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Sexual Recovery: Experiences of Women with Spinal Injury Reconstructing a Positive Sexual Identity

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Abstract

Current literature reports women with spinal injury feel concerned about body image, self-esteem, social perceptions of people in wheelchairs, practical issues in expressing sexuality, and the inadequacy of sexual rehabilitation. Through the first author’s personal experience and reflection, a need was identified to share their experiences in the journey of sexual recovery. The study aims to build on the current literature from an Australian and peer’s perspective. The objectives were to document the experiences of women with spinal injury reconstructing their sexual identity and identify the barriers and information they received on sexual rehabilitation. A descriptive study involving seven semi-structured interviews were employed and narrative analysis was conducted along with the authors’ critical reflections. The participants had acquired spinal injuries of various levels ranging from 4 to 39 years ago. Four themes were identified: (1) loss; (2) sexual rehabilitation and information gathering; (3) external factors; and (4) sexual recovery/discovery. The narratives of the participants demonstrated the barriers faced and the process of developing a sexual identity post-injury. Positive and negative factors were identified in each theme, which have the potential to be addressed and molded into a positive sexual identity. Women with spinal injury want access to more information on sexuality as it is experienced post-injury. Future research is required to look at developing resources and the strategies in which they can be delivered to facilitate a timely positive adjustment.

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Acknowledgments

The authors would like to thank the time, openness and honesty in discussions provided by all the participants. This study was funded by the James Cook University

Conflict of interest

The authors have full control of all primary data and agree to the journal, Sexuality and Disability, reviewing the data if requested.

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Correspondence to Matthew Kwai-sang Yau.

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Beckwith, A., Yau, M.Ks. Sexual Recovery: Experiences of Women with Spinal Injury Reconstructing a Positive Sexual Identity. Sex Disabil 31, 313–324 (2013). https://doi.org/10.1007/s11195-013-9315-7

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