Abstract
Personal health records (PHR) are online systems that include collections of patients’ healthcare and medical data, which enable patients to share, organize and manage these data according to their own views. National Health Service (NHS) policy suggests that increasing usage of electronic PHR by patients will result in cost savings and improved public health, especially for people with long-term conditions. This study is part of a larger research project, the ePHRma study.
A prominent question that is the aim of this paper was raised by healthcare providers from the ePHRma study was what are the participants’ PHR preferences?
This study conducted 42 interviews and surveys with adults with heart disease, asthma and diabetes in order to answer the research questions. The people with diabetes cohort has 17 participants, the heart disease cohort has 13 and the asthma cohort has 12 participants. Most of the people with diabetes were using the Freestyle Libre, followed by MyFitnessPal. In total 14 unique PHRs were used by the 17 participants. Most of the people with heart disease were using the Fitbit, followed by Medisafe. In total 8 unique PHRs were used by the 13 participants. Most of the people with asthma were using the Fitbit, followed by Samsung Health. In total 16 PHRs were used by the 12 participants, with 10 of them being unique. The study was given REC/HRA favourable ethical opinion.
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Andrikopoulou, E., Scott, P. (2022). What Personal Health Records are People with Long-Term Conditions Using?. In: Stephanidis, C., Antona, M., Ntoa, S. (eds) HCI International 2022 Posters. HCII 2022. Communications in Computer and Information Science, vol 1580. Springer, Cham. https://doi.org/10.1007/978-3-031-06417-3_1
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