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Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi Syndrome

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Management of Prader-Willi Syndrome

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Abstract

In special education, the term “transition” refers to the change from the school years to life after school (and becoming a young adult). Although this period can be difficult for anyone, adolescents with disabilities and their families face additional challenges, including making sense of the adult disability service system and securing necessary supports. In this chapter, we discuss the transition to adulthood for young people with Prader-Willi syndrome (PWS). We first describe the transition process as it applies to all youth with disabilities, focusing both on the context in which transition occurs and the domains in which transition takes place. Next, we focus on transition issues specific to Prader-Willi syndrome, including behavioral and physiological issues related to the syndrome. Finally, we provide recommendations for a more successful transition process for adolescents and young adults with Prader-Willi syndrome.

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Author information

Authors and Affiliations

  1. California State University, Long Beach, CA, USA

    Kelli A. Sanderson

  2. Family Research Program, Vanderbilt Kennedy Center, Nashville, TN, USA

    Robert M. Hodapp

  3. Special Education, Peabody College, Nashville, TN, USA

    Robert M. Hodapp

  4. Vanderbilt Brain Institute, Nashville, TN, USA

    Elisabeth Dykens & Elizabeth Roof

Authors
  1. Kelli A. Sanderson
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  2. Robert M. Hodapp
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  3. Elisabeth Dykens
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  4. Elizabeth Roof
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Corresponding author

Correspondence to Kelli A. Sanderson .

Editor information

Editors and Affiliations

  1. Departments of Psychiatry & Behavioral Sciences and Pediatrics, University of Kansas Medical Center, Kansas City, KS, USA

    Merlin G. Butler

  2. Department of Pediatrics, University of Texas Medical Branch, Galveston, TX, USA

    Phillip D. K. Lee

  3. Department of Pediatrics, Saint Louis University, St. Louis, MO, USA

    Barbara Y. Whitman

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Sanderson, K.A., Hodapp, R.M., Dykens, E., Roof, E. (2022). Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi Syndrome. In: Butler, M.G., Lee, P.D.K., Whitman, B.Y. (eds) Management of Prader-Willi Syndrome. Springer, Cham. https://doi.org/10.1007/978-3-030-98171-6_14

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  • DOI: https://doi.org/10.1007/978-3-030-98171-6_14

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  • Online ISBN: 978-3-030-98171-6

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