Research Design
Qualitative case studies of 17 teleconsultation projects from four telemedicine networks (Sites W, X, Y and Z) were included in this research. Data from telemedicine networks W, X, and Y were collected at two points in time nearly a decade apart while data from Site Z were collected at the later data collection period only. Sites W and X did not have any active teleconsultation projects at the time of the second data collection period. The Institutional Review Board (IRB) of the university approved these projects.
Sample
Telemedicine networks, consisting of a university-affiliated health sciences center (HSC) as the hub and smaller healthcare facilities such as physician offices, clinics, and non-tertiary care hospitals as the spokes, were purposely selected because the vast majority of civilian teleconsultation projects at the time of this research involved HSCs [41]. HSC teleconsultation projects tended to have certain characteristics that naturally account for alternative explanations of installed project utilization [42]. Three networks (Sites W, X, and Y) were initially studied in the first data collection period.
The research project during the first data collection period involved not only teleconsultation but also teleradiology and distance learning telemedicine projects. Site selection was based on four criteria. First, each site had to have at least three active telemedicine projects. Second, each site had to have one of each of the three types of telemedicine activities: teleconsultation, distance learning, and teleradiology. These two criteria enabled both within and between network comparisons of different telemedicine projects. Third, the sites could not involve military or correction facilities because the voluntariness of participation and the dynamics of trust in such situations may be different from those in civilian projects. Fourth, each site had to have been operational for a minimum of 6 months to allow the inevitable technological and procedural bugs to be addressed and to allow the novelty of telemedicine to pass.Footnote 1
The World Wide Web was searched to find sites that met these criteria. The second criterion—different types of telemedicine activities within each project—was discarded because sites meeting this criterion could not be found. Although a number of potential sites claimed to have all three types of telemedicine activities operational at the time of the first data collection period, only one actually did. Indeed, a number of potential sites that claimed on their Web pages to have active telemedicine projects did not have any active telemedicine projects at that time. This exaggeration of the state of active telemedicine projects was not uncommon. The ORHP [2] found that approximately 25% of the hospitals they surveyed which claimed to have at least one active telemedicine project in fact had no operational telemedicine projects. Each site selected included at least one teleconsultation project, which enabled teleconsultation activities to be compared across the telemedicine networks. The researchers did not have specific types of teleconsultation projects in mind for their research and thus included any operational teleconsultation projects that were available during the data collection periods. The researchers argue that the variability in the types and locations of the teleconsultation projects and the participants themselves helped strengthen generalizability of the findings.
Additional file 1: Table S1 presents background and demographic information about the projects. A total of 17 teleconsultation projects in 14 geographical locations were studied (three remote areas each had two different teleconsultation projects located in the area). All the telemedicine networks and their teleconsultation projects were located in the Southwestern United States. All of the remote sites were designated as either medically underserved areas or populations, and 15 of the 17 remote sites were designated as primary care Health Professional Shortage Areas (HPSAs). The two remote sites not designated HSPAs, Z2 and Z3, were located in the same relatively isolated city and surrounded by areas within the county that were designated HPSAs.
Population size of the remote sites varied. Twelve of the 17 remote sites were in areas located in US Department of Health and Human Services designated non-metropolitan (population less than 50,000), with the rest being defined as metropolitan (population over 50,000). The ratio of sites studied that were classified as metropolitan or nonmetropolitan (29%/71%) is consistent with the United States as a whole (27%/73%) [43]. Each remote site was relatively isolated geographically, with the nearest HSC being a minimum of 60 miles away. Twelve of the 17 projects remote sites were 200 or more miles from the nearest HSC.
Data were collected from five teleconsultation projects during the first data collection period. As indicated in Additional file 1: Table S1, Site W had an oncology—bone marrow transplant teleconsultation project that was used for both initial patient screening and posttreatment follow-up where the patient was usually present. Site X had a pediatric oncology teleconsultation project used for follow-up where the patient was always present, and a multiple drug-resistant tuberculosis teleconsultation project used primarily in conjunction with inpatient treatment, where the patient was rarely present. Site Y had two multiple medical specialties teleconsultation projects which involved the diagnosis, treatment, and follow-up of numerous medical conditions which a primary care provider usually would refer patients to a specialist. Whether or not the patient was present during the teleconsultation session was primarily dependent on the medical condition and the usefulness of the patient’s presence.
The researchers planned to revisit these sites in order to study how these teleconsultation projects had changed over time. The second data collection period occurred approximately a decade later and focused solely on teleconsultation projects. A status update for Site W was received by their former Associate Director of Telemedicine, and Sites X and Y were revisited. Data about the status of the operational teleconsultation projects at the first data collection period and additional teleconsultation projects implemented since then were collected. Unfortunately, both Sites W and X had decided to discontinue or deemphasize their teleconsultation efforts. Site X had decided to focus on distance learning only, and their tuberculosis teleconsultation project had been transferred to a different HSC that was not part of this study (the infectious diseases specialist formerly affiliated with HSC X transferred her affiliation to that different HSC but remained in the same location as before). Site W also had significantly deemphasized their teleconsultation efforts because state funding for the HSC as a whole had been significantly reduced, and their teleconsultation projects were one of many efforts whose funding was cut. Site W had some efforts involving neonatal CT-scans readings and telepsychiatry serving Native American populations but the researchers were unable to secure access to these. For both HSCs, the decisions to discontinue or deemphasize their teleconsultation efforts were made at the organizational level.
During the second data collection period, Site Y had five active teleconsultation projects. This included one multiple medical specialties teleconsultation project from the first data collection period (the other had been discontinued), and four additional teleconsultation projects that had been initiated since that time. The burn unit teleconsultation project was used primarily for long-term follow-up and treatment after the patient had been released from the hospital, and the patient was always present. The oncology teleconsultation project was used for the administering of chemotherapy, where the patient was always present, and addressing related side effects, where the patient sometimes was present. The primary care teleconsultation project involved a remote site primary care physician linked to an even smaller town which also had a telepharmacy link with the HSC. The health care provider at the smaller town was the local emergency medical technician and the patient was always present. The pediatric care teleconsultation project was located at the rural site’s elementary school where the patient was present on an as-needed basis.
In addition, data were collected from a fourth telemedicine network, Site Z, during the second data collection period. Data about Site Z were not initially collected because, at that time, they did not have any active teleconsultation projects. Eight teleconsultation projects involving three different clinical applications were studied at Site Z. Project HCV had four teleconsultation projects focused primarily on hepatitis C, including determining whether a patient was a good candidate for treatment. It was also used for the management of both the disease itself and treatment side effects. The patient was never present. Project ECDD had three teleconsultation projects dealing with early childhood developmental disabilities where the patient was always present during diagnosis and treatment, but not during training sessions. Project DABC had one teleconsultation project dealing with drug abuse and behavioral counseling where the patient was not present for the case discussions but occasionally present when needed. With the exception of the burn unit teleconsultation project at Site Y, none of the remote sites had any type of formal affiliation or reporting relationship with the HSCs with whom they partnered.
Teleconsultation Technology
As presented in Additional file 1: Table S1, all six of the teleconsultation projects studied at Site Y both during the first and second data collection periods utilized a basic modular teleconsultation workstation which HSC Y had designed and later licensed the manufacturing of to a major Japanese electronics company, because the specialty teleconsultation equipment available at the time was perceived as being both too complex and too costly for their requirements. Their teleconsultation workstation was put together with off-the-shelf components and included a full motion video codec (coder/decoder), an x-ray light box, and a one chip CCD camera which could be used to view the patient or tilted downward to view x-rays or documents. The workstation also included a video examination camera with a universal adapter to fit endoscopic applications, a high-powered xenon light source for general lighting purposes or for direct application to endoscopic devices, and an otoscope which could be directly attached to the exam camera and xenon light source. A unidirectional microphone was attached to the unit, and on top of the cabinet were two small high-resolution monitors, the larger showing the image being transmitted, and the smaller one showing the return transmission signal. A VCR was available to record and document teleconsultation sessions. The unit also had additional data ports and auxiliary audio/video inputs and outputs. During the second data collection period, a number of Site Y remote sites, including Y2 (medical specialties) and Y6 (school clinic), still utilized upgraded versions of that same workstation. The other Site Y remote sites utilized a newer generation of their basic teleconsultation workstation.
Nine of the remaining 11 projects studied utilized some variation of commercial off-the-shelf videoconferencing equipment (although multiple drug resistant tuberculosis teleconsultation Project X2 switched back to telephone, email, and facsimile during the second data collection period). At Site Z, no standard teleconsultation workstation was deployed throughout its network. Six of the eight teleconsultation projects studied at Site Z utilized videoconferencing equipment. The two other teleconsultation projects (Project HCV Z1 and Z3) utilized teleconferencing, although both were planning on migrating to videoconferencing in the near future.
At Site Z, both Projects HCV and DABC deployed basic Polycom videoconferencing equipment because the nature of their teleconsultation sessions required very limited technology capabilities. Such sessions generally involved a discussion between the various healthcare providers, although Project DABC sometimes included a patient being present. Project ECDD presented more difficult challenges from a technology perspective in that they had multiple, different teleconsultation workstation configurations and often used other project’s teleconsultation workstations as well. Further, as was standard practice in their field, Project ECDD also required equipment that could be used at the patient’s home. At the time of the second data collection period, they were on their fourth generation of teleconsultation workstations and had begun purchasing standard laptops equipped with HIPAA-compliant encryption software.
The teleconsultation projects studied in the first data collection period all utilized dedicated point-to-point telecommunication links—primarily because this was the only option available. These telecommunication links, usually either T1 lines or satellites, were very expensive (up to $3500 per month–although a number of states subsidized the cost) and thus unsustainable in the long run. At the time of the second data collection period, all the teleconsultation projects studied that were not utilizing teleconferencing as their main communication link were now using IP-based multipoint telecommunication networks. All of Site Y’s teleconsultation projects connected to the same educational and healthcare-related designated IP-based multipoint telecommunication network that had been implemented throughout the state. For Site Z, a statewide telecommunication network had not yet been fully deployed, and different teleconsultation projects utilized different telecommunication networks, or some combination thereof, to provide the connections between the HSC and the remote sites. These included a state-based educational network and networks belonging to different federal agencies.
Data Collection
Data were collected at two points in time (1996/1997 and 2007) approximately 10 years apart, and the primary data collection method involved face-to-face, issue-focused, semi-structured interviews of key informants (sample interview questions are available in the Appendix). The time elapsed between the two data collection periods was based on a desire to be sure that projects had been in existence long enough to become institutionalized in the delivery setting. Face-to-face interviews were required to collect the thick and richly textured data that were needed to understand the topics being researched [44–46] because, prior to the first data collection period, telephone interviews were pretested and found ineffective.
Table 1 presents an overview of the distribution of key informants, who were members of one of three groups—clinicians (physicians, physician assistants, nurse practitioners, medical residents, nurses, or, in one case, an emergency medical technician), administrators, and IT professionals. They were selected based on current or past direct involvement in their organization’s teleconsultation projects. A total of 85 healthcare professionals, 8 at Site W, 17 at Site X, 35 at Site Y, and 25 at Site Z, were interviewed face-to-face, and the interviews were audio recorded and transcribed. At Site Y, 17 were interviewed during the first data collection period, whereas 21 (including three from the first period) were interviewed during the second data collection period. At Site X, 15 were interviewed during the first data collection period and five (including three from the first period) during the second, while at Site W, eight were interviewed during the first period and one was reinterviewed during the second data collection period.
Table 1 Key informants overview
Both data source and method triangulation [47, 48] were utilized in an effort to improve validity and reliability [49–51], and partially address key informant bias issues [49, 51]. Data source triangulation was accomplished by interviewing at different times multiple key informants from the three different functional groups at both the remote healthcare facility (if multiple key informants existed) and the HSC involved in each teleconsultation project studied. Although semi-structured interviews of key informants were the primary data collection method, within-method triangulation [47, 48] was also utilized. As indicated in Additional file 1: Table S1, this varied by teleconsultation project but included observing teleconsultation sessions or video recordings of such sessions and analyzing documentation such as grant proposals/follow-up, needs assessments, and strategic plans. This was done in an effort to verify factual data and corroborate key informant answers. However, there were cases when such data were not documented or privacy issues prevented a researcher from having access to it. In these cases, data collected from multiple key informants were used to corroborate the answers.
Data Analysis
The transcribed interviews were analyzed and coded after each data collection period in which they were collected, based on the coding scheme presented in Table 2. The coding scheme was developed prior to the first data collection period based on the relevant literature and was fine-tuned over time. Interviews relevant to a particular case (teleconsultation project) were first coded, and the coded interview segments for that given case were grouped together, analyzed, compared, and integrated in an iterative process. Each case was written up on its own in order to integrate the relevant interviews for each teleconsultation project into one document. This resulted in a more complete and coherent understanding of each individual project than would have been possible by analyzing each interview separately. During the case write-ups, it occurred to the researchers that the application of a CAS dominant logic might help shed light on what had been observed. Each case was then reanalyzed and compared against the others using both dominant logic frameworks. The use of computer-aided qualitative data analysis software enhanced coding reliability by making possible more consistent, frequent, and in-depth comparative analysis [52–54]. It also enhanced confidence in internal validity by more readily facilitating the constant comparison and pattern matching of the different coding values assigned first within and then between cases [52, 54, 55].
Table 2 Coding scheme overview
The coding for both data collection periods was performed by the first author. For the first data collection period, the coding of variables for each teleconsultation project that could not be directly assessed were assessed by another information systems researcher. The third party assessor concurred with the researcher’s coding 94% of the time. The coding for the second data collection period was reviewed by the second author but was not formally assessed because the volume of interviews and the lack of funding made it impractical to seek other coders. It is argued that the reliability and validity of the coding is sufficient because the coding related to this manuscript primarily involved identifying factual information and not subjective judgments by the coder, and the coding scheme used for both data collections periods was similar and performed by the same researcher. Third party assessment of the coding of the data from the first data collection period indicated that the coding was reliable and valid, and there are no reasons to believe that the same does not hold for the second data collection period.
While researcher triangulation [47, 48] was limited in the coding process, researcher and theory triangulation [47, 48] in terms of interpreting the findings were important drivers for this article. The motivation for this research was that what was observed in the data collection periods was not consistent with the generally accepted framework for the role of technology in teleconsultations. The second researcher suggested applying a complex adaptive systems perspective to better understand technology’s role.
As previously stated, key informant interviews were the primary data collection method. Note that in the Results section examples usually involve only one key informant; however, whenever available (including those presented), multiple confirming comments from different key informants involved in that particular project, in addition to other forms of evidence, were used to determine the findings. Further, key informant quotes from the first data collection period are specifically identified, with the others all being from the second data collection period.