Abstract
The sexuality of people with disabilities is often conceptualized as asexual. Furthermore, public discourse regards people with disabilities as highly prone to sexual abuse. The few studies that contemplate on parents’ of people with intellectual disability (ID) point of view uncover the parents’ perceptions towards their offspring’s sexuality. Therefore, the purpose of this study was to examine the sexuality of adolescents with ID from their parents perceptions. The study was conducted using a phenomenological approach and included 21 in-depth, semi-structured interviews with parents of adolescents with ID. The interviews were analyzed using thematic analysis. Parents’ perceptions of their children’s sexuality and their involvement concerning sexuality reveal dilemmas and tensions that remain unresolved. Although some parents did tend to treat their children’s sexuality as non-normative and as a source of problems and thus ignored, prevented, and limited their children’s sexual expressions, other parents presented different perspectives, acknowledging the sexuality of adolescents with ID and their right to express it. The findings also reveal a new and exciting insight related to the conceptual space of physical contact between parents and children, which moves between physical expressions of love and care and feelings of prohibited sexuality. Professionals working with people with ID and their families should be allowed to create a professional dialogue that would enable the discussion and clarification of the dilemmas and challenges related to the subject.
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Author Iris Manor-Binyamini and Michal Schreiber-Divon declares that they have no conflict of interest.
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Appendices
Appendices
Appendix 1: Interview guide
Demographic background of the parents: age, gender, education, source of income,
Demographic background of the adolescents with ID: age, gender, primary disability, education framework
- 1.
Tell me about you and your child.
- 2.
Tell me about your history and experiences with your child around the subject of sexuality.
- 3.
Tell me about signs and: physical expressions of sexuality, emotional expressions of sexuality, behavioral expressions of sexuality.
- 4.
Did you or do you have any concerns about your child’s sexuality.
- 5.
Tell me about the way that you have been dealing with the subject of your child’s sexuality.
- 6.
Did your child receive sex education (at school, in another framework)?
Appendix 2: An example of the data analysis procedure
Tell me about signs or physical expressions of sexuality, from your experience, with your child, things that you’ve seen, that you’ve experienced.
M, 17: “From the age of about 17… It started… all kinds of little behaviors of him, changed…Slowly I realized…
I’m aware of that fact that he pleasures himself, | masturbation |
He goes into his room more and more, sometimes he shuts the door and sometimes he forgets I see him in his room covering himself | takes place at home |
With a blanket” | embarrassment? |
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Manor-Binyamini, I., Schreiber-Divon, M. Parental Perceptions of the Sexuality of Adolescents with Intellectual Disabilities. Sex Disabil 37, 599–612 (2019). https://doi.org/10.1007/s11195-019-09586-3
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DOI: https://doi.org/10.1007/s11195-019-09586-3