Skip to main content

Down Syndrome: Economic Burdens and Benefits of Prevention

  • Chapter
Aneuploidy

Part of the book series: Basic Life Sciences ((BLSC,volume 36))

Abstract

Not too many years ago, the principal methods of preventing aneuploidy were harsh and by no means certain. Persons with aneuploidy could be sterilized or confined in institutions. Other high-risk persons could be counseled not to have children. In some cases, lifesaving medical care was withheld from newborn handicapped children. In recent years, however, with the development of the amniocentesis procedure to detect aneuploidy and other genetic defects, prevention has become both relatively certain and financially inexpensive, raising obvious economic issues of how much to invest in preventing aneuploidy.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

eBook
USD 16.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Ashbaugh, J., and M.A. Allard (1984) Longitudinal Study of the Court- ordered Deinstitutionalization ot Pennhurst Residents—Comparative Analysis ot the Costs of Residential Day and Other Programs Within Institutional and Community Settings, Human Services Research Institute, Boston.

    Google Scholar 

  2. Bellamy, T., and J. Buckley (1985) National Survey of Day and Vocational Programs, A 1984 Profile (in prep.).

    Google Scholar 

  3. Bruininks, R.H., F.A. Hauber, B.K. Hill, K.C. Lakin, L. Rutegard, and C. White. Memorandum to Jean K. Elder, Administration on Developmental Disabilities, Department of Health and Human Services, October 3, 1985.

    Google Scholar 

  4. Conley, Ronald W. (1973) The Economics of Mental Retardation, Johns Hopkins University Press, Baltimore.

    Google Scholar 

  5. Dittmar, N.D., G.P. Smith, J.C. Bell, C.B.C. Jones, and D.L. Manzanares (1983) Board and Care for Elderly and Mentally Disabled Populations: A Survey of Seven States, University of Denver, Denver Research Institute, Denver.

    Google Scholar 

  6. Hagard, S., and F.A. Carter (1976) Preventing the birth of infants with Down’s Syndrome: A cost-benefit analysis. Brit. Med. Journal 1: 753–756.

    Article  CAS  Google Scholar 

  7. Hauber, F.A., R.H. Bruininks, B.K. Hill, K.C. Lakin, and C.C. Shite (1984) National Census of Residential Facilities: Fiscal Year 1982, University of Minnesota, Department of Educational Psychology, Minneapolis.

    Google Scholar 

  8. Hook, E.B. (1979) Genetic counseling and prenatal cytogenetic services: Policy implications and detailed cost-benefit analyses of programs for the prevention of Down’s syndrome. In Services and Education in Medical Genetics, I.H. Porter and E.B. Hook, eds. Academic Press, New York, pp. 29–54.

    Google Scholar 

  9. Hook, E.B. (1983) Contribution of chromosome abnormalities to human morbidity and mortality and some comments upon surveillance of chromosome mutation rates. Mut. Res. 114: 389–423.

    CAS  Google Scholar 

  10. Kakalik, J.S., W.S. Furry, M.A. Thomas, and M.F. Carney (1981) The Cost of Special Education, Rand Corporation, Santa Monica, California.

    Google Scholar 

  11. Nagi, S. (1979) The concept and measurement of disability. In Disability Policies and Government Programs, Edward D. Berkowitz, ed. Praeger Publishers, New York, pp. 1–15.

    Google Scholar 

  12. New York State Office of Mental Retardation and Developmental Disabilities (1983) Report of the Committee on Aging and Developmental Disabilities, Albany, New York.

    Google Scholar 

  13. Smith, G.F. (1979) Down’s Anomaly, 2nd Edition. Churchill Limited, London.

    Google Scholar 

  14. Statistical Abstract of the United States, 1984.

    Google Scholar 

  15. U.S. Department of Commerce, Bureau of the Census. Estimates of the Population of the United States, by Age, Sex, and Race: 1980 to 1983, No. 949, p. 25.

    Google Scholar 

  16. U.S. Department of Commerce, Bureau of the Census (1983) Money Income and Poverty Status of Families and Persons in the United States.

    Google Scholar 

  17. U.S. Department of Health and Human Services, Public Health Service, National Center for Health Statistics (1979) Vital Statistics of the United States. Vol II — Morbidity, Part A, Section 6, p. 15.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 1985 Plenum Press, New York

About this chapter

Cite this chapter

Conley, R.W. (1985). Down Syndrome: Economic Burdens and Benefits of Prevention. In: Dellarco, V.L., et al. Aneuploidy. Basic Life Sciences, vol 36. Springer, Boston, MA. https://doi.org/10.1007/978-1-4613-2127-9_3

Download citation

  • DOI: https://doi.org/10.1007/978-1-4613-2127-9_3

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-1-4612-9257-9

  • Online ISBN: 978-1-4613-2127-9

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics