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Describing a Process for Creating a Patient Visible Quality Educational Display to Increase Patient Engagement in Radiation Oncology Throughout the Canadian Maritimes Provinces

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Abstract

Here, we report the process for creating a patient visible quality educational display to highlight the collaborative quality working practices of Radiation Oncology clinicians and staff in the main Radiotherapy Centers throughout three Canadian provinces. These processes are often not visible to patients yet they speak directly to the standards of care delivered at these centers. The Canadian Partnership for Quality Radiotherapy (CPQR) Quality Assurance Guidelines for Canadian Radiation Treatment Programs guided this process. The display slides created were approved by the local Radiation Oncology departmental leadership for each participating medical center as well as patient focus groups and revised with feedback from both perspectives. Of 27 patients/families who evaluated the resulting educational patient display, 70% expressed high engagement in the information presented, and 81% felt the display will be of interest to patients receiving radiotherapy treatment. Patients/families surveyed reported that the displayed content made them feel more informed and more comfortable with their treatments. Survey data from this project indicates that increasing transparency and deepening patient education about the quality working practices behind radiotherapy treatments has the potential to empower patients receiving radiotherapy and increase their confidence in the care they are receiving.

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Acknowledgements

The team acknowledges the help and support of Laura Lynn, RTT, and Steeves Laura-Lynn, from Horizon Health Network, in New Brunswick for their help in the designing of the project.

Funding

This research did not receive any specific grant from funding agencies in the public, commercial, or not-for-profit sectors.

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Authors and Affiliations

  1. Department of Radiation Oncology, Dalhousie University, Halifax, Canada

    Kathryn Moran, David Bowes, Lara Best, Amanda Cherpak & Gabriela Ilie

  2. Nova Scotia Health Authority, Halifax, Canada

    Kathryn Moran, Lisa Sinclair, Lisa Peters, David Bowes, Lara Best, Amanda Cherpak, Meagan Darling, Tracy Day & Jill Trask

  3. Prince Edward Island Cancer Treatment Centre, Charlottetown, Canada

    Stephanie Freire

  4. Department of Physics and Atmospheric Sciences, Dalhousie University, Halifax, Canada

    Amanda Cherpak

  5. Department of Community Health and Epidemiology, Dalhousie University, Halifax, Canada

    Gabriela Ilie

  6. Department of Urology, Dalhousie University, Halifax, Canada

    Gabriela Ilie

  7. Radiation Oncology, Urology and Community Health and Epidemiology, Faculty of Medicine, QEII, 5790 University Street, Unit 401, Halifax, NS, Canada

    Gabriela Ilie

Authors
  1. Kathryn Moran
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  2. Lisa Sinclair
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  3. Stephanie Freire
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  4. Lisa Peters
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  5. David Bowes
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  6. Lara Best
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  7. Amanda Cherpak
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  8. Meagan Darling
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  9. Tracy Day
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  10. Jill Trask
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  11. Gabriela Ilie
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Corresponding author

Correspondence to Gabriela Ilie.

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Moran, K., Sinclair, L., Freire, S. et al. Describing a Process for Creating a Patient Visible Quality Educational Display to Increase Patient Engagement in Radiation Oncology Throughout the Canadian Maritimes Provinces. J Canc Educ 34, 973–999 (2019). https://doi.org/10.1007/s13187-018-1402-0

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  • DOI: https://doi.org/10.1007/s13187-018-1402-0

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