Abstract
Introduction
One in 10,000 children die of a life-threatening condition annually, and in the UK, nearly forty hospices exist to provide care for children with life-threatening illnesses. This study was designed to explore what is offered within children’s hospices and how they cared for the growing number of older children and adolescents who are living with life-limiting illness.
Materials and methods
A questionnaire was sent to all of the children’s hospices in the UK (n=40), as listed in the Hospice Information (2003) Hospice Information, Hospice Directory, 2003. A number of different areas were covered e.g. staffing, services offered, nature of care provided and, in relation to older children, their links with adult hospices.
Results
Thirty-three of the 40 children’s hospices returned the questionnaires—an 83% response rate. Care of adolescents with life-threatening illness was identified as an issue with more than 50% of the hospices stating that they had difficulty in liaising with adult hospices to offer support for adolescents.
Conclusion
This study highlights that there is consistency in the high level of care being provided to children up to the age of 18, ,but provision of care after this age is patchy and not always readily available.
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Acknowledgements
Our thanks to the children’s hospices who participated in this study and to members of the Academic Palliative and Supportive Care Studies group (APSCSG), University of Liverpool, for their comments on the paper. This work was supported by a small grant from the APSCSG.
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Mash, E., Lloyd-Williams, M. A survey of the services provided by children’s hospices in the United Kingdom. Support Care Cancer 14, 1169–1172 (2006). https://doi.org/10.1007/s00520-006-0123-9
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DOI: https://doi.org/10.1007/s00520-006-0123-9