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The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis – A one year prospective study

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Abstract

The aim of this 12-month prospective study was to compare reports describing the health-related quality of life (HRQL) of children with Juvenile idiopathic arthritis (JIA) obtained from parents and children, to investigate the extent to which the children’s HRQL changed over a 12-month period, and to describe the relationship between children’s HRQL, and their experience of pain and use of pain coping strategies. Fifty-four children aged 8–18 years with JIA and their parents completed standard questionnaires assessing children’s HRQL, pain intensity, and pain coping strategies at baseline, 6 months, and 12 months. In general, children reported that their HRQL was better than was reported by parents. Both informants described children’s HRQL as being very stable over the 12 months of the study. Consistent with the Biobehavioural Model of Pain, there was a significant negative relationship between children’s HRQL and their experience of pain. However, there was little evidence that pain coping strategies mediated the relationship between children’s experience of pain and their HRQL.

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References

  1. LE Schanberg FJ Keefe JC Lefebvre DW Kredich KM. Gil (1996) ArticleTitlePain coping strategies in children with juvenile primary fibromyalgia syndrome: Correlation with pain, physical function, and psychological distress Arthritis Care Res. 9 IssueID2 89–95 Occurrence Handle1:STN:280:ByiC38rhvVM%3D Occurrence Handle8970266

    CAS  PubMed  Google Scholar 

  2. KK Anthony LE. Schanberg (2003) ArticleTitlePain in children with arthritis: A review of the current literature Am Coll Rheumatol. 49 IssueID2 272–279

    Google Scholar 

  3. JW Varni M Seid TS Knight TM Burwinkle J Brown IS. Szer (2002) ArticleTitleThe PedsQLTM in pediatric rheumatology: Reliability, validity and responsiveness of the Pediatric Quality of Life InventoryTM Generic Core Scale and Rheumatology Module Arthritis Rheum. 46 714–725 Occurrence Handle10.1002/art.10095 Occurrence Handle11920407

    Article  PubMed  Google Scholar 

  4. EM Baildam PJL Holt SC. Conway (1995) ArticleTitleMorton MJS. The association between physical function and psychological problems in children with juvenile chronic arthritis. Br J Rheumatol. 34 470–477 Occurrence Handle1:STN:280:ByqA3cjpt1U%3D Occurrence Handle7788179

    CAS  PubMed  Google Scholar 

  5. B. Spilker (1996) Quality of Life and Pharmacoeconomics in Clinical Trials Lippincott-Raven Philadelphia.

    Google Scholar 

  6. H Schipper JJ Clinch CLM. Olweny (1996) Quality of Life Studies: Definitions and Conceptual Issues EditionNumber2 Lippincott-Raven New York.

    Google Scholar 

  7. World Health Organization. Constitution of the World Health Organization Basic Document. Geneva, Switzerland: World Health Organization, 1948

  8. JW Varni SA Waldron RA Gragg et al. (1996) ArticleTitleDevelopment of the Waldron/Varni pediatric pain coping inventory Pain. 67 141–150 Occurrence Handle10.1016/0304-3959(96)03077-1 Occurrence Handle1:STN:280:ByiD2M%2FltFA%3D Occurrence Handle8895242

    Article  CAS  PubMed  Google Scholar 

  9. JW Varni KL Thompson V. Hanson (1987) ArticleTitleThe Varni/Thompson Pediatric Pain Questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis Pain. 28 27–38 Occurrence Handle10.1016/0304-3959(87)91056-6 Occurrence Handle1:STN:280:BiiC2crnslc%3D Occurrence Handle3822493

    Article  CAS  PubMed  Google Scholar 

  10. JW Varni RL Blount SA Waldron AJ. Smith (1995) Management of pain and distress MC. Roberts (Eds) Handbook of Pediatric Psychology EditionNumber2 The Guilford Press New York 105–123

    Google Scholar 

  11. JW Varni TM Burwinkle ER. Katz (2004) ArticleTitleThe PedsQLTM in pediatric cancer pain: A prospective longitudinal analysis of pain and emotional distress J Dev Behav Pediatr. 25 239–246 Occurrence Handle15308924

    PubMed  Google Scholar 

  12. MG Sawyer JN Whitham DM Roberton JE Taplin JW Varni PA. Baghurst (2004) ArticleTitleThe relationship between health related quality of life, pain, and coping strategies in juvenile arthritis Rheumatology. 43 IssueID3 325–330 Occurrence Handle1:STN:280:DC%2BD2c%2FnsVGjtQ%3D%3D Occurrence Handle14566031

    CAS  PubMed  Google Scholar 

  13. RE Petty TR Southwood P Manners et al. (2001) ArticleTitleInternational League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001 J Rheumatol. 31 390–392

    Google Scholar 

  14. JW Varni M Seid PS. Kurtin (2001) ArticleTitleThe PedsQLTM 4.0: Reliability and validity of the Pediatric Quality of Life InventoryTM Version 4.0 Generic Core Scales in healthy and patient populations Med Care. 39 800–812 Occurrence Handle1:STN:280:DC%2BD3MvitVGgtw%3D%3D Occurrence Handle11468499

    CAS  PubMed  Google Scholar 

  15. JW Varni TM Burwinkle JR Jacobs M Gottschalk F Kaufman KL. Jones (2003) ArticleTitleThe PedsQLTM in Type 1 and Type 2 diabetes: The reliability and validity of the Pediatric Quality of Life InventoryTM Generic Core Scales and Type 1 Diabetes Module Diabetes Care. 26 631–637 Occurrence Handle12610013

    PubMed  Google Scholar 

  16. G Singh BH Athreya JF Fries DP. Goldsmith (1994) ArticleTitleMeasurement of health status in children with juvenile rheumatoid arthritis Arthritis Rheum. 37 IssueID12 1761–1769 Occurrence Handle1:STN:280:ByqD2sjls1U%3D Occurrence Handle7986222

    CAS  PubMed  Google Scholar 

  17. A Tennant S Kearns F Turner S Wyatt R Haig MA. Chamberlain (2001) ArticleTitleMeasuring the function of children with juvenile arthritis Paediatr Rheumatol. 40 1274–1278 Occurrence Handle1:STN:280:DC%2BD3MnmsFCmtA%3D%3D

    CAS  Google Scholar 

  18. StataCorp. Stata Statistical Software: Release 8.0. College Station, TX: Stata Corporation, 2003

  19. JWR Twisk (2003) Applied Longitudinal Data Analysis for Epidemiology: A Practical Guide Cambridge University Press Cambridge.

    Google Scholar 

  20. A Ravelli S Viola D Migliavacca A Pistorio N Ruperto A. Martini (2001) ArticleTitleDiscordance between proxy-reported and observed assessment of functional ability of children with juvenile idiopathic arthritis Paediatr Rheumatol. 40 914–919 Occurrence Handle1:STN:280:DC%2BD3MvmslWjtw%3D%3D

    CAS  Google Scholar 

  21. TM Achenbach SH McConaughy CT. Howell (1987) ArticleTitleChild/adolescent behavioral problems: Implications of cross-informant correlations for situational specificity Psychol Bull. 101 213–232 Occurrence Handle1:STN:280:BiiC2snhsl0%3D Occurrence Handle3562706

    CAS  PubMed  Google Scholar 

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Authors and Affiliations

  1. Research and Evaluation Unit, Women’s and Children’s Hospital, 72 King William Rd, North Adelaide, South Australia, 5006, Australia

    Michael G. Sawyer, Josephine A. Carbone & Justine N. Whitham

  2. Department of Paediatrics, University of Adelaide, South Australia

    Michael G. Sawyer, Don M. Roberton & Peter A. Baghurst

  3. Rheumatology Clinic, Women’s and Children’s Hospital, South Australia

    Don M. Roberton

  4. Department of Psychology, University of Adelaide, South Australia

    John E. Taplin

  5. Colleges of Architecture and Medicine, Texas A&M University, College Station, Texas, USA

    James W. Varni

  6. Public Health Research Unit, Women’s and Children’s Hospital, South Australia

    Peter A. Baghurst

  7. Department of Public Health, University of Adelaide, South Australia

    Peter A. Baghurst

Authors
  1. Michael G. Sawyer
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  2. Josephine A. Carbone
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  3. Justine N. Whitham
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  4. Don M. Roberton
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  5. John E. Taplin
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  6. James W. Varni
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  7. Peter A. Baghurst
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Corresponding author

Correspondence to Michael G. Sawyer.

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Sawyer, M.G., Carbone, J.A., Whitham, J.N. et al. The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis – A one year prospective study. Qual Life Res 14, 1585–1598 (2005). https://doi.org/10.1007/s11136-004-7710-3

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  • DOI: https://doi.org/10.1007/s11136-004-7710-3

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