Abstract
This short report contributes to the expanding body of qualitative research literature about the cognitive processes of newly diagnosed cancer patients as they adjust to a diagnosis of cancer. The study is based on secondary qualitative analysis of audio records collected as part of a larger NIH study (RO1D: An Interdisciplinary Perspective: A Social Science Examination of Oncofertility RL1 HD058296). Core categories illustrate the processes of “naming it,” “dealing with dealing with it,” and finding the “new norm” and were based on nine patient experiences. We observe that our substantive conceptual categories have equivalents in bereavement and grief literature where researchers have posited the theory that processing the diagnosis of a terminal illness is the equivalent to adjusting to a bereavement. These findings emphasize the importance of understanding real-time patient thoughts and feelings as soon after diagnosis as was possible with full patient consent.
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Key Points
• Newly diagnosed cancer patients have to make immediate decisions about their care.
• Decision-making is impacted by feelings of anxiety, grief, numbness, stress, and fear.
• Patient capacity for adjusting to their new health status following diagnosis is unknown.
• Adjustment processes are described by patients in three core ways: naming it, dealing with it, and finding the new norm.
• Grief theory has the potential to enable clinicians to model adjustment processes and their associated emotions, and measure patient capacity for decision-making at time of diagnosis
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Emanuel, L., Johnson, R. & Taromino, C. Adjusting to a Diagnosis of Cancer: Processes for Building Patient Capacity for Decision-Making. J Canc Educ 32, 491–495 (2017). https://doi.org/10.1007/s13187-016-1008-3
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DOI: https://doi.org/10.1007/s13187-016-1008-3