Abstract
Sexuality and intimate relationships are topics of interest to adolescents and young adults with Autism Spectrum Disorder (ASD). Given their relative difficulties to the social dimension, several intervention programs have been developed to meet this demand, but the complexity of the reality experienced by these young people limits the effectiveness of these intervention programs. To find the effects of different intervention programs to influence the development of sexuality and sexual health of adolescents with ASD and determine the impact of these interventions on the parents, through a systematic review. Literature review conducted on November 27, 2019 in the psycINFO, Pubmed, web of science and CINAHL databases. Intervention programs consisting solely of teaching sessions improve the knowledge of the youth. However, when they also included a direct approach or homework, behavioral effects were also observable. Parent-focused intervention programs resulted in a slight increase in parents’ comfort level and ability to interact well with their youth. Intervention programs targeting school-based workers appear to have a limited effect, having good concrete results with youth for some workers and no results for others, while intervention programs targeting health professionals have no conclusive results. The results of the literature review are not very transferable to practice because of the low level of evidence in the articles included, however, they offer an interesting starting point. Further research is needed to equip health professionals to intervene in sexuality after youth with ASD.
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Complete tables of the systematic review are available if necessary, under request to the corresponding author.
References
Beckwith, A., Yau, M.K.S.: Sexual recovery: experiences of women with spinal injury reconstructing a positive sexual identity. Sex. Disabil. 31(4), 313–324 (2013). https://doi.org/10.1007/s11195-013-9315-7
Brown-Lavoie, S., Viecili, M., Weiss, J.: Sexual knowledge and victimization in adults with autism spectrum disorders. J. Autism Dev. Disord. 44(9), 2185–2196 (2014). https://doi.org/10.1007/s10803-014-2093-y
Corona, L., Fox, S., Christodulu, K., Worlock, J.: Providing education on sexuality and relationships to adolescents with autism spectrum disorder and their parents. Sex. Disabil. 34(2), 199–214 (2016). https://doi.org/10.1007/s11195-015-9424-6
Curtiss, S., Ebata, A.: Building capacity to deliver sex education to individuals with autism. Sex. Disabil. 34(1), 27–47 (2016). https://doi.org/10.1007/s11195-016-9429-9
Dekker, L., Vegt, E., Visser, K., Tick, N., Boudesteijn, F., Verhulst, F., Greaves-Lord, K.: Improving psychosexual knowledge in adolescents with autism spectrum disorder: pilot of the tackling teenage training program. J. Autism Dev. Disord. 45(6), 1532–1540 (2015). https://doi.org/10.1007/s10803-014-2301-9
Fédération Québécoise de l’autisme.: L’autisme en chiffres. Repéré à: http://www.autisme.qc.ca/tsa/lautisme-en-chiffres.html (2018)
Gianotten, W.L., Bender, J.L., Post, M.W., Höing, M.: Training in sexology for medical and paramedical professionals: a model for the rehabilitation setting. Sex. Relatsh. Ther. 21(3), 303–317 (2006). https://doi.org/10.1080/14681990600754559
Griffin-Shelley, E.: An asperger’s adolescent sex addict, sex offender: a case study. Sex. Addict. Compuls. 17(1), 46–64 (2010). https://doi.org/10.1080/10720161003646450
Hannah, L., Stagg, S.: Experiences of sex education and sexual awareness in young adults with autism spectrum disorder. J. Autism Dev. Disord. 46(12), 3678–3687 (2016). https://doi.org/10.1007/s10803-016-2906-2
Hatton, S., Tector, A.: Sexuality and relationship education for young people with autistic spectrum disorder: curriculum change and staff support. Br. J. Spec. Educ. 37(2), 69–76 (2010). https://doi.org/10.1111/j.1467-8578.2010.00466.x
Hong, Q.N., Pluye, P., Fàbregues, S., Bartlett, G., Boardman, F., Cargo, M., O’Cathain A.: Mixed methods appraisal tool (MMAT), version 2018. IC Canadian Intellectual Property Office, Canada (2018). Repéré à http://mixedmethodsappraisaltoolpublic.pbworks.com/w/file/fetch/127916259/MMAT_2018_criteria-manual_2018-08-01_ENG.pdf (2018)
Institut National de Santé du Québec.: Surveillance du trouble du spectre de l’autisme au Québec. Repéré à: https://www.inspq.qc.ca/sites/default/files/publications/2310_surveillance_trouble_spectre_autisme.pdf (2017)
Klett, L.S., Turan, Y.: Generalized effects of social stories with task analysis for teaching menstrual care to three young girls with autism. Sex. Disabil. 30(3), 319–336 (2012). https://doi.org/10.1007/s11195-011-9244-2
Loftin, R.L., Hartlage, A.S.: Sex education, sexual health, and autism spectrum disorder. Pediatr. Ther. (2015). https://doi.org/10.4172/2161-0665.1000230
McGrath, M., Lynch, E.: Occupational therapists’ perspectives on addressing sexual concerns of older adults in the context of rehabilitation. Disabil. Rehabil. Int. Multidiscip. J. 36(8), 651–657 (2014). https://doi.org/10.3109/09638288.2013.805823
Ministère du Québec. : La santé et ses déterminants: mieux comprendre pour mieux agir. Repéré à http://publications.msss.gouv.qc.ca/msss/fichiers/2011/11-202-06.pdf (2012)
Nichols, S., Blakeley-Smith, A.: “I’m not sure we’re ready for this”: working with families toward facilitating healthy sexuality for individuals with autism spectrum disorders. Soc. Work. Ment. Health 8(1), 72–91 (2010). https://doi.org/10.1080/15332980902932383
Noreau, L., Noonan, V.K., Cobb, J., Leblond, J., Dumont, F.S.: Spinal cord injury community survey: a national, comprehensive study to portray the lives of canadians with spinal cord injury. Top. Spinal Cord Inj. Rehabil. 20(4), 249–264 (2014). https://doi.org/10.1310/sci2004-249
Organisation Mondial de la Santé. : Sexual and reproductive health (2006). Repéré à https://www.who.int/reproductivehealth/topics/sexual_health/sh_definitions/en/
Pask, L., Hughes, T.L., Sutton, L.R.: Sexual knowledge acquisition and retention for individuals with autism. Int. J. Sch. Educ. Psychol. 4(2), 86–94 (2016). https://doi.org/10.1080/21683603.2016.1130579
Pritchard, D., Graham, N., Penney, H., Owen, G., Peters, S., Mace, F.C.: Multi-component behavioural intervention reduces harmful sexual behaviour in a 17-year-old male with autism spectrum disorder: a case study. J. Sex. Aggress. 22(3), 368–378 (2016). https://doi.org/10.1080/13552600.2015.1130269
Stefanos, P., Maria, G., Elias, K.: Asperger syndrome and sexuality: intervention issues in a case of an adolescent with asperger syndrome in a context of a special educational setting. Procedia Soc. Behav. Sci. 15, 490–495 (2011)
Taillefer, L., Hénault, I., Langlois, L., Pommier, C., Prévos, M.J.: CONTEXTE THÉORIQUE: lignes directrices en matière de sexualité pour les personnes présentant une déficience intellectuelle (DI) ou une DI et un trouble du spectre de l’autisme (TSA). Retrived from the site of l’IUSMQ de Montréal https://www.laressource.ca/images/ressources/Lignes-directrices-v-longue-FR.pdf (2015)
Tissot, C.: Establishing a sexual identity: case studies of learners with autism and learning difficulties. Autism 13(6), 551–566 (2009). https://doi.org/10.1177/1362361309338183
Visser, K., Greaves-Lord, K., Tick, N.T., Verhulst, F.C., Maras, A., van der Vegt, E.J.M.: A randomized controlled trial to examine the effects of the tackling teenage psychosexual training program for adolescents with autism spectrum disorder. J. Child Psychol. Psychiatry 58(7), 840–850 (2017). https://doi.org/10.1111/jcpp.12709
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Picard-Pageau, W., Morales, E. Interventions on Sexuality for Adolescents with Autism Spectrum Disorder: A Systematic Review. Sex Disabil 40, 599–622 (2022). https://doi.org/10.1007/s11195-022-09737-z
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DOI: https://doi.org/10.1007/s11195-022-09737-z