Abstract
Engaging disadvantaged communities in health disparities research is recognized as a paradigm shift in increasing the real-world relevance of epidemiological research. Community-based participatory research (CBPR) approach, in particular, has shown great promise in ameliorating behavioral health disparities in the subpopulations who are faced with elevated risks of violence, including child maltreatment, intimate partner violence, and elder abuse. Empirical evidence consistently supported the need for integrating community perspectives in understanding the persistent age, gender, racial, and socio-demographic and economic characteristics of health disparities in violence. However, few CBPR researchers have embarked on the epidemics of the abuse toward older adults, an equally alarming human rights violation. Elder abuse, also referred to as elder mistreatment, affects vulnerable older adults of all backgrounds. With particular attention to elder abuse, this chapter aims to critically review the theoretical and pragmatic rationales of engaging minority communities in health disparities research. We highlight the contribution of CBPR approach in better understanding the epidemiology of elder abuse including prevalence, risk, and protective factors, as well as intervention and prevention strategies, all of which are critically embedded in the social, cultural, and environmental contexts in which elder abuse arises. We summarize researchers’ lessons learned and challenges faced in adopting CBPR principles into the practice of elder abuse research from working with racial and ethnic minority older adults. Moreover, this chapter discusses the significant policy and practice implications in transforming the culture of unilateral academic into collaborative research partnerships with diverse communities. We believe that reflective mutual-learning, or cultural humility, remains the key component in sustaining the impact of research in bringing about social change and health equity.
If a person merely learns without reflection, he will learn in vein.
If a person merely thinks but does not reflect, he will face trouble.
Confucius, The Analects of Confucius, 475-221 BC
References
LaVeist T. Minority populations and health: an introduction to health disparities in the U.S. San Francisco: Wiley; 2005.
WHO. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the Commission on Social Determinants of Health. Geneva; 2008.
Statistics Canada. Canadian demographics at a glance. Ottawa, Canada; 2008.
Cherlin A. Demographic trends in the United States: a review of research in the 2000s. J Marriage Fam. 2010;72:403–19.
Bureau USC. Table 12 Projections of the population by age and sex for the United States: 2010–2050. 2008. Report No.: NP2008-T12.
Colby S, Ortman J. Projections of the size and composition of the U.S. population: 2014 to 2060. Current Population Report. Washington, DC; 2014.
AoA. A profile of older Americans: 2014. Washington, DC; 2014.
Carter-Pokras O, Baquet C. What is a “health disparity”? Public Health Rep. 2002;117:426–34.
Yancey A, Ortega A, Kumanyika S. Effective recruitment and retention of minority research participants. Ann Rev Public Health. 2006;27:1–28.
Io Medicine. Unequal treatment: confronting racial and ethnic disparities in health care. Washington, DC: Institute of Medicine; 2002.
Chin M, Walters A, Cook S, Huang E. Interventions to reduce racial and ethnic disparities in health care. Med Care Res Rev. 2007;64:7S–28S.
Betancourt J, Green A, Carillo J, Ananen-firempong O. Defining cultural competence: a practical framework for addressing racial/ethnic disparities. Public Health Rep. 2003;118:293–302.
Giger J, Davidhizar R, Purnell L, Harden J, Phillips J, Strickland O. American academy of nursing expert panel report. J Transcult Nurse. 2007;18:95–102.
U.S. Department of Health and Human Services SAaMHSA. The Secretary’s Advisory Committee on National Health Promotion and Disease Prevention Objectives for 2020. Phase I report: recommendations for the framework and format of Healthy People 2020. Washington, DC; 2010.
Witham MD, McMurdo ME. How to get older people included in clinical studies. Drugs Aging. 2007;24:187–96.
Townsley CA, Selby R, Siu LL. Systematic review of barriers to the recruitment of older patients with cancer onto clinical trials. J Clin Oncol. 2005;23:3112–24.
Centers for Disease Control and Prevention, Administration on Aging, Agency for Healthcare Research and Quality, and Centers for Medicare and Medicaid Services. Enhancing use of clinical preventive services among older adults. Washington, DC: AARP; 2011.
Bureau USC. Table 4 Projections of the population by sex, race, and hispanic origin for the United States: 2010–2015. 2008. Report No.: NP2008-T4.
Jones C. Levels of racism: a theoretic framework and a gardner’s tale. Am J Public Health. 2000;90:1212–5.
Glymour M, Avendano M, Kawachi I. Socioeconomic status and health. In: Berkman LF, Kawachi I, Glymour MM, editors. Social epidemiology. Oxford: University Press; 2015. p. 17–62.
Britton A, McKee M, Black M, McPherson K, Sanderson C, Bain C. Threats to applicability of randomised trials: exclusions and selective participation. J Health Serv Res Policy. 1999;4:112–21.
Pasick R. Socioeconomic and cultural factors in the development and use of theory. In: Glanz K, Rimer BK, Viswanath K, editors. Health behavior and health education—theory, research and practice. San Francisco: Josse-Bass Inc; 2008.
Kagawa Singer M. Applying the concept of culture to reduce health disparities through health behavior research. Prev Med. 2012;55:356–61.
Resnicow K, Braranowski T, Ahluwalia J, Braithwaite R. Cultural sensitivity in public health: defined and demystified. Ethn Dis. 1999;9:10–21.
Kagawa-Singer M, Dressler WW, George S, Elwood WN. The cultural framework for health. Washington, DC: National Institutes of Health; 2015.
NIH Policy and guidelines on the inclusion of women and minorities as subjects in clinical research—Amended, Oct, 2001. Retrieved from https://grants.nih.gov/grants/funding/women_min/guidelines_amended_10_2001.htm.
Administration FaD. U.S. Department of Health and Human Services Food and Drug Administration. Guidance for industry—collection of race and ethnicity data in clinical trials. Sep, 2005. Retrieved from http://www.fda.gov/downloads/RegulatoryInformation/Guidances/ucm126396.pdf.
Wendler D, Kington R, Madans J, et al. Are racial and ethnic minorities less willing to participate in health research? PLoS Med. 2009;3:e19.
Brown D, Topcu M. Willingnes to participate in clinical treatment research among older African Americans and Whites. Gerontologist. 2003;43:62–72.
Wallington S, Luto G, Noone A, et al. Assessing the awareness of and willingness to participate in cancer clinical trials among immigrant Latinos. J Community Health. 2012;37:335–43.
George S, Duran N, Norris K. A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans and Pacific Islanders. Am J Public Health. 2014;104:e16–31.
Herrara A, Snipes S, King D, Torres-Vigil I, Goldberg D, Weinberg A. Disparate inclusion of older adults in clinical trials: priorities and opportunities for policy and practice change. Am J Public Health. 2010;100:S105–12.
Fuentes D, Aranda MP. Depression interventions among racial and ethnic minority older adults: a systematic review across 20 years. Am J Geriatr Psychiatry. 2012;20:915–31.
Ballard E, Gwyther L, Edmonds H. Challenges and opportunities: recruitment and retention of African Americans for Alzheimer’s disease research: lessons learned. Alzheimer Dis Assoc Disord. 2010;24:S19–23.
Heiat A, Gross C, Krumholz H. Representation of the elderly, women, and minorities in heart failure clinical trials. JAMA Intern Med. 2002;162:1682–8.
Elley C, Robertson M, Kerse N, et al. Falls assessment clinical trial (FACT):design, interventions, recruitment strategies and participant characteristics. BMC Public Health. 2007;29:185.
Woodall A, Morgan C, Sloan C, Howard L. Barriers to participate in mental health research: are there specific gender, ethnicity, and age related barriers? BMC Psychiatry. 2010;10:1–10.
Kwiatkowski K, Coe K, Bailar J, Swanson G. Inclusion of minorities and women in cancer clinical trials, a decade later: have we improved. Cancer. 2013;119:2956–63.
Boehmer U. Twenty years of public health research: including of lesbian, gay, bisexual and transgender populations. Am J Public Health. 2002;92:1125–30.
Shavers VL, Lynch CF, Burmeister LF. Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies. J Natl Med Assoc. 2000;92:563–72.
McCallum J, Arekere D, Green B, Katz R, Rivers B. Awareness and knowledge of the U.S. Public Health Service syphilis study at Tuskegee: implications for biomedical research. J Health Care Poor Underserved. 2006;17:716–33.
Earl C, Penny P. The significance of trust in the research consent process with African Americans. West J Nurs Res. 2001;23:753–62.
Scharff D, Mathews K, Jackson P, Hoffsuemmer J, Martin E, Edwards D. More than Tuskegee: understanding mistrust about research participation. J Health Care Poor Underserved. 2010;21:879–97.
Gamble V. A legacy of distrust: African Americans and medical research. J Prev Med. 1993;9:35–8.
Corbie-Smith G, Thomas S, George D. Distrust, race and research. Arch Intern Med. 2002;162:2458–63.
Washington H. Medical Apartheid: the dark history of the medical experimentation on Black Americans from colonial times to the present. New York: Random House Digital Inc; 2006.
Heitman E, Wells AL. Ethical issues and unethical conduct: race, racism and the abuse of human subjects in research. In: Beech BM, editor. Race & research: perspectives on minority participation in health studies. Washington, DC: American Public Health Association; 2004.
Lawrence J. The Indian Health Service and the sterilization of native American women. Am Indian Q. 2000;24:400–19.
Carpio M. The lost generation: American Indian and sterilized abuse. Soc Justice. 2004;31:50.
Murthy VH, Krumholz HM, Gross CP. Participation in cancer clinical trials: race-, sex-, and age-based disparities. JAMA. 2004;291:2720–6.
Yi SS, Kwon SC, Sacks R, Trinh-Shevrin C. Commentary: persistence and health-related consequences of the model minority stereotype for Asian Americans. Ethn Dis. 2016;26:133–8.
Shoff C, Yang TC. Untangling the associations among distrust, race, and neighborhood social environment: a social disorganization perspective. Soc Sci Med. 1982;2012(74):1342–52.
Harris LM. Academic/community-based collaboration: benefits academic institutions, senior centers and elders. Gerontol. 2012;52:127.
Jacobs EA, Rolle I, Ferrans CE, Whitaker EE, Warnecke RB. Understanding African Americans’ views of the trustworthiness of physicians. J Gen Intern Med. 2006;21:642–7.
Durant R, Legedza A, Marcantonio E, Freeman M, Landon B. Different types of distrust in clinical research among Whites and African Americans. J Natl Med Assoc. 2011;103:123–30.
Armstrong K, Rose A, Peters N, Long JA, McMurphy S, Shea JA. Distrust of the health care system and self-reported health in the United States. J Gen Intern Med. 2006;21:292–7.
Corrigan PW. Mental health stigma as social attribution: implications for research methods and attitude change. Clin Psychol Sci Pract. 2000;7:48–67.
Gary FA. Stigma: barrier to mental health care among ethnic minorities. Issues Ment Health Nurs. 2005;26:979–99.
Cargill VA, Stone VE. HIV/AIDS: a minority health issue. Med Clin N Am. 2005;89:895–912.
Ofstedal MB, Weir DR. Recruitment and retention of minority participants in the health and retirement study. Gerontol. 2011;51(Suppl 1):S8–20.
Epstein S. The rise of ‘recruitmentology’: clinical research, racial knowledge, and the politics of inclusion and difference. Soc Stud Sci. 2008;38:801–32.
Minkler M, Wallerstein N. Community-based participatory research for health. San Francisco: Jossey Bass; 2003.
Cornwall A, Jewkes R. What is participatory research? Soc Sci Med. 1982;1995(41):1667–76.
Wallerstein N, Duran B. Using community-based participatory research to address health disparities. Health Promot Pract. 2006;7:312–23.
Leung M, Yen I, Minkler M. Community based participatory research: a promising approach for increasing epidemiology’s relevance in the 21st century. Int J Epidemiol. 2004;33:499–506.
Green L, Mercer S. Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities? Am J Public Health. 2001;91:1926–9.
Lewin K. Action research and minority problems. J Soc Issues. 1946;2:34–46.
Freire P. Pedagogy of the oppressed. New York: Seabury Press; 1970.
Maguire P. Participatory research: a feminist approach. Amherst: Center for International Education; 1987.
Duran E, Duran B. Native American postcolonial psychology. Albany, NY: State University of New York Press; 1995.
McTaggart R. Sixteen tenets of participatory action research. In: Wadsworth Y, editor. Everyday evaluation on the run. Sydney: Allen & Unwin; 1997. p. 79.
Israel BA, Schulz AJ, Paker EA, Becker AM. Review of community based research: assessing partnership approaches to improve public health. Annu Rev Public Health. 1998;19:173–202.
Knight EK. Shifting public health practice to advance health equity: recommendations from experts and community leaders. J Public Health Manag Pract. 2014;20:188–96.
Martinez IL, Carter-Pokras O, Brown PB. Addressing the challenges of Latino health research: participatory approaches in an emergent urban community. J Natl Med Assoc. 2009;101:908–14.
Minkler M. Community-based research partnerships: challenges and opportunities. J Urban Health. 2005;82:ii3–12.
Salimi Y, Shahandeh K, Malekafzali H, et al. Is community-based participatory research (CBPR) useful? A systematic review on papers in a decade. Int J Prev Med. 2012;3:386–93.
Diaz AEK, Johnson CRS, Arcury TA. Variation in the interpretation of scientific integrity in community-based participatory health research. Soc Sci Med. 1982;2013(97):134–42.
Flicker S, Travers R, Guta A, McDonald S, Meagher A. Ethical dilemmas in community-based participatory research: recommendations for institutional review boards. J Urban Health. 2007;84:478–93.
Resnik DB, Kennedy CE. Balancing scientific and community interests in community-based participatory research. Account Res. 2010;17:198–210.
Ashing-Giwa KT. Can a culturally responsive model for research design bring us closer to addressing participation disparities? Lessons learned from cancer survivorship studies. Ethn Dis. 2005;15:130–7.
Deloria Y. God is red: a native view of religion. Golden: North American Press; 1992.
Chau T, Islam N, Tandon D, Ho-Asjoe H, Rey M. Using community-based participatory research as a guiding framework for health disparities research centers. Prog Community Health Partnersh. 2007;1:195–205.
Dong X, Chang E, Wong E, Simon M. Working with culture: lessons learned from a community-engaged project in a Chinese aging population. Aging Health. 2011;7:529–37.
Dahlberg LL, Mercy JA. History of violence as a public health issue. AMA Virtual Mentor. 2009;11(2):167–72.
Krug EG, Mercy JA, Dahlberg LL, Zwi AB. The world report on violence and health. Lancet. 2002;360:1083–8.
Krug EG, Dahlberg LL, Mercy JA, Zwi AB, Lozano R. World report on violence and health. Geneva: World Health Organization. 2002.
Dahlberg LL, Krug EG. Violence: a global public health problem. In: Krug E, Dahlberg LL, Mercy JA, Zwi AB, Lozano R, editors. World Report on Violence and Health. Geneva, Switzerland: World Health Organization. 2002:1–56.
Lee YS, Hadeed L. Intimate partner violence among Asian immigrant communities: health/mental health consequences, help-seeking behaviors, and service utilization. Trauma Violence Abuse. 2009;10:143–70.
Bent-Goodley TB. Health disparities and violence against women: why and how cultural and societal influences matter. Trauma Violence Abuse. 2007;8:90–104.
Ferrari AM. The impact of culture upon child rearing practices and definitions of maltreatment. Child Abuse Negl. 2002;26:793–813.
Gonzalez-Guarda RM, Cummings AM, Becerra M, Fernandez MC, Mesa I. Needs and preferences for the prevention of intimate partner violence among Hispanics: a community’s perspective. J Prim Prev. 2013;34:221–35.
Nicolaidis C, Perez M, Mejia A, et al. “Guardarse las cosas adentro” (keeping things inside): Latina violence survivors’ perceptions of depression. J Gen Intern Med. 2011;26:1131–7.
Poleshuck E, Mazzotta C, Resch K, et al. Development of an innovative treatment paradigm for intimate partner violence victims with depression and pain using community-based participatory research. J Interpers Violence. 2016. Published online before print 12 Feb, 2016. doi:10.1177/0886260516628810.
Gewirtz A. Promoting children’s mental health in family supportive housing: a community-university partnership for formerly homeless children and families. J Prim Prev. 2007;28:359–74.
Leff S, Thomas D, Vaughn N, Thomas N, MacEvoy J. Using community-based participatory research to develop the PARTNERS youth violence prevention program. Prog Community Health Partnersh. 2010;4:207–16.
Merves M, Rodgers C, Silver E, Sclafane J, Bauman L. Engaging and sustaining adolescents in community-based participatory research: structuring a youth-friendly CBPR environment. Fam Community Health. 2015;38:22–32.
Sullivan M, Bhuyan R, Senturia K, Shiu-Thornton S, Ciske S. Participatory action research in practice: a case study in addressing domestic violence in nine cultural communities. J Interpers Violence. 2005;20:977–95.
White J, Yuan N, Cook S, Abbey A. Ethnic minority women’s experiences with intimate partner violence: using community-based participatory research to ask the right questions. Sex Roles. 2013;69:226–36.
Harvey A, Garcia-Moreno, C, Butchart, A. Primary prevention of intimate-partner violence and sexual violence: background paper for WHO expert meeting, May 2–3, 2007.
Watts C, Zimmerman C. Violence against women: global scope and magnitude. Lancet. 2002;359:1232–7.
Shea B, Nahwegahbow A, Anderson N. Reduction of family violence in aboriginal communities: a systematic review of interventions and approaches. Pimatisiwin. 2010;8:35–60.
Carreon D, Noymer A. Health-related quality of life in older adults: testing the double jeopardy hypothesis. J Aging Stud. 2011;25:371–9.
Hill C, Perez-Stable E, Anderson N, Bernard M. The national institute on aging health disparities research framework. Ethn Dis. 2015;25:245–54.
Dong X, Chang E, Wong E, Wong B, Skarupski KA, Simon MA. Assessing the health needs of Chinese older adults: findings from a community-based participatory research study in Chicago’s Chinatown. J Aging Res. 2010;2010, Article ID 124246:12 pages http://dx.doi.org/10.4061/2010/124246.
Horowitz C, Robinson M, Seifer S. Community-based participatory research from the margin to the mainstream. Circulation. 2009;119:2633–42.
Yen I, Michael Y, Perdue L. Neighborhood enviroment in studies of health of older adults. Am J Prev Med. 2010;37:455–63.
Campbell M, Hudson M, Resnicow K, Blakeney N, Paxton A, Baskin M. Church-based health promotion interventions: evidence and lessons learned. Annu Rev Public Health. 2006;26:213–34.
National Academies of Sciences. Elder abuse: abuse, neglect, and exploitation in an aging America. Washington DC: National Academy Press; 2003.
World Health Organization. Facts: abuse of the elderly. 2002.
Acierno R, Hernandez M, Amstadter A, Resnick HS, Steve K, Muzzy W. Prevalence and correlates of emotional, physical, sexual, and financial abuse and potential neglect in the United States: the National Elder Mistreatment Study. Am J Public Health. 2010;100:292–7.
Burnett JP, Jackson SLP, Sinha AKM, et al. Five-year all-cause mortality rates across five categories of substantiated elder abuse occurring in the community. J Elder Abuse Negl. 2016;28(2):1–17.
Dong X, Simon M. Association between elder abuse and metabolic syndromes: findings from the Chicago health and aging project. Gerontology. 2015;61:389–98.
Dong X, Simon M, Mendes de Leon C, et al. Elder self-neglect and abuse and mortality risk in a community-dwelling population. J Am Med Assoc. 2009;302:517–26.
Dong X, Simon M. Elder abuse as a risk factor for hospitalization in older persons. JAMA Intern Med. 2013;173:911–7.
Lachs MS, Williams CS, O’Brien S, Pillemer KA. Adult protective service use and nursing home placement. Gerontol. 2002;42:734–9.
Institute of Medicine. Elder abuse and its prevention—workshop summary. Washington, DC; 2013.
Daly JM, Merchant MI, Jogerst G. Elder abuse research: a systematic review. J Elder Abuse Negl. 2011;23:348–65.
Ploeg J, Fear J, Hutchison B, MacMillan H, Bolan G. A systematic review of interventions for elder abuse. J Elder Abuse Negl. 2009;21:187–210.
Brownell P, Heiser D. Psycho-educational support groups for older women victims of family mistreatment. J Gerontol Soc Work. 2006;46:145–60.
Brownell P, Berman J, Salamone A. Mental health and criminal justice issues among perpetrators of elder abuse. J Elder Abuse Negl. 1999;11:81–94.
Dong X, Simon MA. Enhancing national policy and programs to address elder abuse. J Am Med Assoc. 2011;305:2460–1.
Miranda J, Bernal G, Lau A, Kohn L, Hwang W, LaFromboise T. State of the science on psychosocial interventions for ethnic minorities. Annu Rev Clin Psychol. 2005;1:113–42.
Barnes L, Mendes de Leon C, Wilson R, Bienias J, Bennett D, Evans D. Racial differences in perceived discrimination in a community population of older blacks and whites. J Aging Health. 2004;16:315–7.
Shinagawa L. A portrait of Chinese Americans. Maryland: Asian American Studies Program at the University of Maryland. 2008.
Mui AC, Shibusawa T. Asian American elders in the twenty-first century. New York: Columbia University Press; 2008.
Aroian KJ, Wu B, Tran TV. Health care and social service use among Chinese immigrant elders. Res Nurs Health. 2005;28:95–105.
Dong X, Chang E, Zeng P, Simon M. Suicide in the global chinese aging population: a review of risk and protective factors, consequences, and interventions. Aging Dis. 2015;6:121–30.
Simon Chang E, Zeng P, Dong X. Prevalence of suicidal ideation, attempts, and completed suicide rate in Chinese aging populations: a systematic review. Arch Gerontol Geriatr. 2013;57:250–6.
Dong X, Chang E. Lost in translation: to our Chinese patient, Alzheimer’s meant ‘crazy and catatonic’. Health affairs (Project Hope). 2014;33:712–5.
Dong X, Chang ES, Wong E, Simon M. Perception and negative effect of loneliness in a Chicago Chinese population of older adults. Arch Gerontol Geriatr. 2012;54:151–9.
Dong X, Chang ES, Wong E, Simon M. The perceptions, social determinants, and negative health outcomes associated with depressive symptoms among U.S. Chinese older adults. Gerontol. 2012;52:650–63.
Moreno-John G, Gachi A, Fleming C, Napoles-Springer A, Mutran E. Ethnic minority older adults participating in clinical research: developing trust. J Aging Health. 2004;16:123.
Suh EE, Kagan S, Strumpf N. Cultural competence in qualitative interview methods with Asian immigrants. J Transcult Nurs. 2009;20:194–201.
Dong X, Chang E, Wong E, Wong B, Simon M. How do U.S. Chinese older adults view elder mistreatment? Findings from a community-based participatory research study. J Aging Health. 2011;23:289–312.
Dong X, Chang E, Wong E, Simon M. Perceived effectiveness of elder abuse interventions in psychological distress and the design of culturally adapted interventions: a qualitative study in the chinese community in chicago. J Aging Res. 2013;2013:845425.
Harada N, Takeshita J, Ahmed I, et al. Does cultural assimilation influence prevalence and presentation of depressive symptoms in older Japanese American men? The Honolulu-Asia aging study. Am J Geriatr Psychiatry. 2012;20:337–45.
Stewart R, Masaki K, Xue QL, et al. A 32-year prospective study of change in body weight and incident dementia: the Honolulu-Asia Aging Study. Arch Neurol. 2005;62:55–60.
Bild DE, Bluemke DA, Burke GL, et al. Multi-ethnic study of atherosclerosis: objectives and design. Am J Epidemiol. 2002;156:871–81.
Bild DE, Detrano R, Peterson D, et al. Ethnic differences in coronary calcification—the multi-ethnic study of atherosclerosis (MESA). Circulation 2005;111(10):1313–20.
Alegria M, Takeuchi D, Canino G, et al. Considering context, place, and culture: the National Latino and Asian American Study. Int J Methods Psychiatr Res. 2004;13:208–20.
Dong X, Wong E, Simon MA. Study design and implementation of the PINE study. J Aging Health. 2014;26:1085–99.
Simon MA, Chang ES, Rajan KB, Welch MJ, Dong X. Demographic characteristics of U.S. Chinese older adults in the Greater Chicago area: assessing the representativeness of the PINE study. J Aging Health. 2014;26:1100–15.
Dong X. Do the definitions of elder mistreatment subtypes matter? Findings from the PINE Study. J Gerontol Ser A Biol Sci Med Sci. 2014;69(Suppl 2):S68–75.
Dong X, Chen R, Simon MA. Elder mistreatment in U.S. community-dwelling Chinese older women. Violence Against Women. 2016;22(9):1097–112.
Dong X, Chen R, Fulmer T, Simon MA. Prevalence and correlates of elder mistreatment in a community-dwelling population of U.S. Chinese older adults. J Aging Health. 2014;26:1209–24.
Chang E, Dong X. Understanding elder abuse in the Chinese community: the role of cultural, social, and community factors. In: Prevention FoGV, editor. Elder abuse and its prevention. Washington DC: Institute of Medicine; 2014.
Wolff M, Maurana CA. Building effective community-academic partnerships to improve health: a qualitative study of perspectives from communities. Acad Med. 2001;76:166–72.
Dong X, Chang E, Wong E, Simon M. Sustaining community-university partnerships: lessons learned from a participatory research project with elderly Chinese. Gatew Int J Community Res Engagem. 2011;4:31–47.
Holkup PA, Tripp-Reimer T, Salois EM, Weinert C. Community-based participatory research—an approach to intervention research with a Native American community. Adv Nurs Sci. 2004;27:162–75.
Sapra K, Jubinski S, Tanaka M, Gershon R. Family and partner interpersonal violence among American Indians/Alaska Natives. Inj Epidemiol. 2014:1–7.
Dong X, Wong E, Simon M. Study design and implementation of the PINE study. J Aging Health. 2014;26(7):1085–99.
Roberto K, Brossoie N, McPherson M. Violence against rural older women: promoting community awareness and action. Australas J Ageing. 2013;32:2–7.
Brossoie N, Roberto K. Community professionals’ response to intimate partner violence against rural older women. J Elder Abuse Negl. 2015;27:470–88.
Cook-Daniels L. Lesbian, gay male, bisexual and transgendered elders: elder abuse and neglect issues. J Elder Abuse Negl. 2008;9:35–49.
Moon A, Williams O. Perceptions of elder abuse and help-seeking patterns among African–American, Caucasian American, and Korean–American elderly women. Gerontol. 1993;33:386–95.
Baker-Demaray TB. Perceptions of elder abuse among native american seniors. 2009.
Fulmer T, Guadagno L, Bitondo Dyer C, Connolly M. Progress in elder abuse screening and assessment instruments. J Am Geriatr Soc. 2004;52:297–304.
Interpersonal violence in the African–American Community. Springer; 2006.
Kobetz E, Menard J, Diem J, Barton B, Blanco J, Pierre L, Auguste PD, Etienne M, Brewster C. Community-based participatory research in little Haiti: challenges and lessons learned. Prog Community Health Partnersh Res Educ Action. 2009;3:133–7.
Dong XC, Chang ES, Wong E, Simon M. Perceived barriers and facilitators to implement elder abuse intervention for victims and perpetrators: views from US Chinese older adults. J Adult Prot. 2014;16:307–21.
Kreuter MW, McClure SM. The role of culture in health communication. Annu Rev Public Health. 2004;25:439–55.
Fisher TL, Burnet DL, Huang ES, Chin MH, Cagney KA. Cultural leverage: interventions using culture to narrow racial disparities in health care. Med Care Res Rev. 2007;64:243S–83S.
Holkup PA, Salois EM, Tripp-Reimer T, Weinert C. Drawing on wisdom from the past: an elder abuse intervention with tribal communities. Gerontol. 2007;47:248–54.
Dong X. Advancing the field of elder abuse: future directions and policy implications. J Am Geriatr Soc. 2012;60:2151–6.
Alexander JA, Weiner BJ, Metzger ME, et al. Sustainability of collaborative capacity in community health partnerships. Med Care Res Rev. 2003;60:130S–60S.
Bryant E. Sustaining comprehensive community initiatives: key elements for success. Washington DC; 2002.
Paine-Andrews A, Fisher JL, Campuzano MK, Fawcett SB, Berkeley-Patton J. Promoting sustainability of community health initiatives: an empirical case study. Health Promot Pract. 2000;1(3):248–258.
Kreuter MW, Lezin NA, Young LA. Evaluation community-based collaborative mechanisms: implications for practioners. Health Promot Pract. 2000;1:49–63.
Westfall JM, Mold J, Fagnan L. Practice-based research—“Blue highways” on the NIH roadmap. J Am Med Assoc. 2007;297:24–31.
Davis S, Nolan M. Nurturing research partnerships with older people and their carers: learning from experience. Qual Ageing. 2003;4:2–23.
Simon MA, Chang ES, Dong X. Partnership, reflection and patient focus: advancing cultural competency training relevance. Med Educ. 2010;44:540–2.
Chang E, Simon M, Dong X. Integrating cultural humility into health care professional education and training. Adv Health Sci Educ Theory Pract. 2012;17:269–78.
Brody H, Hunt L. Moving beyond cultural stereotypes in end-of-life decision making. Am Fam Physician. 2005;71:429.
Austerlic S. Cultural humility and compassionate presence at the end of life. http://www.scu.edu/ethics/practicing/focusareas/medical/culturally-competent-care/chronic-to-critical-austerlic.html. Santa Clara University; 2009.
Hinrichsen GA, Kietzman KG, Alkema GE, et al. Influencing public policy to improve the lives of older Americans. Gerontol. 2010.
Dong X. Cultural diversity and elder abuse: implication for research, education, and policy. Gener J Am Soc Aging. Generations, Number 3/Fall 2012;36:40–2.
Dong X. Elder abuse: systematic review and implications for practice. J Am Geriatr Soc. 2015;63:1214–38.
Global health and aging. National Institute on Aging National Institutes of Health NIH Publication no.11-7737. 2011.
Burston GR. Letter: Granny-battering. Br Med J 1975;3:592.
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Chang, ES., Dong, X. (2017). Role of the Community and Community-Based Participatory Research in Elder Abuse. In: Dong, X. (eds) Elder Abuse. Springer, Cham. https://doi.org/10.1007/978-3-319-47504-2_26
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DOI: https://doi.org/10.1007/978-3-319-47504-2_26
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