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Wensen en behoeften van patiënten ten aanzien van routine follow-up na behandeling voor colorectaal carcinoom

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Psychologie en Gezondheid

Summary

Needs and preferences regarding routine follow-up of patients treated for colorectal cancer

The aim of this study is to investigate needs and preferences regarding routine follow-up of patients treated for colorectal cancer (CRC) with curative intent and to explore the effect of length of follow-up after treatment on these needs and preferences. 127 disease-free patients treated for CRC were sent a standardized questionnaire. 118 completed questionnaires could be analyzed. Participants had high expectations about follow-up care concerning detection of recurrences and metastases and with that the life expectancy. Most of them judged the communication to be positive, were reassured by the follow-up and did not anticipate the visits with nervous distress. The investigations were not seen as burdensome, but a majority of the patients disliked being reminded of the disease. Nearly half of all respondents prefer lifelong follow-up and nearly all patients would be distressed when follow-up would stop after several years. Most patients were satisfied with the investigation intervals. They wanted information or preferred talking about several subjects like heredity, prognosis and stools. A quarter of all participants would appreciate psychological support. Length of follow-up was only related to fear of recurrence, preference of the frequency of follow-up visits, additional investigations and preference of follow-up provider.

Patients treated for CRC reported a strong preference for long-term follow-up, which could provide reassurance, information and psychological support. There are high expectations about follow-up care, while earlier research show that follow-up does not influence overall survival. The advantages of invasive investigations outweigh the disadvantages.

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  1. www.bsl.nl/shop/psychologie-gezondheid-1873-1791.html

    H. A. Balk

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  1. H. A. Balk
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  2. J. D. van Bergeijk
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  3. I. M. Rabeling-Keus
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Correspondence to H. A. Balk.

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H.A. Balk is als nurse practitioner chirurgische oncologie werkzaam bij het Ziekenhuis Gelderse Vallei Ede, afdeling Heelkunde, dr. J.D. van Bergeijk als maag-, darm- en leverarts bij het Ziekenhuis Gelderse Vallei Ede, afdeling Maag-, darm- en leverziekten. Dr. I.M. Rabeling-Keus is als docent, opleider en adviseur verbonden aan de academische specialisatie psychologie van de Hogeschool van Arnhem en Nijmegen, VDO Opleidings- en adviescentrum.

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Balk, H.A., van Bergeijk, J.D. & Rabeling-Keus, I.M. Wensen en behoeften van patiënten ten aanzien van routine follow-up na behandeling voor colorectaal carcinoom. PSEG 37, 145–151 (2009). https://doi.org/10.1007/BF03080387

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