Abstract
Children from families with low income are at an increased risk of developmental delays. While early interventions are effective in supporting the development of these children, families with low income often face barriers to accessing suitable interventions. The aim of this paper was to apply a participatory codevelopment process to produce a tool adapted for families with low income that informs parents about early child development and strengthens their capacity to create a stimulating learning environment at home. The objectives were to identify 1) the prioritized needs for parental information (tool content) and 2) the most appropriate format to reach our target population (tool format). Parents, pediatric healthcare professionals, community workers, managers and scientific advisers participated in a two-phase consensus-seeking process (Technique of Research of Information by Animation of a Group of Experts (TRIAGE)) to reach an agreement regarding the tool content and format. The participants unanimously decided to present information about red flags, referral sources, support resources and autonomy development strategies in an original, appealing, and accessible format of a life-size growth chart. The developed tool, named Roots to Bloom, can be used in primary healthcare and community settings to support interventions aimed at preventing developmental delays. This study reinforced the effectiveness of the TRIAGE method in enabling a group of stakeholders to reach a consensus.
Highlights
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Optimally, tools to support child development should be developed to be accessible to all families.
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The TRIAGE method is effective in enabling a heterogeneous group of stakeholders to reach a consensus.
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Parents may benefit from strategies to foster the development of their children’s autonomy as part of their daily routines.
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Parents concerned about their children’s development may benefit from information to navigate healthcare systems.
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Strategies to promote research participation among families with low income are needed.
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Funding
This project was funded by the Social Sciences and Humanities Research Council, the Fonds du Département de réadaptation de l’Université Laval, the Institut universitaire en déficience intellectuelle et en trouble du spectre de l’autisme, and the Center for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS).
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All authors Contributed to the study conception and design. Material preparation, data collection, and analysis were performed by B.O., E.C., and M.G. The first draft of the manuscript was written by B.O. and all authors commented on previous versions of the manuscript. All authors read and approved the final manuscript.
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This study was performed in line with the principles of the declaration of Helsinki. Ethics approval was given by the Comité d’éthique de la recherche avec des êtres humains de l’Université Laval (#2019-006).
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Freely given, informed consent to participate in the study was obtained from all participants. More specifically, all participants signed a consent form describing the intended contribution and specifying the potential positive and negative consequences of their participation. They were free to end their participation in the study at any time.
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Ouellet, B., Grandisson, M. & Careau, E. Parent-Professional Codevelopment of a Tool to Stimulate Children’s Development at Home: The TRIAGE Method. J Child Fam Stud 31, 321–334 (2022). https://doi.org/10.1007/s10826-021-02030-1
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DOI: https://doi.org/10.1007/s10826-021-02030-1