semenvatting
This paper reviews psychological aspects of respiratory disorders, in particular asthma and COPD (chronic obstructive pulmonary disease). It discusses definition, epidemiology, risk factors and medical management of both disorders, in the context of psychological and social factors. Psychosocial consequences of asthma are described, as is the psychological management of patients with this respiratory disorder. On the basis of Cochrane reviews, a cautious optimism seems warranted: incorporating self-management training into medical care leads to positives outcomes for patients with asthma.
Psychosocial aspects of COPD are described as well. Regarding psychological management, research on this topic is discussed, both in the setting of pulmonary rehabilitation context as in a setting where the intervention is examined for its effects by itself. It is concluded that self-management training, preferably in combination with medical care, leads to positive outcomes for COPD-patients.
Suggestions for future research pertain to performing studies with stronger designs, longer follow-up periods, and to expanding research into areas such as patients with cystic fibrosis, lung cancer, sarcoidosis, and tuberculosis.
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De auteurs zijn werkzaam bij de sectie Medische Psychologie LUMC, respectievelijk als hoogleraar, aio en ud.
Correspondentieadres Prof. dr. A.A. Kaptein, $2, Postbus 9555, 2300 RB Leiden.
E-mailadres: a.a.kaptein@lumc.nl
DankwoordDe eerste auteur dankt de Stichting Onderzoek Psychosociale Stress (SOPS) voor de instelling van zijn bijzondere leerstoel Psychosociale aspecten van chronische aandoeningen van de luchtwegen. Het schrijven van dit artikel werd mede mogelijk gemaakt door subsidies van het Astma Fonds (AF projectnummers 78.22, 83.22, 85.07, 88.54, 90.37, 92.31, 98.15, 03.80 en 06.007). Drs. J.W. Schoones, bibliothecaris Walaeus bibliotheek LUMC, adviseerde bij de definiëring van de zoekstrategie voor de bijlage.
Bijlage 1. Dissertaties sociaal-wetenschappelijk onderzoek bij astma en COPD in Nederland en Vlaams-België
Bijlage 1. Dissertaties sociaal-wetenschappelijk onderzoek bij astma en COPD in Nederland en Vlaams-België
Auteur (jaar) | Universiteit | Titel | Aard interventie? | Gegeven door: |
|---|---|---|---|---|
2007 | ||||
Mw. J.M. Foster | Groningen | Development and validation of the Inhaled Corticosteroid Questionnaire | ||
Mw. Q.M. van Dellen | Amsterdam | Asthma care in children from different ethnic origins | ||
Mw. V. Lemaigre | Leuven | Asthma and self-management | Groepseducatie: psycho-educatie, cognitieve herstructurering, self-monitoring + 1 individuele sessie met focus op gekozen onderwerp (keuze uit: emoties, fysieke conditie, therapietrouw, stressreductie, assertiviteit) | Psycholoog |
2006 | ||||
Mw. L. Christenhusz | Twente | Nieuwe RookStopTherapie voor rokers met COPD | Minimale Interventie Strategie (MIS) (= individuele counseling, telefonisch contact, Zyban optioneel) versus RookStopTherapie (= MIS + groepscounseling, Zyban standaard, “recycling” bij terugval) | ? |
Mw. K. H. Orbon | Nijmegen | Determinants of future work disability in asthma and COPD | X | |
Mw. M.P. de Vries | Maastricht | Asthma control in general practice: the effect of self-management and allergen avoidance | Training in afstemmen medicatiegebruik op klachten | Huisarts, gespecialiseerde onderzoeks-verpleegkundige |
2005 | ||||
Mw. B.C.T. Flapper | Groningen | Assessment of quality of life in children with asthma and developmental coordination disorder: consequences for paediatric practice | X | |
Mw. A.J. Janse | Utrecht | Quality of life of chronically ill children. Perception of patients, parents and physicians | X | |
Dhr. S. de Peuter | Leuven | Symptom perception in asthma: the role of psychological processes | X | |
Dhr. E.J. Wagena | Maastricht | Cigarette smoking, COPD and psychological problems: the use of antidepressants for smoking cessation in patients with COPD | X | |
Mw. B.W.M. Willemse | Groningen | Smoking cessation in chronic obstructive pulmonary disease | Cognitief gedragsmatige aanpak, terugvalpreventie, versterken motivatie | Gespecialiseerde verpleegkundige |
2004 | ||||
Mw. R. Arnold | Groningen | Quality of life in chronic obstructive pulmonary disease and chronic heart failure : disease-specific and generic factors in adaptation to illness | X | |
Mw. C.R.L. Boot | Nijmegen | Sick leave in asthma and COPD: the role of the disease, adaptation, work, psychosocial factors and knowledge | X | |
2003 | ||||
Mw. A.E. Hesselink | Amsterdam VU | Educating asthma and COPD patients in general practice | Individuele educatie gericht op inhalatietechniek, coping | Praktijkassistent van de huisarts |
Mw. E. M. Monninkhof Dhr. P.D.L.P.M. van der Valk | Nijmegen | Medical and behavioural interventions in COPD. The COPE study | Groepseducatie gericht op self-management (coping, actieplan t.a.v. exacerbaties, fitness motivatie, voeding, communicatie & sociale relaties) | Gespecialiseerde verpleegkundige |
2002 | ||||
Mw. M. Scharloo | Leiden | Illness perceptions, coping and functional status in chronic patients | X | |
Dhr. B.P.A. Thoonen | Nijmegen | Self-management of asthma in general practice | Individuele educatie gericht op vaardigheden m.b.t. inhalatie & piekstroommeter, informatie over mechanismen & oorzaken, symptoom-perceptie, medicatiedosering | Huisarts |
Mw. H.A.H. Wijnhoven | Amsterdam VU | Disease severity and control in asthma and COPD patients | X | |
2001 | ||||
Mw. J.G. van Manen | Amsterdam UvA | Health-related quality of life and comorbidity in COPD patients in general practice | X | |
Mw. C. Put | Leuven | Symptom perception in asthma: medicine meets psychology | X | |
2000 | ||||
Mw. I.D. Bijl-Hofland | Nijmegen | Perception of asthma symptoms: the influence of medication | X | |
Mw. A. R. Maillé | Amsterdam UvA | Quality of life in asthma and COPD: development of a disease-specific questionnaire | X | |
Mw. I. Röder | Leiden | Stress in children with asthma: coping and social support in the school context | X | |
1999 | ||||
Mw. S.M. van Es | Amsterdam VU | Adherence to asthma medication in adolescents | Groepsinterventie gericht op therapietrouw t.a.v. medicatie | Gespecialiseerde verpleegkundige |
Mw. J. Bruil | Leiden | Development of a quality of life questionnaire for children with a chronic illness | X | |
1998 | ||||
Mw. E.M. le Coq | Amsterdam VU | Children with asthma: relevance of early recognition, quality of life measurement | X | |
Mw. A.S. van Peski-Oosterbaan | Leiden | Panic in asthma and non-cardiac chest pain: implications for cognitive behavioural therapy | X | |
1996 | ||||
Dhr. T.A.M. Deenen | Groningen | Patient health-education and self-management: a medical-psychological intervention study on severe asthma and COPD in a high altitude clinic | Multidisciplinaire groepseducatie. Psycho-sociale sessies gericht op: negatieve emoties, acceptatie, sociale vaardigheden, cognitieve herstructurering | o.a. Klinisch psycholoog |
Mw. C.A.J. Ketelaars | Maastricht | Aftercare and specialised community nursing : implications for patients with chronic obstructive pulmonary disease | Individuele educatie, adviezen | Gespecialiseerde versus niet-gespecialiseerde verpleegkundige |
Dhr. S. Rietveld | Amsterdam UvA | Symptom perception and breathlessness in children with asthma | X | |
Dhr. T.A.W. van der Schoot | Maastricht | Kwaliteit van leven van Cara-patiënten in het Nederlands Astmacentrum Davos: beloop en determinanten | X | |
1995 | ||||
Mw. A.H.S. van den Broek | Leiden | Patient education and chronic obstructive pulmonary disease | Multidisciplinaire groepseducatie. Cognitief gedragsmatige aanpak, gericht op self-management (kennis over ziekte, medicatie, voeding, fysiotherapie, energie, sociaal functioneren, stressreductie) | Longarts, diëtist, fysio- en ergotherapeut, maatschappelijk werker, gezondheids-psycholoog |
Dhr. P.J. Wijkstra | Groningen | Home rehabilitation in patients with chronic obstructive pulmonary disease : the short-term and long-term effects | Supervisie (1 x per maand) bij thuisrevalidatie. Individuele educatie over ziekte, behandeling, medicatiegebruik, coping | Verpleegkundige |
1994 | ||||
Mw. A.M. Meijer | Amsterdam UvA | Gezinsinvloeden bij astma: over factoren, die een beheersbaar van een niet beheersbaar astma onderscheiden | X | |
1993 | ||||
Mw. E.H. Collette | Amsterdam VU | Astmapatiënten in eerste en tweede lijn. Overeenkomsten en verschillen | X | |
Dhr. F.W. Dekker | Leiden | Asthma and COPD in general practice: studies on the quality of care | X | |
Mw. E.P.E. Mesters | Maastricht | Infants with asthma: towards a multidisciplinary education protocol for primary care | Protocol voor huisartsen om betere astma- controle te stimuleren bij ouders van kinderen met astma m.b.v. educatiemodules (kennis over ziekte, self-management) | Huisarts, gespecialiseerde verpleegkundige |
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Kaptein, A.A., Fischer, M.J. & Scharloo, M. Respiratoire aandoeningen en medische psychologie. PSEG 35, 123–136 (2007). https://doi.org/10.1007/BF03071778
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DOI: https://doi.org/10.1007/BF03071778