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Juvenile Rheumatoid Arthritis

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Behavioral Approaches to Chronic Disease in Adolescence

Juvenile rheumatoid arthritis (JRA) is the most common type of childhood and adolescent chronic arthritis and a major cause of short- and long-term disability among the pediatric age group with chronic pediatric diseases (Cassidy & Petty, 2005) The term juvenile rheumatoid arthritis is used here because the criteria for this diagnosis (Cassidy et al., 1986) were the inclusion criteria for almost all of the studies cited (see Table 1).

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References

  • Anthony, K. K., & Schanberg, L. E. (2003). Pain in children with arthritis: A review of the current literature. Arthritis Care and Research, 49, 272–279.

    Article  PubMed  Google Scholar 

  • April, K. T., Feldman, D. E., Platt, R. W., & Duffy, C. M. (2006). Comparison between children with juvenile idiopathic arthritis and their parents concerning perceived treatment adherence. Arthritis Care and Research, 55, 558–563.

    Article  PubMed  Google Scholar 

  • Barlow, J. H., Shaw, K. L., & Wright, C. C. (2000). Development and preliminary validation of a self-efficacy measure for use among parents of children with juvenile idiopathic arthritis. Arthritis Care and Research, 13, 227–236.

    Article  PubMed  Google Scholar 

  • Barlow, J. H., Shaw, K. L., & Wright, C. C. (2001). Development and preliminary validation of a children’s arthritis self-efficacy scale. Arthritis Care and Research, 45, 159–166.

    Article  PubMed  Google Scholar 

  • Benestad, B., Vinje, O., Veierød, M. B., & Vandvik, I. H. (1996). Quantitative and qualitative assessments of pain in children with juvenile chronic arthritis based on the Norwegian version of the Pediatric Pain Questionnaire. Scandinavian Journal of Rheumatology, 25, 293–299.

    Article  PubMed  Google Scholar 

  • Brace, M. J., Smith, M. S., McCauley, E., & Sherry, D. D. (2000). Family reinforcement of illness behavior: A comparison of adolescents with chronic fatigue syndrome, juvenile arthritis, and healthy controls. Journal of Developmental and Behavioral Pediatrics, 21, 332–339.

    Article  PubMed  Google Scholar 

  • Brewer, E. J., Giannini, E. H., Kuzmina, N., & Alekseev, L. (1986). Penicillamine and hydroxychloroquine in the treatment of severe juvenile rheumatoid arthritis. The New England Journal of Medicine, 314, 1269–1276.

    Article  PubMed  Google Scholar 

  • Cassidy, J., Levinson, J., Bass, J., Baum, J., Brewer, E. J., Jr., Fink, C. W., et al. (1986). A study of classification criteria for a diagnosis of juvenile rheumatoid arthritis. Arthritis & Rheumatism, 29, 274–281.

    Article  Google Scholar 

  • Cassidy, J. T., & Petty, R. E. (2005). Textbook of pediatric rheumatology (5th ed.). Philadelphia: Saunders.

    Google Scholar 

  • Daniels, D., Miller, J. J., Billings, A. G., & Moos, R. H. (1986). Psychosocial functioning of siblings of children with rheumatic disease. Journal of Pediatrics, 109, 379–383.

    Article  PubMed  Google Scholar 

  • Daniels, D., Moos, R. H., Billings, A. G., & Miller, J. J. (1987). Psychosocial risk and resistance factors among children with chronic illness, healthy siblings, and healthy controls. Journal of Abnormal Child Psychology, 15, 295–308.

    Article  PubMed  Google Scholar 

  • Degatardi, P. J., Revenson, T. A., & Ilowite, N. T. (1999). Family-level coping in juvenile rheumatoidarthritis: Assessing the utility of a quantitative family interview. Arthritis Care and Research, 12, 314–324.

    Article  Google Scholar 

  • Dougadoes, M., van der Linden, S., Juhlin, R., et al. (1991). The European Spondyloarthropathy Study Group preliminary classification criteria for the classification of spondyloarthopathy. Arthritis & Rheumatism, 34, 1218–1227.

    Article  Google Scholar 

  • Dhanani, S., Quenneville, J., Perron, M., Abdolell, M., & Feldman, B. M. (2002). Minimal difference in pain associated with change in quality of life in children with rheumatic disease. Arthritis Care and Research, 47, 501–505.

    Article  PubMed  Google Scholar 

  • Feldman, D. E., De Civita, M., Dobkin, P. L., Malleson, P., Meshefedjian, G., & Duffy, C. (2007). Perceived adherence to prescribed treatment in juvenile idiopathic arthritis over a one-year period. Arthritis Care and Research, 57, 226–233.

    Article  PubMed  Google Scholar 

  • Fowler, M. G., Johnson, M. P., & Atkinson, S. S. (1985). School achievement and absence in children with chronic health conditions. Journal of Pediatrics, 106, 683–687.

    Article  PubMed  Google Scholar 

  • Giannini, E. H., Brewer, E. J., Miller, M. L., Gibbas, D., Passo, M. H., Hoyeraal, H. M., et al. (1990). Ibuprofen suspension in the treatment of juvenile rheumatoid arthritis. Journal of Pediatrics, 117, 645–652.

    Article  PubMed  Google Scholar 

  • Gragg, R. A., Rapoff, M. A., Danovsky, M. B., Lindsley, C. B., Varni, J. W., Waldron, S. A., et al. (1996). Assessing chronic musculoskeletal pain associated with rheumatic disease: Further validation of the pediatric pain questionnaire. Journal of Pediatric Psychology, 21, 237–250.

    Article  PubMed  Google Scholar 

  • Hagglund, K. J., Schopp, L. M., Alberts, K. R., Cassidy, J. T., & Frank, R. G. (1995). Predicting pain among children with juvenile rheumatoid arthritis. Arthritis Care and Research, 8, 36–42.

    Article  PubMed  Google Scholar 

  • Hayford, J. R., & Ross, C. K. (1988). Medical compliance in juvenile rheumatoid arthritis: Problems and perspectives. Arthritis Care and Research, 1, 190–197.

    Article  Google Scholar 

  • Helgeson, V. S., Janicki, D., Lerner, J., & Barbarin, O. (2003). Brief report: Adjustment to juvenile rheumatoid arthritis: A family systems perspective. Journal of Pediatric Psychology, 28, 347–353.

    Article  PubMed  Google Scholar 

  • Henoch, M. J., Batson, J. W., & Baum, J. (1978). Psychosocial factors in juvenile rheumatoid arthritis. Arthritis and Rheumatism, 21, 229–233.

    Article  PubMed  Google Scholar 

  • Hovey, J. K. (2005). Father’s parenting chronically ill children: Concerns and coping strategies. Issues in Comprehensive Pediatric Nursing, 28 83–95.

    Article  PubMed  Google Scholar 

  • Huygen, A. C. J., Kuis, W., & Sinnema, G. (2000). Psychological, behavioral, and social adjustment in children and adolescents with juvenile chronic arthritis. Annals of Rheumatic Disease, 59 276–282.

    Article  Google Scholar 

  • Ilowite, N. T., Walco, G. A., & Pochaczevsky, R. (1992). Assessment of pain in patients with juvenile rheumatoid arthritis: Relation between pain intensity and degree of joint inflammation. Annals of the Rheumatic Diseases, 51, 343–346.

    Article  PubMed  Google Scholar 

  • Kellerman, J., Zeltzer, L., Ellenberg, L., Dash, J., & Rigler, D. (1980). Psychological effects of illness in adolescence: I. Anxiety, self-esteem, and perception of control. Journal of Pediatrics, 97 126–131.

    Article  PubMed  Google Scholar 

  • Kvien, T. K., & Reimers, S. (1983). Drug handling and patient compliance in an outpatient paediatric trial. Journal of Clinical and Hospital Pharmacy, 8, 251–257.

    PubMed  Google Scholar 

  • Kyngäs, H. (2004). Support network of adolescents with chronic disease: Adolescents’ perspective. Nursing and Health Sciences, 6 287–293.

    Article  PubMed  Google Scholar 

  • Lavigne, J. V., Ross, C. K., Berry, S. L., Hayford, J. R., & Pachman, L. M (1992). Evaluation of a psychological treatment package for treating pain in juvenile rheumatoid arthritis. Arthritis Care and Research, 5, 101–110.

    Article  PubMed  Google Scholar 

  • LeBovidge, J. S., Lavigne, J. V., Donenberg, G. R., & Miller, M. L. (2003). Psychological adjustment of children and adolescents with chronic arthritis: A meta-analytic review. Journal of Pediatric Psychology, 28 29–39.

    Article  PubMed  Google Scholar 

  • Litt, I. F., & Cuskey, W. R. (1981). Compliance with salicylate therapy in adolescents with juvenile rheumatoid arthritis. American Journal of Diseases of Children, 135, 434–436.

    PubMed  Google Scholar 

  • Litt, I. F., Cuskey, W. R., & Rosenberg, A. (1982). Role of self-esteem and autonomy in determining medication compliance among adolescents with juvenile rheumatoid arthritis. Pediatrics, 69, 15–17.

    PubMed  Google Scholar 

  • Lovell, D., Giannini, E., & Brewer, E. (1984). Time course of response to nonsteroidal anti-inflammatory drugs in patients with juvenile rheumatoid arthritis. Arthritis & Rheumatism, 27, 11433–1437.

    Article  Google Scholar 

  • Manuel, J. C. (2001). Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 26, 237–246.

    Article  PubMed  Google Scholar 

  • McAnarney, E. R., Pless, I. B., Satterwhite, B., & Friedman, S. B. (1974). Psychological problems of children with chronic juvenile arthritis. Pediatrics, 53, 523–528.

    PubMed  Google Scholar 

  • McNeill, T. (2004). Father’s experience of parenting a child with juvenile rheumatoid arthritis. Qualitative Health Research, 14, 526–545.

    Article  PubMed  Google Scholar 

  • Miller, J. J., Spitz, P. W., Simpson, U., & Williams, G. F. (1982). The social functioning of young adults who had arthritis in childhood. Journal of Pediatrics, 100, 378–382.

    Article  PubMed  Google Scholar 

  • Mullick, M. S. I., Nahar, J. S., & Haq, S. A. (2005). Psychiatric morbidity, stressors, impact, and burden in juvenile idiopathic arthritis. Journal of Health, Population and Nutrition, 23, 142–149.

    Google Scholar 

  • Noll, R. B., Kozlowski, K., Gerhardt, C., Vannatta, K., Taylor, J., & Passo, M. (2000). Social, emotional, and behavioral functioning of children with juvenile rheumatoid arthritis. Arthritis and Rheumatism, 43, 1387–1396.

    Article  PubMed  Google Scholar 

  • Packham, J. C., Hall., M. A., & Pimm, T. J. (2002). Long-term follow-up of 246 adults with juvenile idiopathic arthritis: Predictive factors for mood and pain. Rheumatology, 41, 1444–1449.

    Article  PubMed  Google Scholar 

  • Palermo, T. M., Valenzuela, D., & Stork, P. P. (2004). A randomized trial of electronic vs. paper pain diaries in children: impact on compliance, accuracy, and acceptability. Pain, 107, 213–219.

    Article  PubMed  Google Scholar 

  • Peterson, L. S., Mason, T., Nelson, A. M., O’Fallon, W. M., & Gabriel, S. E. (1997). Psychosocial outcomes and health status of adults who have had juvenile rheumatoid arthritis. Arthritis and Rheumatism, 40, 2235–2240.

    Article  PubMed  Google Scholar 

  • Rapoff, M. A. (1998). Helping children follow their medical treatment program: Guidelines for parents of children with rheumatic diseases. (Available from the author, University of Kansas Medical Center, Department of Pediatrics, 3901 Rainbow Boulevard, Kansas City, KS 66160–7330).

    Google Scholar 

  • Rapoff, M. A. (1999). Adherence to pediatric medical regimens. New York: Kluwer/Plenum.

    Google Scholar 

  • Rapoff, M. A. (2000). Facilitating adherence to medical regimens for pediatric rheumatic diseases: Primary, secondary, and tertiary prevention. In D. Drotar (Ed.). Promoting adherence to medical treatment in chronic childhood illness: Concepts, methods, and interventions (pp. 329–345). Mahwah, NJ: Erlbaum.

    Google Scholar 

  • Rapoff, M. A., Belmont, J., Lindsley, C., Olson, N., Morris, J., & Padur, J. (2002). Prevention of nonadherence to nonsteroidal anti-inflammatory medications for newly diagnosed patients with juvenile rheumatoid arthritis. Health Psychology, 21, 620–623.

    Article  PubMed  Google Scholar 

  • Rapoff, M. A., Belmont, J. M., Lindsley, C. B., & Olson, N. Y. (2005). Electronically monitored adherence to medications by newly diagnosed patients with juvenile rheumatoid arthritis. Arthritis Care and Research, 53, 905–910.

    Article  PubMed  Google Scholar 

  • Rapoff, M. A., & Lindsley, C. B. (2000). The pain puzzle: A visual and conceptual metaphor for understanding and treating pain in pediatric rheumatic disease. Journal of Rheumatology, 58(Suppl.), 29–33.

    PubMed  Google Scholar 

  • Rapoff, M. A., Lindsley, C. B., & Christophersen, E. R. (1985). Parent perceptions of problems experienced by their children in complying with treatments for juvenile rheumatoid arthritis. Archives of Physical Medicine and Rehabilitation, 66, 427–430.

    PubMed  Google Scholar 

  • Rapoff, M. A., Purviance, M. R., & Lindsley, C. B. (1988a). Improving medication compliance for juvenile rheumatoid arthritis and its effect on clinical outcome: A single-subject analysis. Arthritis Care and Research, 1, 12–16.

    Article  Google Scholar 

  • Rapoff, M. A., Purviance, M. R., & Lindsley, C. B. (1988b). Educational and behavioral strategies for improving medication compliance in juvenile rheumatoid arthritis. Archives of Physical Medicine and Rehabilitation, 69, 439–441.

    PubMed  Google Scholar 

  • Reid, G. J., McGrath, P. J., & Lang, B. A. (2005). Parent-child interactions among children with juvenile fibromyalgia, arthritis, and healthy controls. Pain, 113, 201–210.

    Article  PubMed  Google Scholar 

  • Ross, C. K., Lavigne, J. V., Hayford, J. R., Dyer, A. R., & Pachman, L. M. (1989). Validity of reported pain as a measure of clinical state in juvenile rheumatoid arthritis. Annals of the Rheumatic Diseases, 48, 817–819.

    Article  PubMed  Google Scholar 

  • Sällfors, C., Fasth, A., & Hallberg, L. R.-M. (2002). Oscillating between hope and despair—a qualitative study. Child: Care, Health & Development, 28, 495–505.

    Article  Google Scholar 

  • Sandstrom, M. J., & Schanberg, L. E. (2004). Brief report: Peer rejection, social behavior, and psychological adjustment in children with juvenile rheumatic disease. Journal of Pediatric Psychology, 29, 29–34.

    Article  PubMed  Google Scholar 

  • Sawyer, M. G., Carbone, J. A., Whitham, J. N., Roberton, D. M., Taplin, J. E., Varni, J. W., et al. (2005). The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis – A one year prospective study. Quality of Life Research, 14, 1585–1598

    Article  PubMed  Google Scholar 

  • Sawyer, M. G., Whitham, J. N., Roberton, D. M., Taplin, J. E., Varni, J. W., & Baghurst, P. A. (2004). The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis. Rheumatology, 43, 325–330.

    Article  PubMed  Google Scholar 

  • Schanberg, L. E., Anthony, K. K., Gil, K. M., Lefebvre, J. C., Kredich, D. W., & Macharoni, L. M. (2001). Family pain history predicts child health status in children with chronic rheumatic disease. Pediatrics, 108, e47–e53.

    Article  PubMed  Google Scholar 

  • Schanberg, L. E., Anthony, K. K., Gil, K. M., & Maurin, E. C. (2003). Daily pain and symptoms in children with polyarticular arthritis. Arthritis & Rheumatism, 48,, 1390–1397.

    Article  Google Scholar 

  • Schanberg, L. E., Lefebvre, J. C., Keefe, F. J., Kredich, D. W., & Gil, K. M. (1997). Pain coping and the pain experience in children with juvenile chronic arthritis. Pain, 73, 181–189.

    Article  PubMed  Google Scholar 

  • Schanberg, L. E., Sandstrom, M. J., Starr, K., Gil, K. M., Lefebvre, J. C., Keefe, F. J., et al. (2000). The relationship of daily mood and stressful events to symptoms in juvenile rheumatic disease. Arthritis Care and Research, 13, 33–41.

    Article  PubMed  Google Scholar 

  • Sherry, D. D., Bohnsack, J., Salmonson, K., Wallace, C. A., & Mellins, E. (1990). Painless juvenile rheumatoid arthritis. Journal of Pediatrics, 116, 921–923.

    Article  PubMed  Google Scholar 

  • Stark, L. J., Janicke, D. M., McGrath, A. M., Mackner, L. M., Hommel, K. A., & Lovell, D. (2005). Prevention of osteoporosis: A randomized clinical trial to increase calcium intake in children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 30, 377–386.

    Article  PubMed  Google Scholar 

  • Stinson, J. N., Petroz, G. C., Tait, G., Feldman, B. M., Streiner, D., McGrath, P. J., et al. (2006). e-Ouch: Usability testing of an electronic chronic pain diary for adolescents with arthritis. Clinical Journal of Pain, 22, 295–305.

    Article  PubMed  Google Scholar 

  • Sturge, C., Garralda, M. E., Boissin, M., Dore, C. J., & Woo, P. (1997). School attendance and juvenile chronic arthritis. British Journal of Rheumatology, 36, 1218–1223.

    Article  PubMed  Google Scholar 

  • Thompson, K. L., Varni, J. W., & Hanson, V. (1987). Comprehensive assessment of pain in juvenile rheumatoid arthritis: An empirical model. Journal of Pediatric Psychology, 12, 241–255.

    Article  PubMed  Google Scholar 

  • Varni, J. W., Rapoff, M. A., Waldron, S. A., Gragg, R. A., Bernstein, B. H., & Lindsley, C. B. (1996). Chronic pain and emotional distress in children and adolescents. Journal of Developmental and Behavioral Pediatrics, 17, 154–161.

    Article  PubMed  Google Scholar 

  • von Weiss, R. T., Rapoff, M. A., Varni, J. W., Lindsley, C. B., Olson, N. Y., Madson, K. L., et al. (2002). Daily hassles and social support as predictors of adjustment in children with pediatric rheumatic disease. Journal of Pediatric Psychology, 27, 155–165.

    Article  Google Scholar 

  • Wagner, J. L., Chaney, J. M., Hommel, K. A., Page, M. C., Mullins, L. L., White, M. M., et al. (2003). The influence of parental distress on child depressive symptoms in juvenile rheumatoid diseases: The moderating effect of illness intrusiveness. Journal of Pediatric Psychology, 28, 453–462.

    Article  PubMed  Google Scholar 

  • Walco, G. A., Varni, J. W., & Ilowite, N. T. (1992). Cognitive behavioral pain management in children with juvenile rheumatoid arthritis. Pediatrics, 89, 1075–1079.

    PubMed  Google Scholar 

  • Wallace, C., & Levinson, J. (1991). Juvenile rheumatoid arthritis: Outcome and treatment for the 1990 s. Rheumatic Disease Clinics of North America, 17, 891–905.

    PubMed  Google Scholar 

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Rapoff, M.A., Lindsley, C.B. (2009). Juvenile Rheumatoid Arthritis. In: O'Donohue, W. (eds) Behavioral Approaches to Chronic Disease in Adolescence. Springer, New York, NY. https://doi.org/10.1007/978-0-387-87687-0_11

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