Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Preview
Unable to display preview. Download preview PDF.
Similar content being viewed by others
References
Acquadro C, Jambon B, Ellis D, Marquis P (1996) Language and translation issues. In: Spilker B (ed) Quality of life and pharmacoeconomics in clinical trials, 2nd ed. Raven, New York, pp 575–585
Bergner M, Bobbitt RA, Carter WB, Gilson BS (1981) The sickness impact profile: development and final revision of a health status measure. Med Care 19: 787–805
Bishara SN, Partridge FM, Godfrey HP, Knight RG (1992) Post-traumatic amnesia and Glasgow Coma Scale related to outcome in survivors in a consecutive series of patients with severe closed-head injury. Brain Inj 6: 373–380
Bullinger M, Azouvi P, Brooks N, Basso A, Christensen AL, Gobiet W, Greenwood R, Hutter B, Jennett B, Maas A, Truelle JL, von Wild KR, TBI consensus group (2002) Quality of life in patients with traumatic brain injury basic issues, assessment and recommendations. Restor Neurol Neurosci 20: 111–124
Bullinger M, Power MJ, Aaronson NK, Cella DF, Anderson RT (1996) Creating and evaluating cross-cultural instruments. In: Spilker B (ed) Quality of life and pharmacoeconomics in clinical trials, 2nd ed. Raven, New York, pp 659–668
Bullinger M, v Steinbuechel N (2001) Quality of life — measurement and outcome. In: Pfäfflin M, Fraser T, Thorbecke R, Specht U, Wolff R (eds) Comprehensive care for people with epilepsy. John Libbey & Company Ltd, London, pp 277–292
v Steinbuechel N, Petersen C, Bullinger M (in prep) Cross-cultural development of health related QoL measures after TBI. (in prep)
Clifton GL, Kreutzer JS, Choi SC, Devany CW, Eisenberg HM, Foulkes MA, Jane JA, Marmarou A, Marshall LF (1993) Relationship between Glasgow Outcome Scale and neuropsychological measures after brain injury. Neurosurgery 33: 34–39
Corrigan JD, Smith-Knapp K, Granger CV (1998) Outcomes in the first 5 years after traumatic brain injury. Arch Phys Med Rehab 79: 298–305
Deloche G, Dellatolas G, Christensen A (2000) The European Brain Injury Questionnaire. Patients’ and families’ subjective evaluation of brain-injured patients’ current and prior to injury difficulties. International Handbook of Neuropsychological Rehabilitation. Kluwer Academic/Plenum Publishers, New York
Dijkers MP (2004) Quality of life after traumatic brain injury: a review of research approaches and findings. Arch Phys Med Rehab 85: 21–35
Dikmen SS, Machamer JE, Powell JM, Temkin NR (2003) Outcome 3 to 5 years after moderate to severe traumatic brain injury. Arch Phys Med Rehab 84: 1449–1457
Dikmen SS, Machamer JE, Temkin N, McLean A (1990) Neuropsychological recovery inpatients with moderate to severe head injury: 2-year follow-up. J Clin Exp Neuropsychol 12: 507–519
Findler M, Cantor J, Haddad L, Gordon W, Ashman T (2001) The reliability and validity of the SF-36 health survey questionnaire for use with individuals with traumatic brain injury. Brain Inj 15: 715–723
Folstein MF, Folstein SE, McHugh PR (1975) Mini mental state. A practical method for grading the cognitive state of atpatients for the clinician. J Psychiatr Res 12: 189–198
Galsk T, Tompkins C, Johnston MV (1998) Competence in discourse as a measure of social integration and quality of life in persons with traumatic brain injury. Br Inj 12: 769–782
Gennarelli TA, Spielman G, Langfitt TW, Gildenberg PL, Harrington T, Jane JA, Marshall LF, Miller JD, Pitts LH (1982) Influence of the type of intracranial lesion on outcome from severe head injury. J Neurosurg 56: 26–32
Gerin P, Dazord A, Boissel JP, Hanauer MT, Moleur P, Chauvin F (1989) Quality of life assessment in therapeutic trials. Conceptual aspects and presentation of a questionnaire. Thérapie 44: 355–364
Hammond FM, Grattan KD, Sasser H, Corrigan JD, Rosenthal M, Bushnik T, Shull W (2004) Five year after traumatic brain injury: a study of individual outcomes and predictors of changes in function. Neuro Rehab 19: 25–35
Hui C, Triandis HC (1985) Measurement in cross-cultural psychology: a review and comparison of strategies. J Cross Cult Psychol 16: 131–152
Jennett B, Teasdale G, Braakman R, Minderhoud J, Heiden J, Kurze T (1979) Prognosis of patients with severe head injury. Neurosurg 4: 283–289
Klonoff PS, Costa LD, Snow WG (1986) Predictors and indicators of QOL in patients with closed-head injury. J Clin Exp Neuropsy 8: 469–485
Lannoo E, Van Rietvelde F, Colardyn F, Lemmerling M, Vandekerckhove T, Jannes C, De Soete G (2000) Early predictors of mortality and morbidity after severe closed head injury. J Neurotrauma 17: 403–414
Levine B, Dawson D, Boutet I, Schwartz ML, Stuss DT (2000) Assessment of strategic self-regulation in traumatic brain injury: its relationship to injury severity and psychosocial outcome. Neuropsychology 14: 491–500
MacKenzie EJ, McCarthy ML, Ditunno JF, Forrester-Staz C, Gruen GS, Marion DW, Schwab WC (2002) Using the SF-36 for characterizing outcome after multiple trauma involving head injury. J Trauma 52: 527–534
Milders M, Fuchs S, Crawford JR (2003) Neurological impairments and changes in emotional and social behaviour following severe traumatic brain injury. J Clin Exp Neuropsychol 25: 157–172
Neugebauer E, Bouillon B, Bullinger M, Wood-Dauphinee S (2002) Quality of life after multiple trauma-summary and recommendations of the consensus conference. Restor Neurol Neurosci 20: 161–167
O’Neill J, Hibbard MR, Brown M et al (1998) The effect of employment on quality of life and community integration after traumatic brain injury. J Head Trauma Rehab 13: 68–79
Pirente N, Gregor A, Bouillon B, Neugebauer (2001) Lebensqualität schwerstverletzter Patienten ein Jahr nach dem Trauma, eine matched-pair-Studie im Vergleich zu einer gesunden Kontrollgruppe. Unfallchirurgie 104: 57–63
Powell JH, Beckers K, Greenwood RJ (1998) Measuring progress and outcome in community rehabilitation after brain injury with a new assessment instrument the BICRO-39 scales. Arch Phys Med Rehab 79: 1213–1225
Riemsma RP, Forbes CA, Glanville JM, Eastwood AJ, Kleijnen J (2001) General health status measures for people with cognitive impairment: learning disability and acquired brain injury. Health Technol Assess 5: 1–100
Spilker B, Revicki DA (1996) Taxonomy of QOL. In: Spilker B (ed) QOL and pharmacoeconomics in clinical trials. 2nd ed. Raven, New-York, pp 25–31
Teasdale G, Jennett B (1974) Assessment of coma and impaired consciousness. A practical scale. Lancet 2: 81–84
Teasdale TW, Christensen A, Willmes K, Deloche G, Braga L, Stachowiak F, Vendrell JM, Castro-Caldas A, Laaksonen R, Leclercq M (1997) Subjective experience in brain-injured patients and their close relatives: a European Brain Injury Questionnaire study. Brain Inj 11: 543–563
Temkin N, McLean A Jr, Dikmen S, Gale J, Bergner M, Almes MJ (1988) Development and evaluation of modifications to the Sickness Impact Profile for head injury. J Clin Epidemiol 41: 47–57
The European Group for QOL and Health Measurement (1992) European guide to the Nottingham Health Profile. ESCUBASE, Montpellier
The WHOQOL Group (1993) Study Protocol of the World Health Organization project to develop a QOL assessment instrument (WHOQOL). Qual Life Res 2: 153–159
Truelle JL, Montreuil M, North P, Tazopoulou E (2002) Quality of life in traumatic brain injuried: generic or specific scale? 60 cases. Int Br Inj, 4th World Congress, Italy
von Steinbuechel N, Poeppel E (1993) Domains of rehabilitation: a theoretical perspective. Behav Brain Res 56: 1–10
von Steinbuechel N (1998) Gesundheitsbezogene Lebensqualität und subjektiver Gesundheitszustand — neue Kriterien in der Medizin? In: Grundböck A, Nowak P, Pelikan JM (eds) Neue Herausforderungen für Krankenhäuser, Bd 7, Wiener Facultas Universitätsverlag, pp 50–68
von Steinbuechel N (1995) Erfassung von mentalen Funktionen und gesundheitsbezogener Lebensqualitaet. Habilitationsschrift. Universitaet Innsbruck
von Wild KR (2003) New development of functional neurorehabilitation in neurosurgery. Acta Neurochir (Wien) [Suppl] 87: 43–47
Ware JE, Keller SD, Gandek B, Brazier J, Sullivan M (1995) Evaluating translations of the health status questionnaires. Methods from the IQOLA project. Int J Technol Assess Health Care 11: 525–551
Author information
Authors and Affiliations
Consortia
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2005 Springer-Verlag
About this paper
Cite this paper
von Steinbuechel, N., Petersen, C., Bullinger, M., the QOLIBRI Group. (2005). Assessment of health-related quality of life in persons after traumatic brain injury — development of the Qolibri, a specific measure. In: von Wild, K.R.H. (eds) Re-Engineering of the Damaged Brain and Spinal Cord. Acta Neurochirurgica Supplementum, vol 93. Springer, Vienna. https://doi.org/10.1007/3-211-27577-0_6
Download citation
DOI: https://doi.org/10.1007/3-211-27577-0_6
Publisher Name: Springer, Vienna
Print ISBN: 978-3-211-24150-9
Online ISBN: 978-3-211-27577-1
eBook Packages: MedicineMedicine (R0)