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Factors influencing preferences for place of terminal care and of death among cancer patients and their families in Korea

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Abstract

Goals of work

This study examined cancer patient and family member preferences—and the reasons for the preferences—regarding place of terminal care and of death.

Patients and methods

We constructed a questionnaire that included demographic, clinical, and support network data for 371 patients who were treated at any of the seven university hospitals or the National Cancer Center in Korea and 281 of their family members.

Main results

About half of the interviewed patients and half of the family members expressed a preference for the patient being cared for and dying at home. The preference reflected a wish for patients to live out their lives in privacy and to be with their family when their life ended. Those who expressed a preference to be cared for or to die in a hospital wanted to get medical treatment during the last days of life and to relieve their families of the burden of caring for them. Of the variables examined, support network factors and some sociodemographic factors (sex, family members’ age, and place of residence) were strongly predictive of preferences.

Conclusion

A majority of cancer patients preferred to receive terminal care at home. Cancer patients and family members with strong support groups were more likely to prefer the home as the place of terminal care and dying. Hence, improving support networks might increase the proportion of patients receiving home care and dying at home.

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References

  1. Toscani F, Cantoni L, Di Mola G et al (1991) Death and dying: perceptions and attitudes in Italy. Palliat Med 5:334–343

    Google Scholar 

  2. Dunlop RJ, Davies R, Hockley JM (1989) Preferred versus actual place of death: a hospital palliative care support team experience. Palliat Med 3:197–201

    Google Scholar 

  3. Townsend J, Frank AO, Fermont D et al (1990) Terminal cancer care and patients’ preference for place of death: a prospective study. Br Med J 301:415–417

    Google Scholar 

  4. McWhinney IR, Bass MJ, Orr V (1995) Factors associated with location of death (home or hospital) of patients referred to a palliative care team. Can Med Assoc J 152(3):361–367

    Google Scholar 

  5. Gilbar O, Steiner M (1996) When death comes: where should patients die? Hosp J 11(1):31–48

    Google Scholar 

  6. Kai I, Ohi G, Yano E et al (1993) Communication between patients and physicians about terminal cancer care: a survey in Japan. Soc Sci Med 36:1151–1159

    Google Scholar 

  7. Tang ST (1998) Comparison of quality of care for home and hospital terminal cancer patients. J Pain Symptom Manage 15(4):S32

    Google Scholar 

  8. Grande GE, Addington-Hall JM, Todd CJ (1998) Place of death and access to home care services: are certain patient groups at a disadvantage? Soc Sci Med 47:565–579

    Google Scholar 

  9. Teno JM, Clarridge BR, Casey V et al (2004) Family perspectives on end-of-life care at the last place of care. JAMA 291:88–93

    Google Scholar 

  10. Korea National Statistical Office (2003) Annual report on the cause of death statistics

  11. Duda DA (1982) Guide to dying at home. John Mair Publishing Inc, Santa Fe, NM, pp 58–71

    Google Scholar 

  12. Litcher I (1987) Communication in cancer care. Churchill Livingstone, New York, pp 133–168

    Google Scholar 

  13. Butow PN, Maclean M, Tattersall MH et al (1997) The dynamics of change: cancer patients’ preferences for information, involvement and support. Ann Oncol 8(9):857–863

    Article  CAS  PubMed  Google Scholar 

  14. Higginson IJ, Sen-Gupta GJA (2000) Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. J Palliat Med 3:287–300

    Google Scholar 

  15. Tang ST (2003) When death is imminent: where terminally ill patients with cancer prefer to die and why. Cancer Nurs 26(3):245–251

    Google Scholar 

  16. Yun YH, Lee CG, Kim S et al (2004) The attitudes of cancer patients and their families toward the disclourse of terminal illness. J Clin Oncol 22(2):307–314

    Google Scholar 

  17. Mor V, Hiris J (1983) Determinants of site of death among hospice cancer patients. J Health Soc Behav 24(4):375–384

    Google Scholar 

  18. Hinton J (1994) Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives? Palliat Med 8:183–196

    Google Scholar 

  19. Chih A (1981) Chinese humanism: a religion beyond religion. Fu Jen Catholic University Press, Taipei, pp 330–389

    Google Scholar 

  20. Rando TA (1984) Grief, dying and death: clinical interventions for caregiver. Research Press Company, Champaign, IL

    Google Scholar 

  21. Buckingham RW (1984) The complete book of home health care. Crossroad Press Company, New York, pp 143–149

    Google Scholar 

  22. Glaser B, Strauss A (1975) In: Strauss AL (ed) Dying in hospital. In chronic illness and quality of life. Mosby CV, St. Louis, pp 119–129

    Google Scholar 

  23. De Conno F, Caraceni A, Groff L et al (1996) Effect of home care on the place of death of advanced cancer patients. Eur J Cancer 32(7):1142–1147

    Google Scholar 

  24. Malden LT, Sutherland C, Tattersall MH et al (1984) Dying of cancer: factors influencing the place of death of patients. Med J Aust 141:147–150

    Google Scholar 

  25. Soukop M, Calman KC (1977) Cancer patients: where they die—an analysis. Practitioner 19:883–888

    Google Scholar 

  26. Dunphy KP, Amesbury BDW (1990) A comparison of hospice and home care patients: patterns of referral, patient characteristics and predictors of place of death. Palliat Med 4:105–111

    Google Scholar 

  27. Bruera E, Neumann CM, Gagnon E et al (1999) Edmonoton Regional Palliative Care Program: impact on patterns of terminal cancer care. Can Med Assoc J 161(3):290–293

    Google Scholar 

  28. Bowling A, Cartwright A (1982) Life after death: a study of the elderly widowed. Tavistock, London

    Google Scholar 

  29. Cantwell P, Turco S, Baenneis C (2000) Predictors of home death in palliative care cancer patients. J Palliat Care 16:23–28

    Google Scholar 

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Acknowledgements

This work was supported by National Cancer Center grant 0110020-3.

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Correspondence to Young Ho Yun.

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Choi, K.S., Chae, Y.M., Lee, C.G. et al. Factors influencing preferences for place of terminal care and of death among cancer patients and their families in Korea. Support Care Cancer 13, 565–572 (2005). https://doi.org/10.1007/s00520-005-0809-4

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  • DOI: https://doi.org/10.1007/s00520-005-0809-4

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