Correction to: Orphanet Journal of Rare Diseases (2022) 17:83 https://doi.org/10.1186/s13023-022-02252-6

Following the publication of the original article [1] we were informed that several of the co-authors’ given and family names had unfortunately been interchanged.

The correct author names are shown here below:

Paolo Cavarzere, Andrea Gastaldi, Francesca Marta Elli, Rossella Gaudino, Erika Peverelli, Milena Brugnara, Susanne Thiele, Francesca Granata, Giovanna Mantovani and Franco Antoniazzi

The author names have been corrected in the author list of this Correction and updated in the original article.