Abstract
Purpose
Many assert the need for home hospice care. However, limited research has shown its effectiveness. The authors of this study thus evaluated the effectiveness of a home hospice care pilot project regarding (1) early enrollment in hospice care, (2) efficient use of inpatient hospice resources, and (3) enabling terminally ill patients to stay at their preferred place of care.
Methods
The authors conducted a nationwide prospective observational study. Patients were divided into home hospice care users (ever-users, n = 902) and inpatient-only hospice care users (never-users, n = 8210). Information about hospice service utilization was collected from a web-based registry system. Patients were registered if they started to receive the hospice service after providing written informed consent during the pilot project from March 2016–July 2017.
Results
Most ever-users preferred to stay at home (84.0%), while never-users preferred hospital admission (66.9%). Most ever-users were enrolled in hospice by home care (78.9%) and used both home and inpatient care (72.4%). The overall duration of hospice care was significantly longer among ever-users than never-users (median 39 vs. 15 days, respectively; mean ± SD 59.6 ± 62.8 vs. 24.8 ± 32.1, respectively; p < .001). Participation in the pilot program improved bed utilization (p = .025) and turnover rate (p < .001) of inpatient hospice service.
Conclusions
Home hospice care enabled early enrollment in hospice services and provided a valid option to patients who wished to stay at home. Policy efforts to facilitate home hospice care are needed.
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Data availability
The data used in this study can be obtained in anonymized form by contacting the Central Hospice Center (ncchospice@ncc.re.kr).
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Funding
This work was supported by a grant from the National R&D Programme for Cancer Control, Ministry of Health and Welfare, Republic of Korea (nos. 1431620-1, 1810140-1 and 1911000-1).
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Research involving human participants and/or animals
All procedures performed were in accordance with the ethical standards of the Institutional Review Board of the National Cancer Centre (review no. NCCNCS09234) and with the 1964 Helsinki declaration and its later amendments. Information about patients was collected based on the Cancer Control Act in Korea. It was a mandatory registration project to promote hospice care in Korea.
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Informed consent was obtained from all individual participants included in the study.
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Ahn, E., Song, I.G., Choi, J.Y. et al. Effectiveness of home hospice care: a nationwide prospective observational study . Support Care Cancer 28, 2713–2719 (2020). https://doi.org/10.1007/s00520-019-05091-7
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DOI: https://doi.org/10.1007/s00520-019-05091-7