Jagsi R, Pottow JA, Griffith KA, Bradley C, Hamilton AS, Graff J, et al. Long-term financial burden of breast cancer: experiences of a diverse cohort of survivors identified through population-based registries. J Clin Oncol. 2014;32(12):1269–76. https://doi.org/10.1200/JCO.2013.53.0956.
Bernard DS, Farr SL, Fang Z. National estimates of out-of-pocket health care expenditure burdens among nonelderly adults with cancer: 2001 to 2008. J Clin Oncol. 2011;29(20):2821–6. https://doi.org/10.1200/JCO.2010.33.0522.
Guy GP, Yabroff KR, Ekwueme DU, Virgo KS, Han X, Banegas MP, et al. Healthcare expenditure burden among non-elderly cancer survivors, 2008–2012. Am J Prev Med. 2015;49(6):S489–S97. https://doi.org/10.1016/j.amepre.2015.09.002.
Zafar SY. Financial toxicity of cancer care: it’s time to intervene. J Natl Cancer Inst. 2016;108(5):djv370. https://doi.org/10.1093/jnci/djv370.
Zafar SY, Abernethy AP. Financial toxicity, part I: a new name for a growing problem. Oncology (Williston Park). 2013;27(2):80–1. 149
Zafar SY, Peppercorn JM, Schrag D, Taylor DH, Goetzinger AM, Zhong X, et al. The financial toxicity of cancer treatment: a pilot study assessing out-of-pocket expenses and the insured cancer patient's experience. Oncologist. 2013;18(4):381–90. https://doi.org/10.1634/theoncologist.2012-0279.
Arozullah AM, Calhoun EA, Wolf M, Finley D, Fitzner KA, Heckinger EA, et al. The financial burden of cancer: estimates from a study of insured women with breast cancer. J Support Oncol. 2004;2(3):271–8.
Pisu M, Azuero A, McNees P, Burkhardt J, Benz R, Meneses K. The out of pocket cost of breast cancer survivors: a review. J Cancer Surviv. 2010;4(3):202–9. https://doi.org/10.1007/s11764-010-0125-y.
Finkelstein EA, Tangka FK, Trogdon JG, Sabatino SA, Richardson LC. The personal financial burden of cancer for the working-aged population. 2009.
Latremouille-Viau D, Chang J, Guerin A, Shi S, Wang E, Yu J, et al. The economic burden of common adverse events associated with metastatic colorectal cancer treatment in the United States. J Med Econ. 2017;20(1):54–62. https://doi.org/10.1080/13696998.2016.1225577.
Narang AK, Nicholas LH. Out-of-pocket spending and financial burden among medicare beneficiaries with cancer. JAMA Oncology. 2016;
Barron JJ, Quimbo R, Nikam PT, Amonkar MM. Assessing the economic burden of breast cancer in a US managed care population. Breast Cancer Res Treat. 2008;109(2):367–77. https://doi.org/10.1007/s10549-007-9650-4.
Pisu M, Azuero A, Benz R, McNees P, Meneses K. Out-of-pocket costs and burden among rural breast cancer survivors. Cancer Med. 2017;6(3):572–81. https://doi.org/10.1002/cam4.1017.
Altice CK, Banegas MP, Tucker-Seeley RD, Yabroff KR. Financial hardships experienced by cancer survivors: a systematic review. J Natl Cancer Inst. 2017;109(2):djw205. https://doi.org/10.1093/jnci/djw205.
Banegas MP, Guy GP, de Moor JS, Ekwueme DU, Virgo KS, Kent EE, et al. For working-age cancer survivors, medical debt and bankruptcy create financial hardships. Health Aff. 2016;35(1):54–61. https://doi.org/10.1377/hlthaff.2015.0830.
Ramsey S, Blough D, Kirchhoff A, Kreizenbeck K, Fedorenko C, Snell K, et al. Washington State cancer patients found to be at greater risk for bankruptcy than people without a cancer diagnosis. Health Aff. 2013;32(6):1143–52. https://doi.org/10.1377/hlthaff.2012.1263.
Ramsey SD, Bansal A, Fedorenko CR, Blough DK, Overstreet KA, Shankaran V, et al. Financial insolvency as a risk factor for early mortality among patients with cancer. J Clin Oncol. 2016;34(9):980–6. https://doi.org/10.1200/JCO.2015.64.6620.
Shih Y-CT XY, Cormier JN, Giordano S, Ridner SH, Buchholz TA, et al. Incidence, treatment costs, and complications of lymphedema after breast cancer among women of working age: a 2-year follow-up study. J Clin Oncol. 2009;27(12):2007–14. https://doi.org/10.1200/JCO.2008.18.3517.
Bennett CL, Calhoun EA. Evaluating the total costs of chemotherapy-induced febrile neutropenia: results from a pilot study with community oncology cancer patients. Oncologist. 2007;12(4):478–83. https://doi.org/10.1634/theoncologist.12-4-478.
Schmitz KH, DiSipio T, Gordon LG, Hayes SC. Adverse breast cancer treatment effects: the economic case for making rehabilitative programs standard of care. Support Care Cancer. 2015;23(6):1807–17. https://doi.org/10.1007/s00520-014-2539-y.
Schnur JB, Zivin JG, Mattson DM Jr, Green S, Jandorf LH, Wernicke AG, et al. Acute skin toxicity-related, out-of-pocket expenses in patients with breast cancer treated with external beam radiotherapy. Support Care Cancer. 2012;20(12):3105–13. https://doi.org/10.1007/s00520-012-1435-6.
Bilir SP et al. Economic burden of toxicities associated with treating metastatic melanoma in the United States. Am Health Drug Benefits. 2016;9(4):203–13.
Irwin DE, Masaquel A, Johnston S, Barnett B. Adverse event-related costs for systemic metastatic breast cancer treatment among female Medicaid beneficiaries. J Med Econ. 2016;19(11):1027–33. https://doi.org/10.1080/13696998.2016.1192548.
Hansen RN, Ramsey SD, Lalla D, Masaquel A, Kamath T, Brammer M, et al. Identification and cost of adverse events in metastatic breast cancer in taxane and capecitabine based regimens. Spring. 2014;3(1):259. https://doi.org/10.1186/2193-1801-3-259.
Hurvitz S, Guerin A, Brammer M, Guardino E, Zhou Z-Y, Viau DL, et al. Investigation of adverse-event-related costs for patients with metastatic breast cancer in a real-world setting. Oncologist. 2014;19(9):901–8. https://doi.org/10.1634/theoncologist.2014-0059.
Rashid N, Koh HA, Baca HC, Lin KJ, Malecha SE, Masaquel A. Economic burden related to chemotherapy-related adverse events in patients with metastatic breast cancer in an integrated health care system. Breast Cancer Targets Ther. 2016;8:173. https://doi.org/10.2147/BCTT.S105618.
Davidoff AJ, Erten M, Shaffer T, Shoemaker JS, Zuckerman IH, Pandya N, et al. Out-of-pocket health care expenditure burden for Medicare beneficiaries with cancer. Cancer. 2013;119(6):1257–65. https://doi.org/10.1002/cncr.27848.
Tucker-Seeley RD, Yabroff KR. Minimizing the “financial toxicity” associated with cancer care: advancing the research agenda. J Natl Cancer Inst. 2016;108(5):djv410. https://doi.org/10.1093/jnci/djv410.
Cheng K, Wong W, Koh C. Unmet needs mediate the relationship between symptoms and quality of life in breast cancer survivors. Support Care Cancer. 2016;24(5):2025–33. https://doi.org/10.1007/s00520-015-2994-0.
Meeker CR, Geynisman DM, Egleston BL, Hall MJ, Mechanic KY, Bilusic M, et al. Relationships among financial distress, emotional distress, and overall distress in insured patients with cancer. J Oncol Pract. 2016:JOPR011049;12(7):e755–64. https://doi.org/10.1200/JOP.2016.011049.
de Souza JA, Yap BJ, Wroblewski K, Blinder V, Araujo FS, Hlubocky FJ, et al. Measuring financial toxicity as a clinically relevant patient-reported outcome: the validation of the COmprehensive Score for financial Toxicity. Cancer. 2016;123(3):476–84. https://doi.org/10.1002/cncr.30369.
de Jong M, Tamminga SJ, Frings-Dresen MHW, de Boer AGEM. Quality of Working Life of cancer survivors: associations with health- and work-related variables. Support Care Cancer. 2017;25(5):1475–84. https://doi.org/10.1007/s00520-016-3549-8.
Kale HP, Carroll NV. Self-reported financial burden of cancer care and its effect on physical and mental health-related quality of life among US cancer survivors. Cancer. 2016;122(8):283–9. https://doi.org/10.1002/cncr.29808.
Souza JA, Yap BJ, Hlubocky FJ, Wroblewski K, Ratain MJ, Cella D, et al. The development of a financial toxicity patient-reported outcome in cancer: the COST measure. Cancer. 2014;120(20):3245–53. https://doi.org/10.1002/cncr.28814.
Pisu M, Azuero A, Meneses K, Burkhardt J, McNees P. Out of pocket cost comparison between Caucasian and minority breast cancer survivors in the Breast Cancer Education Intervention (BCEI). Breast Cancer Res Treat. 2011;127(2):521–9. https://doi.org/10.1007/s10549-010-1225-0.
Timmons A, Gooberman-Hill R, Sharp L. “It’s at a time in your life when you are most vulnerable”: a qualitative exploration of the financial impact of a cancer diagnosis and implications for financial protection in health. PLoS One. 2013;8(11):e77549. https://doi.org/10.1371/journal.pone.0077549.
Oatis W, Nonzee N, Markossian T, Shankaran V, McKoy J, Evens A, et al. Interpreting out-of-pocket expenditures for cancer patients: the importance of considering baseline household income information. J Clin Oncol. 2009;27(15S):6541. https://doi.org/10.1200/jco.2009.27.15s.6541
Richardson T, Elliott P, Roberts R. The relationship between personal unsecured debt and mental and physical health: a systematic review and meta-analysis. Clin Psychol Rev. 2013;33(8):1148–62. https://doi.org/10.1016/j.cpr.2013.08.009.
Turunen E, Hiilamo H. Health effects of indebtedness: a systematic review. BMC Public Health. 2014;14(1):489. https://doi.org/10.1186/1471-2458-14-489.
Israel S, Caspi A, Belsky DW, Harrington H, Hogan S, Houts R, et al. Credit scores, cardiovascular disease risk, and human capital. Proc Natl Acad Sci U S A. 2014;111(48):17087–92. https://doi.org/10.1073/pnas.1409794111.
Li Y, Gao J, Enkavi AZ, Zaval L, Weber EU, Johnson EJ. Sound credit scores and financial decisions despite cognitive aging. Proc Natl Acad Sci. 2015;112(1):65–9. https://doi.org/10.1073/pnas.1413570112.
Brockett PL, Golden LL. Biological and psychobehavioral correlates of credit scores and automobile insurance losses: toward an explication of why credit scoring works. J Risk Insur. 2007;74(1):23–63. https://doi.org/10.1111/j.1539-6975.2007.00201.x.
Houle JN, Collins JM, Schmeiser MD. Flu and finances: influenza outbreaks and loan defaults in US cities, 2004–2012. Am J Public Health. 2015;105(9):e75–80. https://doi.org/10.2105/AJPH.2015.302671.
Lee Y, Song I. A study on the economic factor associated with suicide: debt and suicide ideation. Mental Health Soc Work. 2015;43(1):58–82.
Stegman MA, Quercia RG, Ratcliffe J, Ding L, Davis WR. Preventive servicing is good for business and affordable homeownership policy. Housing Policy Debate. 2007;18(2):243–78. https://doi.org/10.1080/10511482.2007.9521600.
Schmitz KH, Ahmed RL, Troxel AB, Cheville A, Lewis-Grant L, Smith R, et al. Weight lifting for women at risk for breast cancer–related lymphedema: a randomized trial. JAMA. 2010;304(24):2699–705. https://doi.org/10.1001/jama.2010.1837.
Schmitz KH, Troxel AB, Cheville A, Grant LL, Bryan CJ, Gross CR, et al. Physical Activity and Lymphedema (the PAL trial): assessing the safety of progressive strength training in breast cancer survivors. Contemp Clin Trials. 2009;30(3):233–45. https://doi.org/10.1016/j.cct.2009.01.001.
Patterson RE, Colditz GA, Hu FB, Schmitz KH, Ahima RS, Brownson RC, et al. The 2011–2016 Transdisciplinary Research on Energetics and Cancer (TREC) initiative: rationale and design. Cancer Causes Control. 2013;24(4):695–704. https://doi.org/10.1007/s10552-013-0150-z.
Adler N, Singh-Manoux A, Schwartz J, Stewart J, Matthews K, Marmot MG. Social status and health: a comparison of British civil servants in Whitehall-II with European-and African-Americans in CARDIA. Soc Sci Med. 2008;66(5):1034–45. https://doi.org/10.1016/j.socscimed.2007.11.031.
Berkman L, Macintyre S. The measurement of social class in health studies: old measures and new formulations. IARC Sci Publ. 1997;138(51)
Oberst K, Bradley CJ, Schenk M. Breast and prostate cancer patient’s reliability of treatment reporting. J Registry Manag. 2008;36(1):12–5.
Gordon L, Scuffham P, Hayes S, Newman B. Exploring the economic impact of breast cancers during the 18 months following diagnosis. Psycho Onocol. 2007;16(12):1130–9. https://doi.org/10.1002/pon.1182.
Given BA, Given CW, Stommel M. Family and out of pocket costs for women with breast cancer. Cancer Pract. 1994;2(3):187–93.
Ware JE Jr, Kosinski M, Keller SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care. 1996;34(3):220–33. https://doi.org/10.1097/00005650-199603000-00003.
Cohen S, Williamson G. Perceived stress in a probability sample of the US. In: Spacapam S, Oskamp S, editors. The social psychology of health: Claremont symposium on applied social psychology. Newbury Park, CA: Sage; 1988.
Ware JE KM, Keller SD. SF-12: how to score the SF-12 Physical and Mental Health Summary Scales, Second Edition. Boston, MA 1995.
Cohen S, JANICKI-DEVERTS D. Who’s stressed? Distributions of psychological stress in the United States in probability samples from 1983, 2006, and 20091. J Appl Soc Psychol. 2012;42(6):1320–34. https://doi.org/10.1111/j.1559-1816.2012.00900.x.
Darby K, Davis C, Likes W, Bell J. Exploring the financial impact of breast cancer for African American medically underserved women: a qualitative study. J Health Care Poor Underserved. 2009;20(3):721–8. https://doi.org/10.1353/hpu.0.0176.
De Boer AG, Taskila T, Ojajärvi A, van Dijk FJ, Verbeek JH. Cancer survivors and unemployment: a meta-analysis and meta-regression. JAMA. 2009;301(7):753–62. https://doi.org/10.1001/jama.2009.187.
Yin W, Horblyuk R, Perkins JJ, Sison S, Smith G, Snider JT, et al. Association between breast cancer disease progression and workplace productivity in the United States. J Occup Environ Med. 2017;59(2):198–204. https://doi.org/10.1097/JOM.0000000000000936.
Hasegawa T, Goto N, Matsumoto N, Sasaki Y, Ishiguro T, Kuzuya N, et al. Prevalence of unmet needs and correlated factors in advanced-stage cancer patients receiving rehabilitation. Support Care Cancer. 2016;24(11):4761–7. https://doi.org/10.1007/s00520-016-3327-7.
Bower JEG, Patricia A. Symptoms: fatigue and cognitive function. In: Ganz PA, editor. Improving outcomes for breast cancer survivors. Springer; 2015. p. 53–76.
Solís CB, Fantin R, Castagné R, Lang T, Delpierre C, Kelly-Irving M. Mediating pathways between parental socio-economic position and allostatic load in mid-life: findings from the 1958 British birth cohort. Soc Sci Med. 2016;165:19–27. https://doi.org/10.1016/j.socscimed.2016.07.031.
Centers for Disease Control and Prevention. Behavioral Risk Factor Surveillance System 2016 Summary Data Quality Report2017 29 June 2017.
Khera N, Holland JC, Griffin JM. Setting the stage for universal financial distress screening in routine cancer care. Cancer. 2017;123(21):4092–6. https://doi.org/10.1002/cncr.30940.