The developments of science and medical technology have contributed to the survival of an increasing number of critically ill newborns. However, when the impossibility of survival becomes apparent, a new risk emerges: that of abandoning the patient. Infants diagnosed with congenital lethal conditions or terminally ill do not longer benefit traditional intensive care, therefore a different plan of medical care is warranted. A novel and personalized management for this population, defined ‘comfort care’, is proposed. This paper offers some relevant observations arising from a 3-year experience of comfort care management in a tertiary Neonatal Intensive Care Unit, through clinical cases.
Comfort care Personalized care End of life care Congenital lethal condition Terminally ill infant