Abstract
The death of a child with a disability presents unique challenges for individual family members. Whereas parents have received much attention in terms of their needs and challenges, siblings have received less attention. Growing up with a child with a disability who subsequently dies has a profound impact. This paper used in-depth interviews to illuminate the experiences and perceptions of siblings in one family in which a child with cerebral palsy died. The 5 siblings were interviewed about their experiences of family life and their methods of coping during the terminal phases of illness and after their sister's death. Their views on friendships, growing up, vocational choices, their sister's contribution to their lives, and their adjustment to her death are illustrated. Implications for health professionals working with siblings and families are drawn in terms of adult siblings' coping responses and their need for mutual support.
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Rodger, S., Tooth, L. Adult Siblings' Perceptions of Family Life and Loss: A Pilot Case Study. Journal of Developmental and Physical Disabilities 16, 53–71 (2004). https://doi.org/10.1023/B:JODD.0000010039.14986.41
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DOI: https://doi.org/10.1023/B:JODD.0000010039.14986.41