Abstract
Background
The prevalence of functional impairment is increasing among middle-aged adults and is associated with adverse health outcomes. Primary care providers (PCPs) and geriatricians may have important insights about optimal approaches to caring for these patients, but little is known about their perspectives.
Objective
To examine PCPs’ and geriatricians’ perspectives on clinical needs and optimal approaches to care for middle-aged patients with functional impairment.
Design
Qualitative study using semi-structured interviews.
Participants
PCPs and geriatricians from outpatient practices in the San Francisco Bay area.
Approach
Interviews focused on characteristics and care needs of middle-aged patients with functional impairment and models of care to address these needs. We analyzed interviews using hybrid deductive-inductive qualitative thematic analysis.
Key Results
Clinicians (14 PCPs, 15 geriatricians) described distinct characteristics of functional impairment in middle-aged versus older adults, such as different rates of onset, but similar clinical needs. Despite these similar needs, clinicians identified age-specific barriers to delivering optimal care to middle-aged patients. These included system-level challenges such as limited access to insurance and social services; practice- and clinician-level barriers including inadequate clinician training; and patient-level factors including less access to family caregivers and perceptions of stigma. To overcome these challenges, clinicians suggested clinical approaches including addressing health-related social needs within healthcare systems; implementing practice-based models that are multi-disciplinary, team-based, and coordinated; training clinicians to effectively manage functional impairment; and expanding community-based services and supports to help patients navigate the medical system. Identified needs, challenges, and solutions were generally similar across geriatricians and PCPs.
Conclusions
Clinicians face challenges in delivering optimal care to middle-aged patients who have functional impairments similar to their older counterparts but lack access to services and supports available to older people. These findings suggest the importance of increasing access to care models that address functional impairment regardless of age.
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References
Case A, Deaton A. Mortality and morbidity in the 21st century. Brookings Pap Econ Act. 2017;2017:397–476. https://doi.org/10.1353/eca.2017.0005
Case A, Deaton A. Rising morbidity and mortality in midlife among white non-Hispanic Americans in the 21st century. Proc Natl Acad Sci U S A. 2015;112(49):15078-83.
Martin LG, Freedman VA, Schoeni RF, Andreski PM. Trends in disability and related chronic conditions among people ages fifty to sixty-four. Health Aff (Millwood). 2010;29(4):725-31.
Zajacova A, Montez JK. Explaining the increasing disability prevalence among mid-life US adults, 2002 to 2016. Soc Sci Med. 2018;211:1-8.
Martin LG, Schoeni RF. Trends in disability and related chronic conditions among the forty-and-over population: 1997-2010. Disabil Health J. 2014;7(1 Suppl):S4-14.
Freedman VA, Spillman BC, Andreski PM, et al. Trends in late-life activity limitations in the United States: an update from five national surveys. Demography. 2013;50(2):661-71.
Martin LG, Freedman VA, Schoeni RF, Andreski PM. Health and functioning among baby boomers approaching 60. J Gerontol B Psychol Sci Soc Sci. 2009;64(3):369-77.
Liu M, Aggarwal R, Zheng Z, et al. Cardiovascular health of middle-aged U.S. adults by income level, 1999 to March 2020: a serial cross-sectional study. Ann Intern Med. 2023;176(12):1595-1605.
Loeb DF, Bayliss EA, Candrian C, Degruy FV, Binswanger IA. Primary care providers’ experiences caring for complex patients in primary care: a qualitative study. BMC Fam Pract. 2016;17(1):34.
Xu E, Nicosia FM, Zamora K, et al. When functional impairment develops early: perspectives from middle-aged adults. J Gen Intern Med. 2023;38(1):90-97.
Rippon I, Steptoe A. Feeling old vs being old: associations between self-perceived age and mortality. JAMA Intern Med. 2015;175(2):307-9.
Hagestad GO. On-time, off-time, out of time? Reflections on continuity and discontinuity from an illness process. In: Bengtson VL, editor. Adulthood and Aging: Research on Continuities and Discontinuities. New York: Springer Publishing Company; 1996. p. 204–22.
Neugarten BL. Continuities and discontinuities of psychological issues into adult life. Human Development. 1969;12(2):121-30.
Palinkas LA, Horwitz SM, Green CA, Wisdom JP, Duan N, Hoagwood K. Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Adm Policy Ment Health. 2015;42(5):533-44.
O’Reilly M, Parker N. ‘Unsatisfactory saturation’: a critical exploration of the notion of saturated sample sizes in qualitative research. Qual Res. 2013;13(2):190-7.
Thorogood N, Green J. Qualitative methods for health research. 4th ed. London: SAGE; 2018.
Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: a hybrid approach of inductive and deductive coding and theme development. Int J Qual Methods. 2006;5(1):80-92.
Roberts K, Dowell A, Nie JB. Attempting rigour and replicability in thematic analysis of qualitative research data: a case study of codebook development. BMC Med Res Methodol. 2019;19(1):66.
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101.
Brown RT, Diaz-Ramirez LG, Boscardin WJ, Lee SJ, Williams BA, Steinman MA. Association of functional impairment in middle age with hospitalization, nursing home admission, and death. JAMA Intern Med. 2019;179(5):668-675.
Brown RT, Diaz-Ramirez LG, Boscardin WJ, Lee SJ, Steinman MA. Functional impairment and decline in middle age: a cohort study. Ann Intern Med. 2017;167(11):761-8.
Hardy SE, Gill TM. Recovery from disability among community-dwelling older persons. JAMA. 2004;291(13):1596-602.
Karvonen-Gutierrez CA. The importance of disability as a health issue for mid-life women. Womens Midlife Health. 2015;1(1):10.
van Houwelingen AH, Cameron ID, Gussekloo J, et al. Disability transitions in the oldest old in the general population. The Leiden 85-plus study. Age (Dordr). 2014;36(1):483-93.
Ylitalo KR, Karvonen-Gutierrez CA, Fitzgerald N, et al. Relationship of race-ethnicity, body mass index, and economic strain with longitudinal self-report of physical functioning: the Study of Women’s Health Across the Nation. Ann Epidemiol. 2013;23(7):401-8.
Galvin RD. Researching the disabled identity: contextualising the identity transformations which accompany the onset of impairment. Sociol Health Illn. Apr 2005;27(3):393-413.
Dewar A. Protecting strategies used by sufferers of catastrophic illnesses and injuries. J Clin Nurs. 2001;10(5):600-8.
Dunn DS, Burcaw S. Disability identity: exploring narrative accounts of disability. Rehabil Psychol. 2013;58(2):148-57.
Trost Z, Agtarap S, Scott W, et al. Perceived injustice after traumatic injury: Associations with pain, psychological distress, and quality of life outcomes 12 months after injury. Rehabil Psychol. 2015;60(3):213-221.
Silverman AM, Cohen GL. Stereotypes as stumbling-blocks: how coping with stereotype threat affects life outcomes for people with physical disabilities. Pers Soc Psychol Bull. 2014;40(10):1330-40.
Riley D, de Anda D, Blackaller CA. The self-perceptions and interpersonal relationships of persons with significant physical disabilities: a qualitative pilot study. J Soc Work Disabil Rehabil. 2007;6(3):1-31.
Forber-Pratt AJ, Lye DA, Mueller C, Samples LB. Disability identity development: a systematic review of the literature. Rehabil Psychol. 2017;62(2):198-207.
Pallesen H. Body, coping and self-identity. A qualitative 5-year follow-up study of stroke. Disabil Rehabil. 2014;36(3):232-41.
Long P, Abrams M, Milstein A, et al. Effective care for high-need patients: opportunities for improving outcomes, value, and health. Washington, DC: National Academy of Medicine. 2017.
Hayes SL, Salzberg CA, McCarthy D, et al. High-need, high-cost patients: who are they and how do they use health care? A population-based comparison of demographics, health care use, and expenditures. Issue Brief (Commonw Fund). 2016;26:1-14.
Bleich SN, Sherrod C, Chiang A, Boyd C, Wolff J, DuGoff E, Salzberg C, Anderson K, Leff B, Anderson G. Systematic Review of Programs Treating High-Need and High-Cost People With Multiple Chronic Diseases or Disabilities in the United States, 2008-2014. Prev Chronic Dis. 2015;12:E197.
Boult C, Green AF, Boult LB, Pacala JT, Snyder C, Leff B. Successful models of comprehensive care for older adults with chronic conditions: evidence for the Institute of Medicine’s “retooling for an aging America” report. J Am Geriatr Soc. 2009;57(12):2328-38.
McNabney MK, Green AR, Burke M, et al. Complexities of care: common components of models of care in geriatrics. J Am Geriatr Soc. 2022;70(7):1960-72.
McNabney MK, Fitzgerald P, Pedulla J, Phifer M, Nash M, Kinosian B. The Program of All-Inclusive Care for the Elderly: an update after 25 years of permanent provider status. J Am Med Dir Assoc. 2022;23(12):1893-9.
Szanton SL, Leff B, Wolff JL, Roberts L, Gitlin LN. Home-based care program reduces disability and promotes aging in place. Health Aff. 2016;35(9):1558-63.
Brown RT, Pierluissi E, Guzman D, et al. Functional disability in late-middle-aged and older adults admitted to a safety-net hospital. J Am Geriatr Soc. 2014;62(11):2056-63.
Centers for Medicare & Medicaid Services. Program of All-Inclusive Care for the Elderly (PACE). Available at: https://www.medicaid.gov/medicaid/long-term-services-supports/program-all-inclusive-care-elderly/index.html. Accessed on 9 June 2023
Ritchie C, Andersen R, Eng J, et al. Implementation of an interdisciplinary, team-based complex care support health care model at an academic medical center: impact on health care utilization and quality of life. PLoS One. 2016;11(2):e0148096.
Henwood BF, Semborski S, Pitts DB, et al. A pilot randomized controlled trial of CAPABLE in permanent supportive housing for formerly homeless adults. J Am Geriatr Soc. 2023;71(5):1587-94.
Funding
This work was supported by the National Institute on Aging at the National Institutes of Health (grant numbers K23AG045290 and K76AG057016 to Brown and grant number K24AG067003 to Karliner) and the American Federation for Aging Research (grant number K76AG057016 to Brown). These funding sources had no role in the preparation, review, or approval of the manuscript. Dr. Brown is an employee of the Veterans Health Administration. The opinions expressed in this manuscript may not represent those of the Department of Veterans Affairs. SFBayCRN resources used for this study were supported by the National Center for Advancing Translational Sciences, National Institutes of Health, through UCSF-CTSI Grant Number UL1 TR001872. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the NIH.
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Schmucker, A.M., Reyes-Farias, D., Nicosia, F.M. et al. Caring for Patients with Functional Impairment in Middle Age: Perspectives from Primary Care Providers and Geriatricians. J GEN INTERN MED (2024). https://doi.org/10.1007/s11606-024-08701-1
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DOI: https://doi.org/10.1007/s11606-024-08701-1