Abstract
Introduction Distinctions between disease and illness have been criticized for being too theoretical. In practice, however, it may help explain gaps in understanding and miscommunication between health care professionals and patients/injured workers, since each has their own perception of reality. To reduce the gap between health care professionals and patients in understanding the definition of disease, this paper documents general representations of health, illness and work-related musculoskeletal disorders and their influence on the work rehabilitation program. Methods A qualitative methodology was used. Semi-structured interviews were conducted with 16 participants (male, female) recruited when they were starting an intensive interdisciplinary work rehabilitation program for chronic pain due to a musculoskeletal disorder. Interviews were performed at three points during the program and 1 month after discharge. Results First, participants described health and illness in terms of: (1) illness prototype; (2) the absence or presence of symptoms; (3) physical health and capacities; (4) engaging in a healthy lifestyle; (5) maintaining independence; (6) preserving mental well-being; and (7) healing from accidents or injuries. A second observation was that rehabilitation success depended on workers transitioning from a less mechanistic to a more functional view of health. Conclusion This study highlights the importance of identifying and acknowledging workers’ health, illness and WRMSD representations to facilitate their return to work.
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References
Rivero-Arias O, Campbell H, Gray A, Fairbank J, Frost H, Wilson-MacDonald J. Surgical stabilisation of the spine compared with a programme of intensive rehabilitation for the management of patients with chronic low back pain: cost utility analysis based on a randomised controlled trial. British Med J. 2005;330:1239–45.
Henderson M, Glozier N, Elliott KH. Long term sickness absence. British Med J. 2005;330:802–3.
Commission de la Santé et Sécurité au Travail. Statistiques sur les affections vertébrales, 1998–2001. Québec: CSST; 2002.
Eisenberg L. Disease and illness. Distinctions between professional and popular ideas of sickness. Cul Med Psychiatr. 1977;1(1):9–23.
Law I, Widdows H. Conceptualising health: insights form the capability approach. Health Care Anal. 2008;16:303–14.
Courvoisier LM, Mauron A. He found me very well; for me, I was still feeling sick’: the strange worlds of physicians and patients in the 18th and 21st centuries. J Med Ethics: Med Hum. 2002;28:9–13.
Coutu MF, Baril R, Durand MJ, Côté D, Rouleau A, Cadieux G. Transforming the meaning of pain: an important step for the return to work. WORK: J Prev Assess Rehabil. 2010;35:209–19.
Svensson T, Karlsson A, Alexanderson K, Nordqvist C. Shame-inducing encounters. Negative emotional aspects of sickness-absentees’ interactions with rehabilitation professionals. J Occup Rehabil. 2003;13(3):183–95.
Beutler LE. David and Goliath: when empirical and clinical standards of practice meet. Am Psychol. 2000;55(9):997–1007.
Massé R. Culture et santé publique. Boucherville: Gaëtan Morin; 1995.
Abric J-C. La recherche du noyau central et de la zone muette des représentations sociales. In: Abric J-C, editor. Méthodes d’étude des représentations sociales. Ramonville Saint-Agne: Eres; 2003. p. 59–80.
Jodelet D. Les représentations sociales dans le champ des sciences humaines. Paris: France Presses, Universitaires de France; 1989. Les représentations sociales.
Twaddle AC. Health decisions and sick role variations: an exploration. J Health Soc Behav. 1969;10(2):105–15.
Bishop GD. Understanding the understanding of illness: lay disease representations. In: Skelton JA, Croyle RT, editors. The mental representation of health and illnbess: models and applications. NY: Verlag; 1991. p. 32–59.
Baumann LJ, Cameron LD, Zimmerman RS, Leventhal H. Illness representations and matching labels with symptoms. Health Psychol. 1989;8(4):449–69.
Meyer D, Leventhal H, Gutmann M. Common-sense models of illness: the example of hypertension. Health Psychol. 1985;4:115–35.
Easterling DV, Leventhal H. Contribution of concrete cognition to emotion: neutral symptoms as elicitors of worry about cancer. J Appl Psychol. 1989;74(5):787–96.
Croyle RT, Jemmott IJB. Psychological reaction to risk factor testing. In: Skelton JA, Croyle RT, editors. Mental representation in health and illness. NY: Verlag; 1991. p. 85–107.
Beaton DE, Tarasuk JN, Katz JN, Wright JG, Bombardier C. Are you better? A qualitative study of the meaning of recovery. Arth Care Res. 2001;45:270–9.
Mora PA, Robitaille C, Leventhal H, Swigar M, Leventhal EA. Trait negative affect relates to prior-week symptoms, but not to reports of illness episodes, illness symptoms, and care seeking among older persons. Psychosom Med. 2002;64:436–49.
Scheier MF, Carver CS. Goals and confidence as self-regulatory elements underlying health and illness behavior. In: Cameron L, Leventhal H, editors. The self-regulation of health and illness behavior. NY: Routledge; 2003. p. 17–41.
Coutu MF, Durand MJ, Baril R, Labrecque ME, Ngomo S, Côté D, et al. A review of assessment tools of illness representations: are these adapted for a work disability prevention context? J Occup Rehabil. 2008;18(4):347–61.
Coutu MF, Baril R, Durand MJ, Côté D, Rouleau A. Representations: an important key to understanding workers’ coping behaviours during rehabilitation and the return-to-work process. J Occup Rehabil. 2007;17(3):522–44.
Fortin F, Côté J, Filion F, editors. Les devis de recherche non expérimentaux. In: Fondement et étapes du processus de recherche. Montréal: Chenelière éducation; 2006. p. 188–207.
Hadjistavropoulos HD, Craig KD. Acute and chronic low back pain: cognitive, affective, and behavioral dimensions. J Consult Clin Psychol. 1994;62(2):341–9.
Durand MJ, Vachon B, Loisel P, Berthelette D. Constructing the program impact theory for an evidence-based work rehabilitation program for workers with low back pain. WORK: J Prevent Assess Rehabilitation. 2003;21(3):233–42.
Loisel P, Abenhaim L, Durand P, Esdaile JM, Suissa S, Gosselin L, et al. A population-based, randomized clinical trial on back pain management. Spine. 1997;22(24):2911–8.
Loisel P, Gosselin L, Durand P, Lemaire J, Poitras S, Abenhaim L. Implementation of a participatory ergonomics program in the rehabilitation of workers suffering from subacute back pain. Appl Ergon. 2001;32(1):53–60.
Leventhal H, Brissette I, Leventhal EA. The common sense model of self-regulation of health and illness. In: In Cameron L, Leventhal H, editors. The self-regulation of health and illness behaviour. London: Routledge; 2003. p. 42–65.
Leventhal H, Meyer D, Gutmann M, Haynes RB, Mattson ME, Engebretson O. The role of theory in the study of compliance to high blood pressure regimens. In: Anonymous, editor. Patient compliance to prescribed antihypertensive medication regimens: a report to the National Heart Lung and Blood Institute (NIH publication no. 81–2102). Washington, DC: US Department of Health and Human Services; 1980.
Lloyd KR, Jacob KS, Patel V, Louis L, Bhugra D, Mann AH. The development of the short explanatory model interview and its use among primary-care attenders with common mental disorders. Psychol Med. 1998;28(5):123–7.
Weiss M. Explanatory model interview catalogue: framework for comparative study of illness. Transcult Psychiatr. 1997;34(6):235–63.
Kleinman A. Patients and healers in the context of culture: an exploration of the borderland between anthropology, medicine, and psychiatry. Berkeley: University of California Press; 1980. (Comparative studies of health systems and medical care; no. 3).
Loisel P, Durand MJ, Baril R, Langley A, Falardeau M. Décider pour faciliter le retour au travail: étude exploratoire sur les dimensions de la prise de décision dans une équipe interdisciplinaire de réadaptation au travail. Montréal: Institut de recherche Robert-Sauvé en santé et sécurité au travail; 2004.
Muhr T. ATLAS/ti: a prototype for the support of text interpretation. Qual Sociol. 1991;14(4):349–71.
Strauss AL, Corbin JM. Grounded theory in practice. Thousand Oaks: Sage Publications; 1997.
Landry R. L’analyse de contenu. In: Gauthier B, editor. Recherche sociale de la problématique à la collecte de données. Québec: Presses de l’Université du Québec; 1997. p. 329–56.
Radley A, Billig M. Accounts of health and illness: dilemmes and representations. Sociol Health Illn. 1996;18(2):220–40.
Canguilhem G. Le normal et le pathologique, augmenté de Nouvelles réflexions concernant le normal et le pathologique. Paris: Presses universitaires de France/Quadrige; 1966.
Herzlich C. Santé et maladie : analyse d’une représentation sociale. Paris: Mouton; 1969.
Bibeau G, Pelletier L. Le discours sur la santé et la maladie dans deux populations de la ville de Québec. Ottawa: Musées nationaux du Canada; 1985.
Pierret J. Les significations sociales de la santé: Paris, L’Essonne, L’Hereault. In: Augé M, Herzlich C, editors. Le sens du mal: anthopologie, histoire, sociologie de la maladie. Paris: Éditions des archives contemporaines; 1984. p. 217–56.
Iwama MK, Thomson NA, Macdonald RM. The Kawa model: the power of culturally responsive occupational therapy. Disabil Rehabil. 2009;31(14):1125–35.
Kondo T. Cultural tensions in occupational therapy practice: considerations from a Japanese vantage point. Am J Occup Ther. 2004;58(2):174–84.
Horne R. Treatment perceptions and self-regulation. In: Cameron L, Leventhal H, editors. The self-regulation of health and illness behavior. NY: Routledge; 2003. p. 138–54.
Diefenbach MA, Leventhal H. The common sense model of illness representation: theoretical and practical considerations. J Soc Distress Homeless. 1996;5:11–38.
Horne R, Weinman J. Predicting treatment adherence: an overview of theoretical models. In: Myers LB, Midence K, editors. Adherence to treatment in medical conditions. Amsterdam: Harwood Academic; 1998. p. 25–50.
Broadbent E, Petriea KJ, Maina J, Weinman J. The brief illness perception questionnaire. J Psychosom Res. 2006;60(6):631–7.
Leventhal H, Mora PA. Is there a science of the processes underlying health and illness behaviours? A comment of Maes and Karoly. Appl Psychol. 2005;54(2):255–66.
Flick U. La perception quotidienne de la santé et de la maladie. Aperçu général et introduction. In: Flick U, editor. La perception quotidienne de la santé et de la maladie. Théories subjectives et représentations sociales. Paris: L’Harmattan; 1993. p. 11–71.
Guba EG, Lincoln YS, editors. Chapter 1: the coming of age of evaluation. In: Fourth generation evaluation. Newbury Park: Sage Publications; 1988. p. 22–49.
Laperrière A. Les critères de scientificité des méthodes qualitatives. In: Poupart J, Deslauriers J-P, Groulx L-H, Laperrière A, Mayer R, Pires A, editors. La recherche qualitative. Enjeux épistémologiques et méthodologiques. Montreal: Gaëtan Morin; 1997. p. 365–88.
Miles BM, Huberman AM. Analyse des données qualitatives. 2nd ed. Brussells: De Boeck Université; 2003.
Acknowledgments
This study was made possible through the participation of workers on long-term absences from work. Their commitment to the project was demonstrated on more than one occasion by their ready availability for the interviews. This study was supported by a joint grant from the Institut de recherché Robert-Sauvé en santé et en sécurité du travail (IRSST) and the Chaire de recherche en réadaptatin au travail J. Armand Bombardier and Pratt & Whitney Canada. MFC and MJD also wish to thank the Fonds de Recherche en Santé du Canada for their salary awards.
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Coutu, MF., Baril, R., Durand, MJ. et al. Health and Illness Representations of Workers with a Musculoskeletal Disorder-Related Work Disability During Work Rehabilitation: A Qualitative Study. J Occup Rehabil 21, 591–600 (2011). https://doi.org/10.1007/s10926-011-9311-7
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DOI: https://doi.org/10.1007/s10926-011-9311-7