Abstract
Prejudices still surround the issue of sexuality of persons with intellectual disability (ID), both in families and in the professional community. To assess attitudes of parents, professionals and the general population towards the sexuality of persons with ID, so that appropriate sexual education could be introduced and implemented with persons with ID. We used Attitudes to Sexuality Questionnaire—Individuals with an Intellectual Disability, with a questionnaire on general demographic data. Attitudes of professionals on the sexuality of persons with ID mainly show conservative viewpoints; parents feel unprepared to educate their children on the subject of sexuality. Attitudes on sexuality of persons with ID are important to consider since they can provide valuable clues as to the direction in which educational programs should be moving in order to have an effect on achieving a better quality of life for persons with ID.
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References
Ailey, S.H., Marks, B.A., Crisp, C., Hahn, J.E.: Promoting sexuality across the life span for individuals with intellectual and developmental disabilities. Nurs. Clin. 38(2), 229–252 (2003)
Haynes, A.: An investigation into parental attitudes about sexuality and children with intellectual disabilities. Doctoral dissertation, City University of Seattle (2016)
Pownall, J.D., Jahoda, A., Hastings, R.P.: Sexuality and sex education of adolescents with intellectual disability: mothers’ attitudes, experiences, and support needs. Intellect. Dev. Disabil. 50(2), 140–154 (2012)
Ballan, M.: Parents as sexuality educators for their children with developmental disabilities. SIECUS Rep. 29(3), 14 (2001)
Frawley, P., Wilson, N.J.: Young people with intellectual disability talking about sexuality education and information. Sex. Disabil. 34(4), 469–484 (2016)
Lesseliers, J.: A right to sexuality? Br. J. Learn. Disabil. 27(4), 137–140 (1999)
Murphy, G.H., O’Callaghan, A.: Capacity of adults with intellectual disabilities to consent to sexual relationships. Psychol. Med. 34(7), 1347–1357 (2004)
Siebelink, E.M., de Jong, M.D., Taal, E., Roelvink, L.: Sexuality and people with intellectual disabilities: assessment of knowledge, attitudes, experiences, and needs. Ment. Retard. 44(4), 283–294 (2006)
Leutar, Z., Mihoković, M.: Level of knowledge about sexuality of people with mental disabilities. Sex. Disabil. 25(3), 93–109 (2007)
Kelly, G., Crowley, H., Hamilton, C.: Rights, sexuality and relationships in Ireland: ‘it’d be nice to be kind of trusted’. Br. J. Learn. Disabil. 37(4), 308–315 (2009)
Healy, E., McGuire, B.E., Evans, D.S., Carley, S.N.: Sexuality and personal relationships for people with an intellectual disability. Part I: service-user perspectives. J. Intellect. Disabil. Res. 53(11), 905–912 (2009)
McCarthy, M.: Contraception and women with intellectual disabilities. J. Appl. Res. Intellect. Disabil. 22(4), 363–369 (2009)
Yacoub, E., Hall, I.: The sexual lives of men with mild learning disability: a qualitative study. Br. J. Learn. Disabil. 37(1), 5–11 (2009)
Egemo-Helm, K.R., Miltenberger, R.G., Knudson, P., Finstrom, N., Jostad, C., Johnson, B.: An evaluation of in situ training to teach sexual abuse prevention skills to women with mental retardation. Behav. Interv. 22(2), 99–119 (2007)
Khemka, I., Hickson, L., Reynolds, G.: Evaluation of a decision-making curriculum designed to empower women with mental retardation to resist abuse. Am. J. Ment. Retard. 110(3), 193–204 (2005)
Hayashi, M., Arakida, M., Ohashi, K.: The effectiveness of a sex education program facilitating social skills for people with intellectual disability in Japan. J. Intellect. Dev. Disabil. 36(1), 11–19 (2011)
Bratković, D.: Edukacija o spolnosti osoba s mentalnom retardacijom, Priručnik, Zagreb, Hrvatski savez udruga za osobe s mentalnom retardacijom (2000)
Grossberg, M.: From feeble-minded to mentally retarded: child protection and the changing place of disabled children in the mid-twentieth century United States. Paedagog. Hist. 47(6), 729–747 (2011)
Rohleder, P.: Educators’ ambivalence and managing anxiety in providing sex education for people with learning disabilities. Psychodyn. Pract. 16(2), 165–182 (2010)
Abbott, D., Howarth, J.: Still off-limits? Staff views on supporting gay, lesbian and bisexual people with intellectual disabilities to develop sexual and intimate relationships? J. Appl. Res. Intellect. Disabil. 20(2), 116–126 (2007)
Meaney-Tavares, R., Gavidia-Payne, S.: Staff characteristics and attitudes towards the sexuality of people with intellectual disability. J. Intellect. Dev. Disabil. 37(3), 269–273 (2012)
Schaafsma, D., Kok, G., Stoffelen, J.M., Van Doorn, P., Curfs, L.M.: Identifying the important factors associated with teaching sex education to people with intellectual disability: a cross-sectional survey among paid care staff. J. Intellect. Dev. Disabil. 39(2), 157–166 (2014)
Cuskelly, M., Gilmore, L.: Attitudes to sexuality questionnaire (individuals with an intellectual disability): scale development and community norms. J. Intellect. Dev. Disabil. 32(3), 214–221 (2007)
Elias, J., Ryan, A.: A review and commentary on the factors that influence expressions of sexuality by older people in care homes. J. Clin. Nurs. 20(11–12), 1668–1676 (2011)
Ruane, J., Hayter, M.: Nurses’ attitudes towards sexual relationships between patients in high security psychiatric hospitals in England: an exploratory qualitative study. Int. J. Nurs. Stud. 45(12), 1731–1741 (2008)
Esmail, S., Darry, K., Walter, A., Knupp, H.: Attitudes and perceptions towards disability and sexuality. Disabil. Rehabil. 32(14), 1148–1155 (2010)
Berman, H., Harris, D., Enright, R., Gilpin, M., Cathers, T., Bukovy, G.: Sexuality and the adolescent with a physical disability: understandings and misunderstandings. Issues Compr. Pediatr. Nurs. 22(4), 183–196 (1999)
Goodman, L., Budner, S., Lesh, B.: The parents’ role in sex education for the retarded. Ment. Retard. 9(1), 43–45 (1971)
Gilmore, L., Chambers, B.: Intellectual disability and sexuality: attitudes of disability support staff and leisure industry employees. J. Intellect. Dev. Disabil. 35(1), 22–28 (2010)
Aunos, M., Feldman, M.A.: Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. J. Appl. Res. Intellect. Disabil. 15(4), 285–296 (2002)
Bazzo, G., Nota, L., Soresi, S., Ferrari, L., Minnes, P.: Attitudes of social service providers towards the sexuality of individuals with intellectual disability. J. Appl. Res. Intellect. Disabil. 20(2), 110–115 (2007)
Brantlinger, E.: Measuring variation and change in attitudes of residential care staff toward the sexuality of mentally retarded persons. Ment. Retard. 21(1), 17 (1983)
Christian, L., Stinson, J., Dotson, L.A.: Staff values regarding the sexual expression of women with developmental disabilities. Sex. Disabil. 19(4), 283–291 (2001)
Cuskelly, M., Bryde, R.: Attitudes towards the sexuality of adults with an intellectual disability: parents, support staff, and a community sample. J. Intellect. Dev. Disabil. 29(3), 255–264 (2004)
Murray, J.L., Minnes, P.M.: Staff attitudes towards the sexuality of persons with intellectual disability. Aust. N. Z. J. Dev. Disabil. 19(1), 45–52 (1994)
Owen, F.A., Griffiths, D.M., Feldman, M.A., Sales, C., Richards, D.A.: Perceptions of acceptable boundaries by persons with developmental disabilities and their care providers. J. Devel. Disabil. 7(1), 34–49 (2000)
Wolfe, P.S.: The influence of personal values on issues of sexuality and disability. Sex. Disabil. 15(2), 69–90 (1997)
Wilson, C.D., Taylor, J.A., Kowalski, S.M., Carlson, J.: The relative effects and equity of inquiry-based and commonplace science teaching on students’ knowledge, reasoning, and argumentation. J. Res. Sci. Teach. 47(3), 276–301 (2010)
Mitchell, L., Doctor, R.M., Butler, D.C.: Attitudes of caretakers toward the sexual behavior of mentally retarded persons. Am. J. Ment. Defic. 83(3), 289–296 (1978)
Tugut, N., Golbasi, Z., Erenel, A.S., Koc, G., Ucar, T.: A multicenter study of nursing students’ perspectives on the sexuality of people with disabilities. Sex. Disabil. 34(4), 433–442 (2016)
Oliver, M.N., Anthony, A., Leimkuhl, T.T., Skillman, G.D.: Attitudes toward acceptable socio-sexual behaviors for persons with mental retardation: implications for normalization and community integration. Educ. Train. Ment. Retard. Dev. Disabil. 37, 193–201 (2002)
Yool, L., Langdon, P.E., Garner, K.: The attitudes of medium-secure unit staff toward the sexuality of adults with learning disabilities. Sex. Disabil. 21(2), 137–150 (2003)
Grieve, A., McLaren, S., Lindsay, W., Culling, E.: Staff attitudes towards the sexuality of people with learning disabilities: a comparison of different professional groups and residential facilities. Br. J. Learn. Disabil. 37(1), 76–84 (2009)
Winges-Yanez, N.: Why all the talk about sex? An autoethnography identifying the troubling discourse of sexuality and intellectual disability. Sex. Disabil. 32(1), 107–116 (2014)
Finlay, W.M., Rohleder, P., Taylor, N., Culfear, H.: ‘Understanding’as a practical issue in sexual health education for people with intellectual disabilities: a study using two qualitative methods. Health Psychol. 34(4), 328 (2015)
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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
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Informed consent was obtained from all individual participants included in the study. All participants gave written consent noting that consent. Filling out the questionnaire and the results will have no impact on their further treatment as well as the treatment of their children when it came to the parents. Filling in the questionnaire was anonymous.
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Tamas, D., Brkic Jovanovic, N., Rajic, M. et al. Professionals, Parents and the General Public: Attitudes Towards the Sexuality of Persons with Intellectual Disability. Sex Disabil 37, 245–258 (2019). https://doi.org/10.1007/s11195-018-09555-2
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DOI: https://doi.org/10.1007/s11195-018-09555-2