article  PubMed  Google Scholar 

  • McLeod, B. D., Wood, J. J., & Weisz, J. R. (2006). Examining the associations between parenting and childhood anxiety: A meta-analysis. Clinical Psychology Review, 27, 155–172.

    Article  PubMed  Google Scholar 

  • Patton, M. Q. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park: Sage.

    Google Scholar 

  • Perry, A., Sarlo-McGarvey, N., & Factor, D. C. (1992). Stress and family functioning in parents of girls with Rett syndrome. Journal of Autism and Developmental Disorders, 22, 235–248.

    Article  PubMed  Google Scholar 

  • Poehlmann, J., Clements, M., Abbeduto, L., & Farsad, V. (2005). Family experiences associated with a child’s diagnosis of Fragile X or Down syndrome: Evidence for disruption and resilience. Mental Retardation, 43, 255–267.

    Article  PubMed  Google Scholar 

  • Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: psychological functioning of mothers. Journal of Clinical Child Psychology, 19(4), 371–379.

    Google Scholar 

  • Rohner, R. P. (1986). The warmth dimension: Foundations of parental acceptance–rejection theory. Newbury Park: Sage [Reprinted by Rohner Research Publishers].

    Google Scholar 

  • Rohner, R. P. (2001). Introduction to parental acceptance–rejection theory. [on-line] vm.uconn.edu/~rohner.

  • Rohner, R. P., & Rohner, E. C. (1980). Worldwide tests of parental acceptance–rejection theory [Special issue]. Behavior Science Research, 15(1), 1–88 [Now available from Rohner Research Publishers].

    Google Scholar 

  • Rohner, R., & Veneziano, R. (2001). History and contemporary research on father love. Review of General Psychology, 5, 382–405.

    Article  Google Scholar 

  • Schwartz, C. (2005). Parental involvement in residential care and perceptions of their offspring’s life satisfaction in residential facilities for adults with intellectual disability. Journal of Intellectual & Developmental Disability, 30(3), 146–155.

    Article  Google Scholar 

  • Schwartz, C., & Gidron, R. (2002). Parents of mentally ill adult children living at home: Rewards of caregiving. Health & Social Work, 27, 145–155.

    Google Scholar 

  • Schwartz, C., & Hadar, L. (2007). Parents caring for adult children with physical disabilities: The impact of hope and closeness on caregiving benefits. Families in Society, 88, 273–282.

    Google Scholar 

  • Seltzer, M. M., & Heller, T. (1997). Families and caregiving across the life course: Research advances on the influence of context. Family Relations, 46, 321–323.

    Google Scholar 

  • Singer, G. H., Ethridge, B. L., & Aldana, S. I. (2007). Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: A meta-analysis. Mental Retardation and Developmental Disabilities Research Reviews, 13, 4.

    Article  Google Scholar 

  • Smith, T. B., Oliver, M. N. I., & Innocenti, M. S. (2001). Parenting stress in families of children with disabilities. American Journal of Orthopsychiatry, 71, 257–261.

    Article  PubMed  Google Scholar 

  • VanRiper, M. (2000). Family variables associated with well-being in siblings of children with Down syndrome. Journal of Family Nursing, 6, 267–286.

    Article  Google Scholar 

  • Van Riper, M. & Selder, F. (1989). Parental responses to the birth of a child with Down syndrome. Loss, Grief and Care: A Journal of Professional Practice, 3, 59–75.

    Google Scholar 

  • Vaughn, C., & Leff, J. (1976). The measurement of expressed emotion in the families of psychiatric patients. British Journal of Psychology, 15, 157–165.

    Google Scholar 

  • Veneziano, R. A. (2003). The importance of paternal warmth. Cross-Cultural Research, 37(3), 265–281.

    Article  Google Scholar 

  • Weisman, A. G., Nuechlerlein, K. H., Goldstein, M. J., & Snyder, K. S. (1998). Expressed emotion, attributions, and schizophrenia symptom dimensions. Journal of Abnormal Psychology, 107, 355–359.

    Article  PubMed  Google Scholar 

  • Wendel, J. S., Miklowitz, D. J., Richards, J. A., & George, E. L. (2000). Expressed emotion and attributions in the relatives of bipolar patients: An analysis of problem-solving interactions. Journal of Abnormal Psychology, 109, 792–796.

    Article  PubMed  Google Scholar 

Download references

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Correspondence to Daniel J. van Ingen.

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Daniel van Ingen coordinates the PTSD clinic at the John D. Dingell VA Medical Center in Detroit, Michigan and is the clinical research director for Chrestomathy Center for the Treatment and Study of DD and SPMI. Linda Moore is executive director of Chrestomathy, Inc. and the Center for the Treatment and Study of DD and SPMI. Joe Fuemmeler is Program Director for Chrestomathy Center, a day program in Minneapolis, Minnesota. Preliminary aspects of the data contained in this manuscript were presented at the 114th Annual Convention of the American Psychological Association on August 11th, 2006 in New Orleans, LA, USA.

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van Ingen, D.J., Moore, L.L. & Fuemmeler, J.A. Parental Overinvolvement: A Qualitative Study. J Dev Phys Disabil 20, 449–465 (2008). https://doi.org/10.1007/s10882-008-9113-9

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  • DOI: https://doi.org/10.1007/s10882-008-9113-9

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