Abstract
To identify correlates of psychological distress among multiple indicators, 99 women with adult children suffering from a psychotic disorder were interviewed. The women, who were recruited through hospitals and self-help groups, represented different socioeconomic levels. A face-to-face standardized interview was conducted, mainly in the participants' homes. Multiple hierarchical regression analysis showed that dimensions of burden and social support were strongly associated with distress reported by the participants. The negative interactions that participants had with their main confidant or spouse constituted a more powerful correlate than their perception of the quality of this relationship. Furthermore, a perception of their own health as poorer is a strong correlate of their distress. Since no control group was studied simultaneously, these results suggest, but do not prove, the presence of differences between mothers of adults with psychotic disorders and other mothers.
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REFERENCES
Arey, S., & Warheit, G. J. (1980). Psychosocial costs of living with psychologically disturbed family members. In L. N. Robins, P. J. Clayton, & J. K. Wing (Eds.), The social consequences of psychiatric illness (pp. 158–175). New York: Brunner/Mazel.
Aronson, J. (1992). Women's sense of responsibility for the care of old people: “But who else is going to do it?” Gender & Society, 6, 8–29.
Avison, W. R., Turner, R. J., Noh, S., & Speechley, K. N. (1993). The impact of caregiving: Comparisons of different family contexts and experiences. In S. H. Zarit, L. I. Pearlin, & K. W. Schaie (Eds.), Caregiving systems: Informal and formal helpers (pp. 75–105). Hillsdale, NJ: Erlbaum.
Bachrach, L. L. (1979). Deinstitutionalization: An analytical review and sociological perspective (DHEW Publication No. ADM 79-351). Rockville, MD: National Institute of Mental Health.
Bachrach, L. L. (1990). Deinstitutionalization and the future: The past as prologue. In N. L. Cohen (Ed.), Psychiatry takes to the street (pp. 273–293). New York: Guilford.
Baines, C. T., Evans, P. M., & Neysmith, S. M. (1991). Caring: Its impact on the lives of women. In C. Baines, P. Evans, & S. Neysmith (Eds.), Women's caring: Feminist perspectives on social welfare (pp. 11–35). Toronto: McClelland & Stewart.
Barnes, G. E., & Toews, J. (1983). Deinstitutionalization of chronic mental patients in the Canadian context. Canadian Psychology, 24, 22–36.
Biegel, D. E., Sales, E., & Schulz, R. (1991). Family caregiving in chronic illness: Alzheimer's disease, cancer, heart disease, mental illness, and stroke, Family Caregiver Applications Series Vol. 1. Newbury Park, CA: Sage.
Boyer, R., Préville, M., Légaré, G., & Valois, P. (1993). La détresse psychologique dans la population du Québec non institutionnalisée: résultats normatifs de l'enquête Santé Québec. Revue Canadienne de Psychiatrie/Canadian Journal of Psychiatry, 38, 339–343.
Brook, R. H., Ware, J. E., Davies-Avery, A., Stewart, A. L., Donald, C. A., Rogers, W. H., Williams, K. N., & Johnston, S. A. (1979). Overview of adult health measures fielded in Rand's Health Insurance Study, Medical Care, 17(Suppl. 7), 1–131.
Cantor, M. H. (1983). Strain among caregivers: A study of experience in the United States. Gerontologist, 23, 596–604.
Cicirelli, V. G. (1988). A measure of filial anxiety regarding anticipated care of elderly parents. Gerontologist, 28, 478–482.
Cohler, B. J., Pickett, S. A., & Cook, J. A. (1991). The psychiatric patient grows older: Issues in family care. In E. Light & B. Lebowitz (Eds.), The elderly with chronic mental illness: Directions for research (pp. 82–110). New York: Springer.
Cook, J. A., Lefley, H. P., Pickett, S., & Cohler, B. J. (1994). Age and family burden among parents of offspring with severe mental illness. American Journal of Orthopsychiatry, 64, 435–447.
Creer, C., Sturt, E., & Wykes, T. (1982). The role of relatives. In J. K. Wing (Ed.), Long-term community care: Experience in a London borough. Psychological Medicine, 12 (Monograph Suppl. 2), 29–39.
Dean, A., & Tausig, M. (1986). Measuring intimate support: The family and confidant relationships. In N. Lin, A. Dean, & W. Ensel (Eds.), Social support, life events, and depression (pp. 117–128). Orlando, FL: Academic Press.
Gibbons, J. S., Horn, S. H., Powell, J. M., & Gibbons, J. L. (1984). Schizophrenic patients and their families: A survey in a psychiatric service based on a DGH unit. British Journal of Psychiatry, 144, 70–77.
Grad, J., & Sainsbury, P. (1968). The effects that patients have on their families in a community care and a control psychiatric service: A two year follow-up. British Journal of Psychiatry, 114, 265–278.
Graham, H. (1983). Caring: A labour of love. In J. Finch & D. Groves (Eds.), A labour of love: Women, work and caring (pp. 13–30) London: Routledge & Kegan Paul.
Gubman, G. D., & Tessler, R. C. (1987). The impact of mental illness on families. Journal of Family Issues, 8, 226–245.
Hair, J. H., Anderson, R. E., & Tatham, R. L. (1987). Multivariate data analysis (2nd ed.). New York: Macmillan.
Hatfield, A. B. (1987). Social support and family coping. In A. B. Hatfield & H. P. Lefley (Eds.), Families of the mentally ill: Coping and adaptation (pp. 191–207). New York: Guilford.
Hoenig, J., & Hamilton, M. W. (1966). The schizophrenic patient in the community and his effect on the household. International Journal of Social Psychiatry, 12, 165–176.
Ilfeld, F. W., Jr. (1976). Further validation of a Psychiatric Symptom Index in a normal population. Psychological Reports, 39, 1215–1228.
Ilfeld, F. W., Jr. (1978). Psychologic status of community residents along major demographic dimensions. Archives of General Psychiatry, 35, 716–724.
Kaplan, B. H. (1975). An epilogue: Toward further research on family and health. In B. H. Kaplan & J. C. Cassel (Eds.), Family and health: An epidemiological approach (pp. 89–103). Chapel Hill: Institute for Research in Social Science, University of North Carolina.
Lefley, H. P. (1987). Aging parents as caregivers of mentally ill adult children: An emerging social problem. Hospital and Community Psychiatry, 38, 1063–1070.
Lin, N. (1986). Conceptualizing social support. In N. Lin, A. Dean, & W. Ensel (Eds.), Social support, life events, and depression (pp. 17–30). Orlando, FL: Academic Press.
Lin, N., Dean, A., & Ensel, W. (Eds.) (1986). Social support, life events, and depression. Orlando: Academic Press.
Lin, N., Dumin, M. Y., & Woelfel, M. (1986). Measuring community and network support. In N. Lin, A. Dean, & W. Ensel (Eds.), Social support, life events, and depression (pp. 153–170). Orlando, FL: Academic Press.
Lyons, J. S., Perrotta, P., & Hancher-Kvam, S. (1988). Perceived social support from friends and from family: Measurement across disparate samples. Journal of Personality Assessment, 52, 42–47.
MacCarthy, B., Lesage, A., Brewin, C. R., Brugha, T. S., Mangen, S., & Wing, J. K. (1989). Needs for care among the relatives of long-term users of day care: A report from the Camberwell High Contact Survey. Psychological Medicine, 19, 725–736.
Maurin, J. T., & Boyd, C. B. (1990). Burden of mental illness on the family: A critical review. Archives of Psychiatric Nursing, 4(2), 99–107.
Montgomery, R. J. V. (1989). Investigating caregiver burden. In K. S. Markides & C. L. Cooper (Eds.), Aging, stress and health (pp. 201–218). Chichester, U. K.: Wiley.
Noh, S. (1984). Living with psychiatric patients: The relationship between family burden and mental health among family members. Unpublished Dissertation Thesis, Department of Epidemiology and Biostatistics. The University of Western Ontario, London.
Noh, S., & Turner, R. J. (1987). Living with psychiatric patients: Implications for the mental health of family members. Social Science and Medicine, 25, 263–271.
Oldridge, M. L., & Hughes, I. C. T. (1992). Psychological well-being in families with a member suffering from schizophrenia. British Journal of Psychiatry, 167, 249–251.
Pai, S., & Kapur, R. L. (1981). The burden on the family of a psychiatric patient: Development of an interview schedule. British Journal of Psychiatry, 138, 332–335.
Parker, G. (1990). With due care and attention. A review of research on informal care (new ed.). London, U. K.: Family Policy Studies Centre.
Parker, G., & Rosen, A. (1989). Life Skills Profile. Randwick, Australia: School of Psychiatry, University of New South Wales.
Parker, G., & Rosen, A., Emdur, N., & Hadzi-Pavlovic, D. (1991). The Life Skills Profile: Psychometric properties of a measure assessing function and disability in schizophrenia. Acta Psychiatrica Scandinavica, 83, 145–152.
Perring, C., Twigg, J., & Atkin, K. (1990). Families caring for people diagnosed as mentally ill: The literature re-examined. London, U.K.: HMSO.
Platt, S. (1985). Measuring the burden of psychiatric illness on the family: An evaluation of some rating scales. Psychological Medicine, 75, 383–393.
Platt, S., Weyman, A., & Hirsch, S. (1983). Social Behaviour Assessment Schedule (SBAS) (3rd ed.). Windsor, U.K.: NFER-Nelson.
Platt, S., Weyman, A., Hirsch, S., & Hewett, S. (1980). The Social Behaviour Assessment Scale (SBAS): Rationale, contents, scoring and reliability of a new interview schedule. Social Psychiatry, 75, 43–55.
Potasznik, H., & Nelson, G. (1984). Stress and social support: The burden experienced by the family of a mentally ill person. American Journal of Community Psychology, 12, 589–607.
Procidano, M. E., & Heller, K. (1983). Measures of Perceived Social Support from Friends and from Family: Three validation studies. American Journal of Community Psychology, 11, 1–24.
Pruchno, R. A., & Resch, N. L. (1989). Husbands and wives as caregivers: Antecedents of depression and burden. Gerontologist, 29, 159–165.
Rauktis, M. E., Koeske, G. F., & Tereshko, O. (1995). Negative social interactions, distress, and depression among those caring for a seriously and persistently mentally ill relative. American Journal of Community Psychology, 23, 279–299.
Robinson, K. M. (1989). Predictors of depression among wife caregivers. Nursing Research, 38, 359–363.
Rosen, A., Hadzi-Pavlovic, D., & Parker, G. (1989). Life Skills Profile: A measure assessing function and disability in schizophrenia. Schizophrenia Bulletin, 15, 325–337.
Santé Québec (1988). Et la santé, ça va? Rapport de l'enquête Santé Québec 1987 (Tome I). Québec: Les Publications du Québec, p. 337.
Schene, A. H. (1990). Objective and subjective dimensions of family burden: Towards an integrative framework of research. Social Psychiatry and Psychiatric Epidemiology, 25, 289–297.
Schulz, R., Tompkins, C. A., Wood, D., & Decker, S. (1987). The social psychology of caregiving: Physical and psychological costs of providing support to the disabled. Journal of Applied Social Psychology, 17, 401–428.
Schuster, T. L., Kessler, R. C., & Aseltine, R. H., Jr. (1990). Supportive interactions, negative interactions, and depressed mood. American Journal of Community Psychology, 18, 423–438.
Scottish Schizophrenia Research Group. (1987). The Scottish first episode schizophrenia study: IV. Psychiatric and social impact on relatives. British Journal of Psychiatry, 150, 340–344.
Scottish Schizophrenia Research Group. (1992). The Scottish first episode schizophrenia study: VIII. Five-year follow-up: Clinical and psychosocial findings. British Journal of Psychiatry, 161, 496–500.
Smith, R. L., Agar, J. W., & Williams, D. L. (1992). Suppressor variables in multiple regression/correlation. Education and Psychological Measurement, 52, 17–29.
Stevens, B. C. (1972). Dependence of schizophrenic patients on elderly relative. Psychological Medicine, 2, 17–32.
Stommel, M., Given, C. W., & Given, B. (1990). Depression as an overriding variable explaining caregiver burdens. Journal of Aging and Health, 2, 81–102.
St-Onge, M., Lavoie, F., & Cormier, H. (1995). Les difficultés perçues par des mères de personnes atteintes de troubles psychotiques face au système de soins professionnels. Santé mentale au Québec, 20(1), 89–118.
Therrien, R. (1990). La désinstitutationnalisation, les malades, les familles et les femmes: des intérêts à concilier. Santé mentale au Québec, 15(1), 100–119.
Thoits, P. A. (1995). Stress, coping, and social support processes: Where are We? What next?. Journal of Health and Social Behavior, 36(Extra Issue) 53–79.
Thompson, E. H., & Doll, W. (1982). The burden of families coping with the mentally ill: An invisible crisis. Family Relations, 31, 379–388.
Turner, R. J. (1983). Direct, indirect, and moderating effects of social support on psychological distress and associated conditions. In H. B. Kaplan (Ed.), Psychosocial stress: Trends in theory and research (pp. 105–155). New York: Academic Press.
Vézina, A. (1988). Le travail et le réseau de support comme facteurs d'adaptation chez les veuves d'âge moyen. Unpublished dissertation thesis, School of Psychology, Laval University, Québec.
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St-Onge, M., Lavoie, F. The Experience of Caregiving Among Mothers of Adults Suffering from Psychotic Disorders: Factors Associated with Their Psychological Distress. Am J Community Psychol 25, 73–94 (1997). https://doi.org/10.1023/A:1024697808899
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DOI: https://doi.org/10.1023/A:1024697808899