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Kyari: Mothering Autism

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Abstract

The plan of the paper is to study autism spectrum disorder (ASD) in children as complex conditions that affect cognitive, emotional, social, and physical health. Broadly tracing the medical journey of the condition, it addresses the challenges faced by parents as they make sense of, and navigate their way through the appearance of early symptoms, impediments in correct diagnosis, acceptance, and adapt to live with the condition. The paper attempts to understand autism in medical and neurological terms, as well as the challenges faced by children and parents through the case study of Kyari (meaning a flower bed), a lone centre providing accessible autism care in about 150 km around Moradabad (west UP, India), which has been instrumental in raising an awareness of autism and has a reach that is unprecedented in the city in bringing sensitive autism intervention. It further comprehensively studies the symptoms of ASD, and the role of augmentative and alternative communication, behaviour modification, and the work of organisations like the Centre for Autism, CBSE mandate for inclusive education as applied in the case and Indian government policy for autism.

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References

  • Bernier, R., & Gerdts, J. (2010). Autism Spectrum Disorders: A reference handbook. ABC Clio.

  • Chauhan, A., Sahu, J. K., Jaiswal, N., Kumar, K., Agarwal, A., Kaur, J., Singh, S., & Singh, M. (2019). Prevalence of Autism Spectrum Disorder in Indian children: A systematic review and meta-analysis. Neurology India, 67, 100–104. https://doi.org/10.4103/0028-3886.253970

    Article  PubMed  Google Scholar 

  • Connors, S. L. (2008). Prenatal b2-adrenergic receptor signaling and autism: Dysmaturation and retained fetal function. Autism: Current Theories and Evidence 66, 147–182. https://doi.org/10.1007/978-1-60327-489-0

  • Cumine, V., Dunlop, J., & Stevenson, G. (2010). Autism in the early years: A practical guide (2nd edn.). Routledge

  • Folstein, S., & Rutter, M. (1977). Infantile autism: A genetic of 21 twin pairs. Journal of Child Psychology and Psychiatry, 18(4), 297–321. https://doi.org/10.1111/j.1469-7610.1977.tb00443.x

    Article  PubMed  Google Scholar 

  • Frith, U. (2008). Autism: A very short introduction. Oxford University Press.

  • Grandin, T., & Scariano, M. M. (2005). Emergence: Labeled autistic. Warner Book.

  • Inclusive Education. (2020). Action for autism. autism-india.org/inclusive-education.php. Accessed 07 May 2020.

  • Keller, F., Panteri, R., Biamonte, F. (2008) Interaction between genetic vulnerability and neurosteroids in Purkinje cells as a possible neurobiological mechanism in autism spectrum disorders. Autism: Current Theories and Evidence 66, 209–231. https://doi.org/10.1007/978-1-60327-489-0

  • McCarthy, J. (2007). Louder than words. Dutton.

  • Rehabilitation Council of India. (2020). Rehabcouncil.nic.in/writereaddata/autism.pdf. Accessed 10 May 2020.

  • Related Conditions. (2020). Action for autism. autism-india.org/related-conditions.php. Accessed 07 May 2020.

  • Rossman, I. T., DiCicco-Bloom, E (2008). Engrailed and cerebellar development in the pathogenesis of Autism Spectrum Disorders.. Autism: Current Theories and Evidence. 6, 66. https://doi.org/10.1007/978-1-60327-489-0

  • Stone, F. (2001). Autism—The eight colour of the rainbow. Jessica Kingsley Publishers.

    Google Scholar 

  • Understanding Autism Spectrum Disorder. (2020). Centre for Autism. centreforautism.com/resources/understanding-autism/. Accessed 15 May 2020.

  • What’s New. (2020). Action for autism. centreforautism.com/resources/understanding-autism/. Accessed on 08 May2020.

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  1. Government Polytechnic, Chandausi, India

    Sadia Hasan

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  1. Sadia Hasan
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Correspondence to Sadia Hasan.

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Hasan, S. Kyari: Mothering Autism. Psychol Stud (2024). https://doi.org/10.1007/s12646-024-00784-4

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