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The Danish polyposis register

Description of the methods of detection and evaluation of completeness

  • Published:
Diseases of the Colon & Rectum

Abstract

A manual Danish register of patients with familial polyposis coli and their family members was established in 1971. The methods of collection of propositi, preparation of pedigrees, collection of call-up cases, and the organization of the register are described. A country-wide prophylactic proctosigmoidoscopic examination of first-degree relatives, aged 10 to 59 years, resulted in the detection of 42 call-up cases and by December 1982, 319 cases of polyposis were registered in 94 families. An evaluation of the number of collected propositi and call-up cases shows almost complete registration.

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Dr. Bülow has received grants from the Danish Cancer Society (809/71 and 87/80), “Max and Anna Friedmanns Legat,” and “Ferdinand og Ellen Hindsgauls Fond.”

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Bülow, S. The Danish polyposis register. Dis Colon Rectum 27, 351–355 (1984). https://doi.org/10.1007/BF02552996

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  • DOI: https://doi.org/10.1007/BF02552996

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