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Interventions to Improve the Mental Health of Mothers of Children with a Disability: Systematic Review, Meta-analysis and Description of Interventions

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Abstract

To investigate the effectiveness of interventions that aim to improve the mental health of mothers of children with disabilities. Seven databases were searched. Interventions incorporated primarily cognitive-behavioural, psychoeducation, mindfulness or support-group approaches. The Template-for-Intervention-Description-and-Replication guided descriptions. Meta-analyses using a random effect model of randomized controlled trials assessed intervention effects on parenting stress and mental health. Of the 1591 retrieved papers, 31 met criteria to be appraised and 17 were included in the meta-analysis. Cognitive-behavioural approaches reduced parenting stress [2 studies, n = 64, pooled Standardized-Mean-Difference (SMD) = 0.86, 95% CI (0.43, 1.29)] and improved mental health [3 studies, n = 186, pooled SMD = 1.14, 95% CI (0.12, 2.17)], psychoeducation approaches improved mental health [2 studies, n = 165, SMD = 0.60, 95% CI (0.17, 1.03)]. Cognitive-behavioural and psychoeducation interventions are effective. Further research and clinical guidelines are warranted.

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References

  • Anclair, M., & Hiltunen, A. J. (2014). Cognitive behavioral therapy for stress-related problems: Two single-case studies of parents of children with disabilities. Clinical Case Studies, 13(6), 472–486. https://doi.org/10.1177/1534650114522090.

    Article  Google Scholar 

  • Anclair, M., Hjarthag, F., & Hiltunen, A. J. (2017). Cognitive behavioural therapy and mindfulness for Health-Related Quality of Life: Comparing treatments for parents of children with chronic conditions-A pilot feasibility study. Clinical Practice and Epidemiology in Mental Health, 13, 1–9. https://doi.org/10.2174/1745017901713010001.

    Article  PubMed  PubMed Central  Google Scholar 

  • Arakkathara, J. G., & Blance, L. O. (2019). Promotion of wellbeing, resilience and stress management (POWER): An intervention ofor mothers of children with intellectual disability, a pilot study. Indian Journal of Positive Psychology, 10(4), 294–299.

    Google Scholar 

  • Armijo-Olivo, S., Stiles, C. R., Hagen, N. A., Biondo, P. D., & Cummings, G. G. (2012). Assessment of study quality for systematic reviews: A comparison of the Cochrane Collaboration Risk of Bias Tool and the Effective Public Health Practice Project Quality Assessment tool: Methodological research. Journal of Evaluation in Clinical Practice, 18(1), 12–18. https://doi.org/10.1111/j.1365-2753.2010.01516.x.

    Article  PubMed  Google Scholar 

  • Baker, K., Devine, R. T., Ng-Cordell, E., Raymond, F. L., & Hughes, C. (2020). Childhood intellectual disability and parents’ mental health: Integrating social, psychological and genetic influences. The British Journal of Psychiatry. https://doi.org/10.1192/bjp.2020.38.

    Article  PubMed  Google Scholar 

  • Barlow, J., Smailagic, N., Huband, N., Roloff, V., & Bennett, C. (2014). Group-based parent training programmes for improving parental psychosocial health. Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD002020.pub4.

    Article  Google Scholar 

  • Barog, Z. S., Younesi, S. J., Sedaghati, A. H., & Sedaghati, Z. (2015). Efficacy of mindfulness-based cognitive therapy on quality of life of mothers of children with cerebral palsy. Iranian Journal of Psychiatry, 10(2), 86–92.

    Google Scholar 

  • Bazzano, A., Wolfe, C., Zylowska, L., Wang, S., Schuster, E., Barrett, C., & Lehrer, D. (2013). Mindfulness Based Stress Reduction (MBSR) for parents and caregivers of individuals with developmental disabilities: A community-based approach. Journal of Child & Family Studies, 22(8), 1–11. https://doi.org/10.1007/s10826-013-9836-9.

    Article  Google Scholar 

  • Blake, L., Bray, L., & Carter, B. (2019). “It’s a lifeline”: Generating a sense of social connectedness through befriending parents of disabled children or children with additional need. Patient Education and Counselling, 102(12), 2279–2285. https://doi.org/10.1016/j.pec.2019.07.012.

    Article  Google Scholar 

  • Bourke-Taylor, H., Howie, L., & Law, M. (2010). Impact of caring for a school-aged child with a disability: Understanding mothers’ perspectives. Australian Occupational Therapy Journal, 57(2), 127–136. https://doi.org/10.1111/j.1440-1630.2009.00817.x.

    Article  PubMed  Google Scholar 

  • Bourke-Taylor, H. M., Jane, F., & Peat, J. (2019). Healthy mothers healthy families workshop intervention: A preliminary investigation of healthy lifestyle changes for mothers of a child with a disability. Journal of Autism & Developmental Disorders, 49(3), 935–949. https://doi.org/10.1007/s10803-018-3789-1.

    Article  Google Scholar 

  • Brehaut, J. C., Kohen, D. E., Garner, R. E., Miller, A., Lach, L., Klassen, A. F., & Rosenbaum, P. (2009). Health among caregivers of children with health problems: Findings from a Canadian Population-Based Study. American Journal of Public Health, 99(7), 1254–1262. https://doi.org/10.2105/AJPH.2007.129817.

    Article  PubMed  PubMed Central  Google Scholar 

  • Bunning, K., Gona, J. K., Newton, C. R., Andrews, F., Blazey, C., Ruddock, H., et al. (2020). Empowering self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Impacts and their underlying mechanisms. PLoS ONE, 15(3), e0229851. https://doi.org/10.1371/journal.pone.0229851.

    Article  PubMed  PubMed Central  Google Scholar 

  • Chambers, H. G., & Chambers, J. A. (2015). Effects of caregiving on the families of children and adults with disabilities. Physical Medicine & Rehabilitation Clinics of North America, 26(1), 1–19. https://doi.org/10.1016/j.pmr.2014.09.004.

    Article  Google Scholar 

  • Collins, P. Y., Pringle, B., Alexander, C., Darmstadt, G. L., Heymann, J., Huebner, G., et al. (2017). Global services and support for children with developmental delays and disabilities: Bridging research and policy gaps. PLoS Medicine, 14(9), e1002393. https://doi.org/10.1371/journal.

    Article  PubMed  PubMed Central  Google Scholar 

  • Covidence. (2020). Covidence systematic review software. Melbourne: Veritas Health Innovation.

    Google Scholar 

  • Da Paz, N. S., & Wallander, J. L. (2017). Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review. Clinical Psychology Review, 51(4), 1–14. https://doi.org/10.1016/j.cpr.2016.10.006.

    Article  PubMed  Google Scholar 

  • Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: A randomized trial. Pediatrics, 134, e454.

    Article  Google Scholar 

  • Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., & Munson, J. (2013). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain & Development, 35(2), 133–138. https://doi.org/10.1016/j.braindev.2012.10.004.

    Article  Google Scholar 

  • Fairthorne, J., Jacoby, P., Bourke, J., de Klerk, N., & Leonard, H. (2015). Onset of maternal psychiatric disorders after the birth of a child with intellectual disability: A retrospective cohort study. Journal of Psychiatric Research, 61, 223–230.

    Article  Google Scholar 

  • Feinberg, E., Augustyn, M., Fitzgerald, E., Sandler, J., Ferreira-Cesar Suarez, Z., Chen, N., et al. (2014). Improving maternal mental health after a child’s diagnosis of autism spectrum disorder: Results from a randomized clinical trial. JAMA Pediatrics, 168(1), 40–46.

    Article  Google Scholar 

  • Fernández Sánchez, H., Enríquez Hernández, B. E. E., Sidani, S., Hernández Osorio, C., Castellanos Contreras, E., & Salazar Mendoza, J. (2020). Dance intervention for Mexican family caregivers of children with developmental disability: A pilot study. Journal of Transcultural Nursing, 31(1), 38–44. https://doi.org/10.1177/1043659619838027.

    Article  PubMed  Google Scholar 

  • Gilson, K. M., Johnson, S., Davis, E., Brunton, S., Swift, E., & Reddihough, D. (2018). Supporting the mental health of mothers of children with a disability: Health professional perceptions of need, role, and challenges. Child: Care, Health and Development, 44(5), 721–729.

    Google Scholar 

  • Gonzalez-Fraile, E., Dominguez-Panchon, A. I., Berzosa, P., Costas-Gonzalez, A. B., Garrido-Jimenez, I., Rufino-Ventura, D., et al. (2019). Efficacy of a psychoeducational intervention in caregivers of people with intellectual disabilities: A randomized controlled trial (EDUCA-IV trial). Research in Developmental Disabilities, 94(6), 103458. https://doi.org/10.1016/j.ridd.2019.103458.

    Article  PubMed  Google Scholar 

  • Green, S. E. (2007). “We’re tired, not sad”: Benefits and burdens of mothering a child with a disability. Social Science & Medicine, 64(1), 150–163. https://doi.org/10.1016/j.socscimed.2006.08.025.

    Article  Google Scholar 

  • Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism & Developmental Disorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-y.

    Article  Google Scholar 

  • Hemdi, A., & Daley, D. (2017). The effectiveness of a psychoeducation intervention delivered via whatsapp for mothers of children with autism spectrum disorder (ASD) in the Kingdom of Saudi Arabia: A randomized controlled trial. Child: Care, Health and Development, 43(6), 933–941.

    Google Scholar 

  • Higgins, J., & Green, S. (2011). Cochrane handbook for systematic reviews of interventions version 5.1.0 [updated March 2011]. In The Cochrane Collaboration (Ed.).

  • Higgins, J., Thompson, S. G., Deeks, J. J., & Altman, D. G. (2003). Measuring inconsistency in meta-analyses. BMJ, 327(7414), 557–560.

    Article  Google Scholar 

  • Hoffmann, T. C., Glasziou, P. P., Boutron, I., Milne, R., Perera, R., & Moher, D. (2014). Better reporting of interventions: Template for intervention description and replication (TIDieR) checklist and guide. British Medical Journal, 348, 1687. https://doi.org/10.1136/bmj.g1687.

    Article  Google Scholar 

  • Hu, J., Lin, J. D., Yen, C. F., Loh, C. H., Hsu, S. W., Lin, L. P., & Wu, S. R. (2010). Effectiveness of a stress-relief initiative for primary caregivers of adolescents with intellectual disability. Journal of Intellectual & Developmental Disability, 35(1), 29–35.

    Article  Google Scholar 

  • Izadi-Mazidi, M., Riahi, F., & Khajeddin, N. (2015). Effect of cognitive behavior group therapy on parenting stress in mothers of children with autism. Iranian Journal of Psychiatry and Behavioral Sciences, 9(3), e1900.

    Article  Google Scholar 

  • Kirkham, M. A., & Schilling, R. F. (1990). Life skills training with mothers of handicapped children. Journal of Social Service Research, 13(2), 67–87.

    Article  Google Scholar 

  • Kirkham, M. A., Schilling, R. F., II., Norelius, K., & Schinke, S. P. (1986). Developing coping styles and social support networks: An intervention outcome study with mothers of handicapped children. Child: Care, Health and Development, 12(5), 313–323.

    Google Scholar 

  • Lee, J. H. (2017). Group art therapy and self-care for mothers of children with disabilities. Doctor of Philosophy electronic. Lesley University. Retrieved from https://digitalcommons.lesley.edu/expressive_dissertations/49?utm_source=digitalcommons.lesley.edu%2Fexpressive_dissertations%2F49&utm_medium=PDF&utm_campaign=PDFCoverPages.

  • Lindo, E. J., Kliemann, K. R., Combes, B. H., & Frank, J. (2016). Managing stress levels of parents of children with developmental disabilities: A meta-analytic review of interventions. Family Relations, 65(1), 207–224. https://doi.org/10.1111/fare.12185.

    Article  Google Scholar 

  • Lo, H. H. M., Chan, S. K. C., Szeto, M. P., Chan, C. Y. H., & Choi, C. W. (2017). A feasibility study of a brief mindfulness-based program for parents of preschool children with developmental disabilities. Mindfulness, 8(6), 1665–1673.

    Article  Google Scholar 

  • Lopez-Liria, R., Vargas-Muñoz, E., Aguilar-Parra, J. M., Padilla-Góngora, D., Mañas-Rodriguez, M. A., & Rocamora-Pérez, P. (2019). Effectiveness of a training program in the management of stress for parents of disabled children. Journal of Child and Family Studies. https://doi.org/10.1007/s10826-019-01665-5.

    Article  Google Scholar 

  • Lovell, B., Moss, M., & Wetherell, M. A. (2016). Assessing the feasibility and efficacy of written benefit-finding for caregivers of children with autism: A pilot study. Journal of Family Studies, 22(1), 32–42.

    Article  Google Scholar 

  • Lovenfosse, M., & Viney, L. L. (1999). Understanding and helping mothers of children with “special needs” using personal construct group work. Community Mental Health Journal, 35(5), 431–442.

    Article  Google Scholar 

  • Magana, S., Li, H., Miranda, E., & Paradiso de Sayu, R. (2015). Improving health behaviours of Latina mothers of youths and adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 59(5), 397–410.

    Article  Google Scholar 

  • Marquis, S. M., McGrail, K., & Hayes, M. (2020a). Mental health of parents of children with a developmental disability in British Columbia, Canada. Journal of Epidemiology and Community Health, 74(2), 173. https://doi.org/10.1136/jech-2018-211698.

    Article  PubMed  Google Scholar 

  • Marquis, S. M., McGrail, K., & Hayes, M. (2020b). Mental health outcomes among parents of a child who has a developmental disability: Comparing different types of developmental disability. Disability and Health Journal, 13(2), 1–8. https://doi.org/10.1016/j.dhjo.2019.100874.

    Article  Google Scholar 

  • Masefield, S. C., Prady, S. L., & Sheldon, T. A. (2020). The caregiver health effects of caring for young children with developmental disabilities: A meta-analysis. Maternal Child Health Journal, 24(2), 561–574. https://doi.org/10.1007/s10995-020-02896-5.

    Article  PubMed  Google Scholar 

  • Masulani-Mwale, C., Kauye, F., Gladstone, M., & Mathanga, D. (2019). Development of a psycho-social intervention for reducing psychological distress among parents of children with intellectual disabilities in Malawi. PLoS ONE, 14(2), e0210855. https://doi.org/10.1371/journal.pone.0210855.

    Article  PubMed  PubMed Central  Google Scholar 

  • Minnes, P., Perry, A., & Weiss, J. A. (2015). Predictors of distress and well-being in parents of young children with developmental delays and disabilities: The importance of parent perceptions. Journal of Intellectual Disability Research, 59(6), 551–560. https://doi.org/10.1111/jir.12160.

    Article  PubMed  Google Scholar 

  • Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics, 119(5), e1040-1046. https://doi.org/10.1542/peds.2006-2819.

    Article  PubMed  Google Scholar 

  • Niinomi, K., Asano, M., Kadoma, A., Yoshida, K., Ohashi, Y., Furuzawa, A., et al. (2016). Developing the “Skippu-Mama” program for mothers of children with autism spectrum disorder. Nursing & Health Sciences, 18(3), 283–291.

    Article  Google Scholar 

  • Ogourtsova, T., O’Donnell, M., De Souva Silva, W., & Majnemer, A. (2019). Health coaching for parents of children with developmental disabilities: A systematic review. Developmental Medicine & Child Neurology, 61(11), 1259–1265. https://doi.org/10.1111/dmcn.14206.

    Article  Google Scholar 

  • Osborn, R., Girgis, M., Morse, S., Sladakovic, J., Kneebone, I., Shires, A., et al. (2018). Mindfulness-integrated cbt (micbt) for reducing distress in parents of children with intellectual disability (id): A case series. Journal of Developmental and Physical Disabilities, 30, 559–568. https://doi.org/10.1007/s10882-018-9602-4.

    Article  Google Scholar 

  • Pourmohamadreza-Tajrishi, M., Azadfallah, P., Hemmati Garakani, S., & Bakhshi, E. (2015). The effect of problem-focused coping strategy training on psychological symptoms of mothers of children with down syndrome. Iranian Journal of Public Health, 44(2), 254–262.

    PubMed  PubMed Central  Google Scholar 

  • Raina, P., O’Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., et al. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115(6), e626-636.

    Article  Google Scholar 

  • Raina, P., O’Donnell, M., Schwellnus, H., Rosenbaum, P., King, G., Brehaut, J., et al. (2004). Caregiving process and caregiver burden: Conceptual models to guide research and practice. BMC Pediatrics, 4, 1. https://doi.org/10.1186/1471-2431-4-1.

    Article  PubMed  PubMed Central  Google Scholar 

  • Sawyer, M. G., Bittman, M., La Greca, A. M., Crettenden, A. D., Borojevic, N., Raghavendra, P., & Russo, R. (2011). Time demands of caring for children with cerebral palsy: What are the implications for maternal mental health? Developmental Medicine & Child Neurology, 53(4), 338–343.

    Article  Google Scholar 

  • Schnabel, A., Youssef, G. J., Hallford, D. J., Hartley, E. J., McGillivray, J. A., Stewart, M., et al. (2020). Psychopathology in parents of children with autism spectrum disorder: A systematic review and meta-analysis of prevalence. Autism, 24(1), 26–40. https://doi.org/10.1177/1362361319844636.

    Article  PubMed  Google Scholar 

  • Shu, B. C., & Lung, F. W. (2005). The effect of support group on the mental health and quality of life for mothers with autistic children. Journal of Intellectual Disability Research, 49(Pt 1), 47–53.

    Article  Google Scholar 

  • Thenu, C. T., & Natesan, H. (2013). Management of stress in parents of special children through positive therapy. Indian Journal of Health and Wellbeing, 4(6), 1310–1312.

    Google Scholar 

  • Wei, K. C., Lee, C., Mahendran, R., & Lim, C. G. (2012a). Improving mental health care for people with an intellectual disability in Singapore: Bridging the health-social care divide. Singapore Medical Journal, 53(7), 428–432.

    PubMed  Google Scholar 

  • Wei, Y.-S., Chu, H., Chen, C.-H., Hsueh, Y.-J., Chang, Y.-S., Chang, L.-I., & Chou, K.-R. (2012b). Support groups for caregivers of intellectually disabled family members: Effects on physical-psychological health and social support. Journal of Clinical Nursing, 21(11/12), 1666–1677. https://doi.org/10.1111/j.1365-2702.2011.04006.x.

    Article  PubMed  Google Scholar 

  • Whittingham, K., Sanders, M., McKinlay, L., & Boyd, R. N. (2014). Child quality of life and parent psychological adjustment can be improved with Stepping Stones Triple P and ACT: An RCT. Developmental Medicine and Child Neurology, 56, 75.

    Article  Google Scholar 

  • Wong, F. K., & Poon, A. (2010). Cognitive behavioural group treatment for Chinese parents with children with developmental disabilities in Melbourne, Australia: An efficacy study. Australian & New Zealand Journal of Psychiatry, 44(8), 742–749. https://doi.org/10.3109/00048671003769769.

    Article  Google Scholar 

  • Woodman, A. C. (2014). Trajectories of stress among parents of children with disabilities: A dyadic analysis. Family Relations, 63(1), 39–54. https://doi.org/10.1111/fare.12049.

    Article  Google Scholar 

  • Yıldırım, A., Hacıhasanoğlu, A. R., & Karakurt, P. (2013). Effects of a nursing intervention program on the depression and perception of family functioning of mothers with intellectually disabled children. Journal of Clinical Nursing, 22(1/2), 251–261. https://doi.org/10.1111/j.1365-2702.2012.04280.x.

    Article  PubMed  Google Scholar 

  • Zhang, W., Yan, T. T., Du, Y. S., & Liu, X. H. (2014). Brief report: Effects of solution-focused brief therapy group-work on promoting post-traumatic growth of mothers who have a child with ASD. Journal of Autism and Developmental Disorders., 44(8), 2052–2056.

    Article  Google Scholar 

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Acknowledgments

The authors completed this unfunded study independently.

Author Contributions

HMB-T designed the search terms, identified included studies via covidence via screening of tiles, abstracts and full text reviews including classifying excluded studies; classified modes; extracted intervention details via TIDieR; primary author of whole manuscript. AL conducted the search and transferred retrieved studies to covidence; contributed to mode definitions and classifications; extracted data for tabulated descriptions; conducted metanalysis and sensitivity, and authored specific section of results. LT extracted study data for tabulated descriptions; contributed to mode definitions and classifications; conducted independent quality ratings; extracted and described outcomes measures including tabulating; reviewed manuscript; KJ conducted final search; extracted study data for tabulated descriptions; contributed to mode definitions and classifications; conducted independent quality ratings; PM assisted with search design and systematic review planning; reviewed drafts of manuscript; TH conducted independent review of titles and abstracts in Covidence and reviewed drafts of the manuscript.

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Table 1 Search strategy for interventions that influence outcomes for mothers of children with a disability

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Bourke-Taylor, H.M., Lee, DC.A., Tirlea, L. et al. Interventions to Improve the Mental Health of Mothers of Children with a Disability: Systematic Review, Meta-analysis and Description of Interventions. J Autism Dev Disord 51, 3690–3706 (2021). https://doi.org/10.1007/s10803-020-04826-4

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